2025
Clinical Validation of a Vaginal Cervical Cancer Screening Self-Collection Method for At-Home Use
Fitzpatrick M, Behrens C, Hibler K, Parsons C, Kaplan C, Orso R, Parker L, Memmel L, Collins A, McNicholas C, Crane L, Hwang Y, Sutton E, Coleman J, Kuroki L, Harshberger K, Williams S, Jennings A, Buccini F, Gillis L, Novetsky A, Hawkes D, Saville M, Depel T, Aviki E, Sheth S, Conageski C. Clinical Validation of a Vaginal Cervical Cancer Screening Self-Collection Method for At-Home Use. JAMA Network Open 2025, 8: e2511081. PMID: 40388167, PMCID: PMC12090030, DOI: 10.1001/jamanetworkopen.2025.11081.Peer-Reviewed Original ResearchConceptsCervical screeningPercentage agreementHigh-risk human papillomavirusScreening-eligible participantsSelf-collectionNonrandomized clinical trialDetection of high-risk human papillomavirusPositive percentage agreementMethod-comparison study designPrimary outcome measureHealth careUS womenSelf-collection methodDelayed screeningMain OutcomesAt-home settingClinical sensitivityOutcome measuresStudy designClinical sitesCervical dysplasiaStudy measuresDetection of high-grade cervical dysplasiaClinical trialsClinician-collected (CCImpact of skilled nursing facility discharge on inpatient oncology quality outcomes
Rothberg B, Morris J. Impact of skilled nursing facility discharge on inpatient oncology quality outcomes. JNCI Cancer Spectrum 2025, 9: pkaf055. PMID: 40408163, PMCID: PMC12202314, DOI: 10.1093/jncics/pkaf055.Peer-Reviewed Original ResearchConceptsSkilled nursing facilityNursing facilitiesMedical oncology serviceLength of staySelf-careSeverity of illness indexReadmission ratesOncology servicesSkilled nursing facility dischargeImprove care qualityHouse staff teamsIllness indexOncology patientsImproved length of stayCare qualityThirty-day readmission ratesDischarge planningTime of dischargeQuality outcomesPractice improvementFacility dischargeStaff teamsRandom interceptReadmissionHospitalist comanagement
2024
Accuracy of and preferences for blood-based versus oral-fluid-based HIV self-testing in Malawi: a cross-sectional study
O’Reilly A, Mavhu W, Neuman M, Kumwenda M, Johnson C, Sinjani G, Indravudh P, Choko A, Hatzold K, Corbett E. Accuracy of and preferences for blood-based versus oral-fluid-based HIV self-testing in Malawi: a cross-sectional study. BMC Infectious Diseases 2024, 22: 979. PMID: 38566003, PMCID: PMC10985843, DOI: 10.1186/s12879-024-09231-1.Peer-Reviewed Original ResearchConceptsBlood-basedHIV-positiveOral fluidFactors associated with preferenceBlood-based testHIV testing servicesMultivariate logistic regressionFacility-based servicesHIV self-testingBackgroundHIV self-testingSelf-testingSelf-administered questionnaireCross-sectional studySemi-structured questionnaireAssociated with choiceHIVSTSociodemographic dataConfirmatory testTesting servicesLogistic regressionSub-Saharan AfricaUrban MalawiSub-SaharanQuestionnaireUrban facilitiesA Descriptive Analysis of Access to Assistive Technology in Children With Acquired Brain Injury: The Right to Assistive Devices
Fins J, Knitter J, Mukherjee D, Conti K, Donleavy-Hiller B, Gerber L, Hersh J, Kotorac-Erlbaum R, Milch B, Klein S. A Descriptive Analysis of Access to Assistive Technology in Children With Acquired Brain Injury: The Right to Assistive Devices. Journal Of Head Trauma Rehabilitation 2024, 39: 152-159. PMID: 37492972, PMCID: PMC10811270, DOI: 10.1097/htr.0000000000000876.Peer-Reviewed Original ResearchMeSH KeywordsBrain InjuriesChildHumansPersons with DisabilitiesRetrospective StudiesSelf CareSelf-Help DevicesConceptsSkilled nursing facilityMedical recordsAcquired Brain InjuryHospital outpatient departmentsModerate to severe brain injuryBrain injuryTime to deliveryPotential adverse implicationsAssistive technologyNursing facilitiesSelf-carePediatric cliniciansFostering social integrationImprove mobilityInsurance coverageOutpatient departmentRetrospective chart review of patientsChart review of patientsRetrospective chart reviewAssessment delayInpatient statusVulnerable childrenDescriptive analysisMedical statusLongitudinal tracking
