Caregiver Decision-Making for Terminally Ill Children: A Qualitative Study
Taylor E, Doolittle B. Caregiver Decision-Making for Terminally Ill Children: A Qualitative Study. Journal Of Palliative Care 2019, 35: 161-166. PMID: 31722609, DOI: 10.1177/0825859719885947.Peer-Reviewed Original ResearchMeSH KeywordsAdultCaregiversChild, PreschoolDecision MakingFamilyFemaleHumansInfantInfant, NewbornMalePalliative CareProfessional-Family RelationsQualitative ResearchTerminal CareTerminally IllConceptsIll childrenMedical providersLife-limiting illnessSignificant psychosocial distressHealth care providersInstitutional review boardMedical team membersChild's illnessPsychosocial distressMedical careMedical teamReview boardMedical staffThematic saturationCaregiversIllnessLongitudinal relationshipChildrenPatientsCareTrusting relationshipQualitative studyProvidersDistressCritical role