2024
Spinal Muscular Atrophy Update in Best Practices
Schroth M, Deans J, Arya K, Castro D, De Vivo D, Gibbons M, Ionita C, Kuntz N, Lakhotia A, Neil Knierbein E, Scoto M, Sejersen T, Servais L, Tian C, Waldrop M, Vázquez-Costa J. Spinal Muscular Atrophy Update in Best Practices. Neurology Clinical Practice 2024, 14: e200310. PMID: 38915908, PMCID: PMC11195435, DOI: 10.1212/cpj.0000000000200310.Peer-Reviewed Original ResearchSMA diagnosisHealth care providersBest practice recommendationsAdult-onset spinal muscular atrophySpinal muscular atrophy newborn screeningCare providersPractice recommendationsSkilled health care providersEuropean health care providersNewborn screeningSpinal muscular atrophyModified Delphi techniqueClassification of spinal muscular atrophyWorking GroupCommunity working groupSpecialty care centersPositive newborn screenDisease-modifying therapiesCaregiversDelphi techniqueCare centerSystematic literature reviewSurvival motor neuron 1Best practicesProviders
2015
Impact of Co-management at the Primary-Subspecialty Care Interface on Follow-up and Referral Patterns for Patients With Concussion
Feyissa EA, Cornell E, Chandhok L, Wang D, Ionita C, Schwab J, Kostyun R, Wilion F, Rubin K. Impact of Co-management at the Primary-Subspecialty Care Interface on Follow-up and Referral Patterns for Patients With Concussion. Clinical Pediatrics 2015, 54: 969-975. PMID: 25573946, DOI: 10.1177/0009922814566929.Peer-Reviewed Original ResearchConceptsPediatric primary care providersCollaborative care modelCo-manage patientsPrimary care providersCare of patientsManagement of concussionClinical outcomesReferral patternsRetrospective auditFollow-upCare modelCare providersCare interfacePatientsDocument careConcussionMore providersCareStructured toolFurther explorationProvidersSubspecialists
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