Diseases of the Musculoskeletal System

Tumor-induced Osteomalacia Disease Monitoring Program

Volunteers
Health Professionals

What is the purpose of this trial?

he objectives of this observational study are to assess the long-term safety and long-term effectiveness of burosumab in patients with TIO who are being treated with burosumab as prescribed by their physician and to monitor the course of the underlying phosphaturic mesenchymal tumor (PMT) overtime in patients with TIO irrespective of their treatment status.

Trial with
Ultragenyx Pharmaceutical, Inc.
Gender
Both

Find out more about who can participate in this trial

Contact Information

For more information about this study, including how to volunteer, contact Carol Alexandrescu

Help Us Discover!

You can help our team find trials you might be eligible for by creating a volunteer profile in MyChart. To get started, create a volunteer profile, or contact helpusdiscover@yale.edu, or call 877.978.8343 for more information.

Create a volunteer profile

Principal Investigator

Thomas Carpenter, MD
Professor of Pediatrics (Endocrinology) and of Orthopaedics and Rehabilitation and Clinical Professor of Nursing; Director, Yale Center for X-Linked Hypophosphatemia; Medical Director, Hospital Research Unit

Sub-Investigator

Karl Insogna, MD, FACP

Last Updated
04/21/2023
Study HIC
#2000030693