2025
Assistive Artificial Intelligence in Epilepsy and Its Impact on Epilepsy Care in Low- and Middle-Income Countries
Koirala N, Adhikari S, Adhikari M, Yadav T, Anwar A, Ciolac D, Shrestha B, Adhikari I, Khanal B, Muthuraman M. Assistive Artificial Intelligence in Epilepsy and Its Impact on Epilepsy Care in Low- and Middle-Income Countries. Brain Sciences 2025, 15: 481. PMID: 40426652, PMCID: PMC12110662, DOI: 10.3390/brainsci15050481.Peer-Reviewed Original ResearchDisability adjusted life yearsMiddle-income countriesEpilepsy careTreatment gapLow-and-middle-income countriesAnd Middle-Income CountriesImproving epilepsy careCost of epilepsyAdjusted life yearsSignificant financial burdenLMICsMedical specialistsLife yearsCareDisproportionate prevalenceCommunity engagementFinancial burdenGross national productBurdenSocioeconomic impactTreatment approachesCommunity-Engaged Research in HIV Implementation Science: Characterizing Academic and Community Partnerships in the “Ending the HIV Epidemic” Supplement Awards
Datar R, Schwartz S, Gomez W, Katz D, Morales G, Humphries D, Pettit A, Harkness A, Serrano P, Lanzi R, Sales J, Archiopoli C, Baral S, Beres L. Community-Engaged Research in HIV Implementation Science: Characterizing Academic and Community Partnerships in the “Ending the HIV Epidemic” Supplement Awards. JAIDS Journal Of Acquired Immune Deficiency Syndromes 2025, 98: e28-e37. PMID: 40163053, DOI: 10.1097/qai.0000000000003633.Peer-Reviewed Original ResearchConceptsEngagement of community partnersCommunity partnersLevel of community engagementCommunity engagementCommunity-academic partnershipMeaningful community engagementActive engagementCommunity-engaged researchAcademic representativesScience AwardImplementation scienceHIV epidemicCommunity-engagedAcademic partnersCommunity engagement measuresTraditional academic modelSupplement awardEngagement effortsOnline surveyPartnership experienceHigher engagementActive collaborationHIVGrant writingEngagement measuresCommunity Engagement to Empowerment: Emphasizing Relationships, Process, Resources, and Context to Strengthen Community Engagement in EHE Research Partnerships
Simon C, Carlisle N, Kermani M, Cole C, Harris M, Kay E, Musgrove K, Williams E, Ott C, Humphries D, Lanzi R. Community Engagement to Empowerment: Emphasizing Relationships, Process, Resources, and Context to Strengthen Community Engagement in EHE Research Partnerships. JAIDS Journal Of Acquired Immune Deficiency Syndromes 2025, 98: e48-e58. PMID: 40163055, DOI: 10.1097/qai.0000000000003622.Peer-Reviewed Original ResearchConceptsCommunity-academic partnershipStrengthening community engagementCommunity engagementHIV researchHIV epidemicImplementing partnersCommunity-based organizationsIntervention implementationFaith-based organizationsCommunity partnersImplementation strategiesResearch partnershipsPartnership processCommunity leadersRobust partnershipsHIVPartnershipPanel discussionEHEWebinarsUnited StatesEngagementCommunityEpidemicPartnersBridging Science and Hope: integrating and Communicating Lived experience in Accelerating Medicines Partnership® Schizophrenia Program
Asgari-Targhi A, Yao B, Brown L, Garcia S, Nagendra A, Chin K, Billah T, Penzel N, John O, Prunier N, Veale S, Kotler E, Jacobs G, Zhan M, Coleman M, Bouix S, Pasternak O, Cecci G, Baker J, Mathalon D, Kelly S, Corcoran C, Reichenberg A, Winter-van Rossum I, Kubicki M, Spark J, Dwyer D, Arango C, Fusar-Poli P, Calkins M, Shah J, Mittal V, Thompson A, McGorry P, Kahn R, Kane J, Bearden C, Woods S, Nelson B, Shenton M, Staglin B, Larrauri C, Lewandowski K, Kapur T. Bridging Science and Hope: integrating and Communicating Lived experience in Accelerating Medicines Partnership® Schizophrenia Program. Schizophrenia 2025, 11: 57. PMID: 40195300, PMCID: PMC11977264, DOI: 10.1038/s41537-025-00572-7.Peer-Reviewed Original