2023
Investigating Racial and Ethnic Differences in Diabetes Self-Management Education Among Adults With Diabetes
Akyirem S, Choa E, Poghosyan H. Investigating Racial and Ethnic Differences in Diabetes Self-Management Education Among Adults With Diabetes. The Science Of Diabetes Self-Management And Care 2023, 49: 206-216. PMID: 37129292, DOI: 10.1177/26350106231169693.Peer-Reviewed Original ResearchConceptsDiabetes self-management educationDiabetes self-management education participantsSelf-management educationNon-Hispanic blacksNon-Hispanic whitesSocial determinants of health factorsEthnic differencesReduce health disparitiesImprove diabetes outcomesSelf-reported diabetesWeighted descriptive statisticsLower-level educationMultivariate logistic regressionCross-sectional dataHealth disparitiesDiabetes careDiabetes outcomesDiabetes ModuleHealth factorsPopulation-basedHispanic participantsReport participationDescriptive statisticsHispanic populationLogistic regression
2022
Transitions of Care in Cystic Fibrosis
DeFilippo E, Talwalkar J, Harris Z, Butcher J, Nasr S. Transitions of Care in Cystic Fibrosis. Clinics In Chest Medicine 2022, 43: 757-771. PMID: 36344079, DOI: 10.1016/j.ccm.2022.06.016.Peer-Reviewed Reviews, Practice Guidelines, Standards, and Consensus StatementsUse of the Self- and Family Management Framework in quantitative studies
Park J, Rada L, Feder S, Montano A, Batten J, Tan H, Grey M, Schulman-Green D. Use of the Self- and Family Management Framework in quantitative studies. Nursing Outlook 2022, 71: 101890. PMID: 36404158, DOI: 10.1016/j.outlook.2022.10.003.Peer-Reviewed Original ResearchThe association between psychological factors and self-care in patients with heart failure: an integrative review.
Wang Z, Tocchi C, Chyun D, Kim K, Cong X, Starkweather A. The association between psychological factors and self-care in patients with heart failure: an integrative review. European Journal Of Cardiovascular Nursing 2022, 22: 553-561. PMID: 36351041, DOI: 10.1093/eurjcn/zvac106.Peer-Reviewed Original ResearchMeSH KeywordsAnxietyAnxiety DisordersDepressionHeart FailureHumansObservational Studies as TopicSelf CareConceptsAssociated with self-careType D personalityDepression/depressive symptomsSelf-carePsychological factorsIntegrative reviewAssociated with poorer self-carePoor self-careConfidence/self-efficacyInverse associationElectronic databasesEducation levelHeart failureAnxietyAssess stressDepressionObservational studySymptomsPersonsAssociationCardiac historyIndividualsAssessment methodsPatientsRelationshipTrajectory of self-care in people with stable heart failure and insomnia after two self-care interventions
Conley S, Jeon S, Andrews L, Breazeale S, Hwang Y, O'Connell M, Linsky S, Redeker N. Trajectory of self-care in people with stable heart failure and insomnia after two self-care interventions. Patient Education And Counseling 2022, 105: 3487-3493. PMID: 36088189, DOI: 10.1016/j.pec.2022.09.001.Peer-Reviewed Original ResearchConceptsStable heart failureSelf-care interventionsHeart failureSevere baseline fatigueSelf-care supportSelf-care educationSelf-care groupEffects of CBTCognitive behavioral therapyGroup-based trajectory modelingBaseline fatigueEfficacious interventionsHealthcare providersSecondary analysisInsomniaBehavioral therapySelf-CareChi-squareDemographic characteristicsInterventionT-testFunctional performanceAdultsTrajectory modelingFailureEmergency Department Communication in Persons Living With Dementia and Care Partners: A Scoping Review
