2025
Research Priorities in Neuropalliative Care
Lau W, Fehnel C, Macchi Z, Mehta A, Auffret M, Bogetz J, Fleisher J, Graber J, Leeper H, Manglani-Terranova H, Muehlschlegel S, Mroz E, Pedowitz E, Ramanathan U, Sarmet M, Shlobin N, Sokol L, Weeks S, Xu J, Medsger H, Creutzfeldt C, Vranceanu A, Zahuranec D, Hwang D. Research Priorities in Neuropalliative Care. JAMA Neurology 2025, 82: 295-302. PMID: 39899319, DOI: 10.1001/jamaneurol.2024.4932.Peer-Reviewed Original ResearchMeSH KeywordsBiomedical ResearchConsensusHumansNervous System DiseasesNeurologyPalliative CareResearchSocieties, MedicalConceptsNeuropalliative careCare partnersIntegration of palliative careSpecialty palliative care servicesGoal-concordant carePalliative care servicesInterdisciplinary panel of expertsArea of practiceImprove quality of lifeQuality of lifePalliative careCare interventionsCare servicesPanel of expertsDelivery modelsPriority research areasCareInterdisciplinary panelImprove qualityCare SocietyResearch prioritiesResearch funding mechanismsResearch CommitteeSpecialized communicationNeurological diseases
2022
Top Ten Tips Palliative Care Clinicians Should Know About Disorders of Consciousness: A Focus on Traumatic and Anoxic Brain Injury
Steinberg A, Hudoba C, Hwang DY, Kramer NM, Mehta AK, Muehlschlegel S, Jones CA, Besbris J. Top Ten Tips Palliative Care Clinicians Should Know About Disorders of Consciousness: A Focus on Traumatic and Anoxic Brain Injury. Journal Of Palliative Medicine 2022, 25: 1571-1578. PMID: 35639356, DOI: 10.1089/jpm.2022.0202.Peer-Reviewed Original ResearchMeSH KeywordsBrain Injuries, TraumaticConsciousnessDecision MakingHospice and Palliative Care NursingHumansPalliative Care
2018
Neuropalliative care
Creutzfeldt CJ, Kluger B, Kelly AG, Lemmon M, Hwang DY, Galifianakis NB, Carver A, Katz M, Curtis JR, Holloway RG. Neuropalliative care. Neurology 2018, 91: 217-226. PMID: 29950434, PMCID: PMC6093769, DOI: 10.1212/wnl.0000000000005916.Peer-Reviewed Original ResearchConceptsPalliative careNeuropalliative careNeurologic illnessComplex symptom managementModel of carePalliative care educationQuality of carePalliative approachPalliative specialistsSymptom managementClinical priorityPatientsInterventional researchEvidence baseCareCare educationImplementation scienceNeurologistsIllnessInternational expertsNeurologyFamily engagementImportant outcomesOutcomesInvestigative effortsMinority Patients are Less Likely to Undergo Withdrawal of Care After Spontaneous Intracerebral Hemorrhage
Ormseth CH, Falcone GJ, Jasak SD, Mampre DM, Leasure AC, Miyares LC, Hwang DY, James ML, Testai FD, Becker KJ, Tirschwell DL, Langefeld CD, Woo D, Sheth KN. Minority Patients are Less Likely to Undergo Withdrawal of Care After Spontaneous Intracerebral Hemorrhage. Neurocritical Care 2018, 29: 419-425. PMID: 29949003, PMCID: PMC6286261, DOI: 10.1007/s12028-018-0554-4.Peer-Reviewed Original ResearchConceptsIntracerebral hemorrhageHematoma volumeAdmission Glasgow Coma ScaleEthnic/Racial VariationsNon-traumatic intracerebral hemorrhageIntracerebral Hemorrhage (ERICH) studyProspective cohort studyGlasgow Coma ScaleIntensive care unitWithdrawal of careSpontaneous intracerebral hemorrhageSimilar mortality ratesLogistic regression analysisRace/ethnicity modifiesRace/ethnicityCMO patientsHospital mortalityCohort studyRankin ScaleWhite patientsComa ScaleBlack patientsCare unitEndotracheal intubationICH patients
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