ResearchNational Alliance on Mental IllnessPeer support specialistsYouth advisory boardLived experienceCo-designing resourcesMental illnessImplementation of precision psychiatryPromote community engagementRecruitment strategiesDissemination effortsSupport specialistsSchizophrenia ProgramAcademic partnersAdvisory boardCommunity engagementEngagement strategiesStudy protocolAdvocacy organizationsEthical implementationPsychosis researchAdvisory CommitteeResearch designResearch qualityPrecision psychiatryProgramFrom Vulnerability to Strength: Transforming Health Systems for Climate Resilience
Hussain M, Khan N, Morton G, Kieffer E, Kurth A. From Vulnerability to Strength: Transforming Health Systems for Climate Resilience. Journal Of Urban Health 2025, 1-12. PMID: 40183975, DOI: 10.1007/s11524-025-00972-1.Peer-Reviewed Original ResearchHealthcare systemExacerbate health disparitiesTransforming health systemsPublic health practiceEnhance healthcare deliveryResilience of healthcare systemsHealth disparitiesHealth workersHealthcare deliveryHealth practicesHealth systemResilient workforceData-driven planningHealthcare infrastructureCommunity engagementMultifaceted approachFunding supportVulnerable communitiesRising costsComprehensive approachHealthcareCOVID-19Proactive measuresHealthCommunityObservational research in epidemic settings: a roadmap to reform
Ricotta E, Carrillo F, Angelli-Nichols S, Barugahare J, Benton A, Carlson C, Chang-Rabley E, Dean N, Duda S, Federer L, Fill M, LeRoy E, Linton N, Lipsitch M, Mathur M, Phelan A, Rid A, Rosen J, Sauer L, Sullivan S, Zendt M, Evans N. Observational research in epidemic settings: a roadmap to reform. BMJ Global Health 2025, 10: e017981. PMID: 39929534, PMCID: PMC11815396, DOI: 10.1136/bmjgh-2024-017981.Peer-Reviewed Original ResearchThe human and non-human primate developmental GTEx projects
Bell T, Blanchard T, Hernandez R, Linn R, Taylor D, VonDran M, Ahooyi T, Beitra D, Bernieh A, Delaney M, Faith M, Fattahi E, Footer D, Gilbert M, Guambaña S, Gulino S, Hanson J, Hattrell E, Heinemann C, Kreeb J, Leino D, Mcdevitt L, Palmieri A, Pfeiffer M, Pryhuber G, Rossi C, Rasool I, Roberts R, Salehi A, Savannah E, Stachowicz K, Stokes D, Suplee L, Van Hoose P, Wilkins B, Williams-Taylor S, Zhang S, Ardlie K, Getz G, Lappalainen T, Montgomery S, Aguet F, Anderson L, Bernstein B, Choudhary A, Domenech L, Gaskell E, Johnson M, Liu Q, Marderstein A, Nedzel J, Okonda J, Padhi E, Rosano M, Russell A, Walker B, Sestan N, Gerstein M, Milosavljevic A, Borsari B, Cho H, Clarke D, Deveau A, Galeev T, Gobeske K, Hameed I, Huttner A, Jensen M, Jiang Y, Li J, Liu J, Liu Y, Ma J, Mane S, Meng R, Nadkarni A, Ni P, Park S, Petrosyan V, Pochareddy S, Salamon I, Xia Y, Yates C, Zhang M, Zhao H, Conrad D, Feng G, Brady F, Boucher M, Carbone L, Castro J, del Rosario R, Held M, Hennebold J, Lacey A, Lewis A, Lima A, Mahyari E, Moore S, Okhovat M, Roberts V, de Castro S, Wessel B, Zaniewski H, Zhang Q, Arguello A, Baroch J, Dayal J, Felsenfeld A, Ilekis J, Jose S, Lockhart N, Miller D, Minear M, Parisi M, Price A, Ramos E, Zou S. The human and non-human primate developmental GTEx projects. Nature 2025, 637: 557-564. PMID: 39815096, PMCID: PMC12013525, DOI: 10.1038/s41586-024-08244-9.Peer-Reviewed Original ResearchConceptsChromatin accessibility dataFunctional genomic studiesWhole-genome sequencingEffects of genetic variationSpatial gene expression profilesNon-human primatesGenotype-Tissue ExpressionGene expression profilesGenomic studiesGene regulationGenetic dataGenetic variationGenomic researchDonor diversityCommunity engagementHuman evolutionEarly developmental defectsGene expressionCell statesDevelopmental programmeHuman diseasesExpression profilesAdult tissuesDevelopmental defectsSingle-cellWhat Are High-Quality Race and Ethnicity Data and How Are They Used in Health Equity Research?