Carpenter CR, Leggett J, Bellolio F, Betz M, Carnahan RM, Carr D, Doering M, Hansen JC, Isaacs ED, Jobe D, Kelly K, Morrow-Howell N, Prusaczyk B, Savage B, Suyama J, Vann AS, Rising KL, Hwang U, Shah MN, Network G, Aggarwal N, Allore H, Aloysi A, Belleville M, Bellolio M, Betz M, Biese K, Brandt C, Bruursema S, Carnahan R, Carpenter C, Carr D, Chin-Hansen J, Daven M, Degesys N, Dresden M, Dussetschleger J, Ellenbogen M, Falvey J, Foster B, Gettel C, Gifford A, Gilmore-Bykovskyi A, Goldberg E, Han J, Hardy J, Hastings S, Hirshon J, Hoang L, Hogan T, Hung W, Hwang U, Isaacs E, Jaspal N, Jobe D, Johnson J, Kelly K, Kennedy M, Kind A, Leggett J, Malone M, Moccia M, Moreno M, Morrow-Howell N, Nowroozpoor A, Ohuabunwa U, Oiyemhonlan B, Perry W, Prusaczyk B, Resendez J, Rising K, Sano M, Savage B, Shah M, Suyama J, Swartzberg J, Taylor Z, Tolia V, Vann A, Webb T, Weintraub S. Emergency Department Communication in Persons Living With Dementia and Care Partners: A Scoping Review. Journal Of The American Medical Directors Association 2022, 23: 1313.e15-1313.e46. PMID: 35940681, DOI: 10.1016/j.jamda.2022.02.024.Peer-Reviewed Original ResearchConceptsCare partnersOutcome measuresSpecific communication strategiesEmergency department communicationSystematic electronic searchValid outcome measuresScoping ReviewED communicationMedical research databasesBarriers/facilitatorsSystem-level factorsSystematic scoping reviewED careED settingPICO questionED teamConsensus conferenceElectronic searchResearch DatabaseResearch prioritiesOutcome questionsDementiaDementia researchersEffective communicationRelevant publicationsPragmatic randomized trial assessing the impact of digital health technology on quality of life in patients with heart failure: Design, rationale and implementation
Victoria‐Castro A, Martin M, Yamamoto Y, Ahmad T, Arora T, Calderon F, Desai N, Gerber B, Lee KA, Jacoby D, Melchinger H, Nguyen A, Shaw M, Simonov M, Williams A, Weinstein J, Wilson FP. Pragmatic randomized trial assessing the impact of digital health technology on quality of life in patients with heart failure: Design, rationale and implementation. Clinical Cardiology 2022, 45: 839-849. PMID: 35822275, PMCID: PMC9346973, DOI: 10.1002/clc.23848.Peer-Reviewed Original ResearchConceptsQuality of lifeHF patientsYale New Haven Health SystemKansas City Cardiomyopathy QuestionnaireDigital health technologiesHeart failure careHealth technologiesDigital health interventionsDisease exacerbationHF clinicUsual carePrimary outcomeClinical outcomesHeart failurePatient engagementPatientsHealth interventionsDigital health toolsPatient empowermentHealth systemPatient usabilityHealth toolsEarly detectionFirst enrollmentHealthcare systemSleep Characteristics, Mood, Somatic Symptoms, and Self-Care Among People With Heart Failure and Insomnia
Breazeale S, Jeon S, Hwang Y, O’Connell M, Nwanaji-Enwerem U, Linsky S, Yaggi HK, Jacoby DL, Conley S, Redeker NS. Sleep Characteristics, Mood, Somatic Symptoms, and Self-Care Among People With Heart Failure and Insomnia. Nursing Research 2022, 71: 189-199. PMID: 35149627, PMCID: PMC9038676, DOI: 10.1097/nnr.0000000000000585.Peer-Reviewed Original ResearchConceptsSelf-care maintenanceStable heart failureSelf-care confidenceVentricular ejection fractionHeart failureChronic insomniaSleep characteristicsSomatic symptomsClinical factorsEjection fractionLeft ventricular ejection fractionChronic heart failureSelf-care behaviorsPoor sleep characteristicsSymptoms of anxietyCross-sectional designSleep disturbancesSingle symptomWhite raceHigh riskCombined associationsInsomnia severityInsomniaSymptomsHealthcare needs
