Qualitative analysis of pain impact in adult patients with X-linked hypophosphatemia
Nishime N, Theriault C, Feinn R, Macica C. Qualitative analysis of pain impact in adult patients with X-linked hypophosphatemia. JBMR Plus 2025, 9: ziaf012. PMID: 40060917, PMCID: PMC11890110, DOI: 10.1093/jbmrpl/ziaf012.Peer-Reviewed Original ResearchHealth-related quality of lifeQuality of lifeDomains of health-related quality of lifePain self-management interventionShort Form Survey InstrumentX-linked hypophosphatemiaEffective pain management strategiesSelf-management interventionsHealthcare providers' lackHealth-related qualityPain management strategiesExperiences of adultsImprove quality of lifeAge-adjusted differencesSemi-structured interviewsPhysical inactivityProviders' lackQualitative analysis of interviewsHealthcare accessPhysical functionImprove carePhysical therapyEmotional burdenSF-36Healthcare services
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