2021
Conceptual Framework for Personal Recovery in Patients With Acute Myocardial Infarction
Dreyer RP, Pavlo AJ, Horne A, Dunn R, Danvers K, Brush J, Slade M, Davidson L. Conceptual Framework for Personal Recovery in Patients With Acute Myocardial Infarction. Journal Of The American Heart Association 2021, 10: e022354. PMID: 34581198, PMCID: PMC8649153, DOI: 10.1161/jaha.121.022354.Peer-Reviewed Original ResearchConceptsConceptual frameworkSense of safetyNew conceptual frameworkDepth interviewsIdentity changeNew fearsParticipants' experiencesEveryday lifeOverarching themesSocial isolationPhenomenological frameworkInterviewsExperienceNew challengesPersonal recoveryNumerous waysPeopleFrameworkFuture interventionsResponsibilityLifeThemesSecurityParticipantsSocial Support for Self-Care: Patient Strategies for Managing Diabetes and Hypertension in Rural Uganda
Tusubira AK, Nalwadda CK, Akiteng AR, Hsieh E, Ngaruiya C, Rabin TL, Katahoire A, Hawley NL, Kalyesubula R, Ssinabulya I, Schwartz JI, Armstrong-Hough M. Social Support for Self-Care: Patient Strategies for Managing Diabetes and Hypertension in Rural Uganda. Annals Of Global Health 2021, 87: 86. PMID: 34458110, PMCID: PMC8378074, DOI: 10.5334/aogh.3308.Peer-Reviewed Original ResearchConceptsNon-communicable diseasesSelf-care practicesPrescribed medicinesConventional medicinePatient's social support networkRural UgandaSelf-care activitiesBlood sugar levelsCross-sectional qualitative studyResource-limited settingsSelf-care effortsSocial support networksSocial supportNCD clinicsNineteen patientsAdult patientsHealth facilitiesPatientsPatient strategiesManaging diabetesHypertensionSelf-CareDiabetesDiagnostic testsLow-income countriesEcological momentary assessment for health behaviors and contextual factors in persons with diabetes: A systematic review
Nam S, Griggs S, Ash GI, Dunton GF, Huang S, Batten J, Parekh N, Whittemore R. Ecological momentary assessment for health behaviors and contextual factors in persons with diabetes: A systematic review. Diabetes Research And Clinical Practice 2021, 174: 108745. PMID: 33713720, DOI: 10.1016/j.diabres.2021.108745.Peer-Reviewed Original ResearchConceptsSystematic reviewMore calorie intakeAssessment of diabetesType 2 diabetesAdministration of insulinType 1 diabetesDietary intake behaviorsSelf-management behaviorsPotential clinical utilityQuality of studiesDiabetes InterventionsPoor adherenceInsulin injectionsInclusion criteriaCalorie intakeClinical utilityGlucose checksHealth behaviorsDiabetesComprehensive searchPsychological stressModified ChecklistIntake behaviorEcological momentary assessmentPsychosocial contextTele-Mental Health Utilization Among People with Mental Illness to Access Care During the COVID-19 Pandemic
Costa M, Reis G, Pavlo A, Bellamy C, Ponte K, Davidson L. Tele-Mental Health Utilization Among People with Mental Illness to Access Care During the COVID-19 Pandemic. Community Mental Health Journal 2021, 57: 720-726. PMID: 33566269, PMCID: PMC7873669, DOI: 10.1007/s10597-021-00789-7.Peer-Reviewed Original ResearchConceptsTele-mental healthMental health servicesPercent of participantsCOVID-19 pandemicSelf-care strategiesMental health consequencesHealth utilizationHealth servicesMental illnessHealth consequencesOpen question responsesCareCOVID-19HealthQuantitative variablesQuestion responsesWorking alliancePandemicCommunity supportParticipantsIllnessInnovative strategiesMain themesCorrelational analysisResponse
2020
A Structural Equation Model of Gratitude, Self-efficacy, and Medication Adherence in Patients With Stage B Heart Failure.
Cousin L, Buck H, Benitez B, Mills P, Redwine L. A Structural Equation Model of Gratitude, Self-efficacy, and Medication Adherence in Patients With Stage B Heart Failure. The Journal Of Cardiovascular Nursing 2020, 35: e18-e24. PMID: 32649372, DOI: 10.1097/jcn.0000000000000721.Peer-Reviewed Original ResearchConceptsHeart failureMedication adherenceAsymptomatic patientsStage B heart failureMorisky Medication Adherence ScaleB heart failurePatients' mean ageMedication Adherence ScaleProspective observational studyFunction subscaleAdherence ScaleMean ageObservational studyPatientsQuestionnaire 6Secondary analysisIntervention resultsAdherenceGratitude Questionnaire-6FailureProgressionFeasibility and acceptability of a pilot, peer-led HIV self-testing intervention in a hyperendemic fishing community in rural Uganda
Matovu JKB, Bogart LM, Nakabugo J, Kagaayi J, Serwadda D, Wanyenze RK, Ko AI, Kurth AE. Feasibility and acceptability of a pilot, peer-led HIV self-testing intervention in a hyperendemic fishing community in rural Uganda. PLOS ONE 2020, 15: e0236141. PMID: 32764751, PMCID: PMC7413506, DOI: 10.1371/journal.pone.0236141.Peer-Reviewed Original ResearchConceptsHIV-positiveHIVST kitsAdult menHIV self-testing interventionLow HIV testing ratesConfirmatory HIV testingHIV testing ratesHIV-positive individualsSocial network membersHIV diagnosisHIV testingHIV servicesHIV prevalenceHIVST interventionTesting ratesNovel interventionsHIVFeasibility benchmarksRural UgandaAcceptability benchmarkYoung peopleInterventionAdult malesKitMenA randomized controlled pilot study evaluating Worry Less, Live More: The Mindful Way Through Anxiety Workbook
Serowik K, Roemer L, Suvak M, Liverant G, Orsillo S. A randomized controlled pilot study evaluating Worry Less, Live More: The Mindful Way Through Anxiety Workbook. Cognitive Behaviour Therapy 2020, 49: 412-424. PMID: 32508277, DOI: 10.1080/16506073.2020.1765858.Peer-Reviewed Original ResearchConceptsPilot studySelf-help materialsSelf-help formatSelf-reported changesAcceptance-based behavioral therapyAnxiety/tensionFunctional impairmentSelf-reported worryBehavioral therapyEffective interventionsGeneralized anxietyGreater reductionExcessive worrySignificant differencesAnxiety symptomologyAnxietyBroad disseminationTherapyMindful wayApplying concepts of life course theory and life course epidemiology to the study of bladder health and lower urinary tract symptoms among girls and women
Brady SS, Berry A, Camenga DR, Fitzgerald CM, Gahagan S, Hardacker CT, Harlow BL, Hebert‐Beirne J, LaCoursiere DY, Lewis JB, Low LK, Lowder JL, Markland AD, McGwin G, Newman DK, Palmer MH, Shoham DA, Smith AL, Stapleton A, Williams BR, Sutcliffe S, Symptoms P. Applying concepts of life course theory and life course epidemiology to the study of bladder health and lower urinary tract symptoms among girls and women. Neurourology And Urodynamics 2020, 39: 1185-1202. PMID: 32119156, PMCID: PMC7659467, DOI: 10.1002/nau.24325.Peer-Reviewed Original ResearchConceptsLower urinary tract symptomsUrinary tract symptomsBladder healthTract symptomsLife course epidemiologyLower Urinary Tract Symptoms (PLUS) Research ConsortiumProtective factorsHealth promotion programsIntrapartum interventionsMultiple pregnanciesMusculoskeletal healthBrain healthLifestyle behaviorsHormonal statusMedical conditionsWomen's healthPromotion programsPhysical healthWomenPregnancyLife courseSymptomsEpidemiologyHealthResearch Consortium
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