Rentsch C, Siddiqui M, Mathur R. What Are High-Quality Race and Ethnicity Data and How Are They Used in Health Equity Research? The AMA Journal Of Ethic 2025, 27: e34-43. PMID: 39745912, DOI: 10.1001/amajethics.2025.34.Peer-Reviewed Original Research
2024
Barriers and Facilitators to Vaccine Equity Amidst the COVID-19 Vaccine Rollout in the United States
Piltch-Loeb R, Sahr J, Nelson L, Vlahov D, Gershon R. Barriers and Facilitators to Vaccine Equity Amidst the COVID-19 Vaccine Rollout in the United States. International Journal Of Environmental Research And Public Health 2024, 21: 1588. PMID: 39767429, PMCID: PMC11675886, DOI: 10.3390/ijerph21121588.Peer-Reviewed Original ResearchHealth departmentsLocal health departmentsPurposive sampling strategyAt-risk populationsHard-to-reachPotential facilitatorsCommunity outreachQualitative studyLack of clarityAdvisory GroupCommunity engagementCommunity membersDisaster response effortsHolding leadership rolesIncrease equityLeadership rolesCOVID-19Vaccine rolloutMid-2022COVID-19 vaccine rolloutCommunity relationshipsFacilitationResponse effortsEquitable distributionPrioritization criteriaPrEP your step: Implementing an online crowdsourcing contest to engage young people in HIV prevention in Washington DC, USA
Taggart T, Mathews A, Junious T, Lindsey J, Augustine A, Debnam C, Boyd Y, Wright S, Tucker J, Magnus M. PrEP your step: Implementing an online crowdsourcing contest to engage young people in HIV prevention in Washington DC, USA. PLOS ONE 2024, 19: e0313882. PMID: 39556546, PMCID: PMC11573147, DOI: 10.1371/journal.pone.0313882.Peer-Reviewed Original ResearchConceptsPrEP messagingSemi-structured interviewsHigh risk of HIVCommunity engagementCrowdsourced messagesYoung peopleCross-sectional surveyRisk of HIVPre-exposure prophylaxisPublic health impactImplementation researchPromote PrEPHIV preventionMedical providersConvenience sampleHIV incidenceCommunity partnersPromotion messagesEngaging young peopleWorld Health OrganizationThematic codingSurvey participantsPrEPHealth impactsSocial marketingSupporting diversity in clinical trials: the equitable breakthroughs in medicine site maturity model
Harris T, Nunez-Smith M, Suttiratana S, Fretz S, Leonard S, Linnander E, Curry L. Supporting diversity in clinical trials: the equitable breakthroughs in medicine site maturity model. Trials 2024, 25: 764. PMID: 39543751, PMCID: PMC11566401, DOI: 10.1186/s13063-024-08594-9.Peer-Reviewed Original ResearchConceptsSocial determinants of healthQuantitative self-report dataDeterminants of healthCommunity engagementHealth care providersRepresentation of diverse populationsSelf-reported dataSocial determinantsCare providersContent validityPotential participantsClinical trial capabilitiesClinical trial diversityDiverse populationsInclusion of diverse participantsClinical trialsAssessment of capabilitiesTrial infrastructureDiverse participantsU.S. sitesClinical researchAbstract BackgroundParticipantsDiversity effortsStructural assessmentIntegrative Strong Body and Mind Training for Sickle Cell Disease (I-STRONG)-an Interdisciplinary, Multicomponent Treatment Approach for Pediatric Chronic SCD Pain
Sil S, Mooney J, Adkins T, Sinha C, Nunez M, Thomas S, Beasley K, Lang A, Murphy B, Akintobi T, Williams J, Batts K, Kurzhals A, Bakshi N, Kesar T, Myer G, Quinn C, Dampier C, Crosby L, Kashikar-Zuck S. Integrative Strong Body and Mind Training for Sickle Cell Disease (I-STRONG)-an Interdisciplinary, Multicomponent Treatment Approach for Pediatric Chronic SCD Pain. Blood 2024, 144: 291. DOI: 10.1182/blood-2024-209083.Peer-Reviewed Original ResearchChronic SCD painChronic painExercise trainingCognitive-behavioral therapyPhysical therapyPain intensityPain managementPatient Global ImpressionEvidence-based interdisciplinary approachADAPT-ITT modelIntegrative therapiesSemi-structured qualitative interviewsCommunity advisory boardSickle cell diseaseCommunity engagementEvidence-based interventionsSickle cell disease painPediatric sickle cell diseaseFollow-upChronic pain managementImpaired quality of lifeMulticomponent treatment programQuality of lifeCaregiver perspectivesIntervention fidelityFrom Simulation to Bedside: The Journey to Provide Equitable Patient Care.
Vora S, Dahlen B, Bryant K, Kou M. From Simulation to Bedside: The Journey to Provide Equitable Patient Care. Pediatric Annals 2024, 53: e414-e419. PMID: 39495632, DOI: 10.3928/19382359-20240908-03.Peer-Reviewed Original ResearchConceptsSimulation-based educationHealth equityHealth care disparitiesEquitable patient careHealth care trainingHealth care professionalsCare disparitiesCare trainingCare professionalsPatient careImplementing action stepsCultural humilityPatient outcomesCommunity engagementHealthEnhance skillsSystem issuesAction stepsUnintentional harmClinical practiceRobust evaluationPotential benefitsTeam commitmentHidden curriculumSkillsResearch Priorities in Pediatric Asthma Morbidity: Addressing the Impacts of Systemic Racism on Children with Asthma in the United States. An Official American Thoracic Society Workshop Report
Lovinsky-Desir S, Riley I, Bryant-Stephens T, De Keyser H, Forno E, Kozik A, Louisias M, Matsui E, Sheares B, Thakur N, Apter A, Beck A, Bentley-Edwards K, Berkowitz C, Braxton C, Dean J, Jones C, Koinis-Mitchell D, Okelo S, Taylor-Cousar J, Teach S, Wechsler M, Gaffin J, Federico M. Research Priorities in Pediatric Asthma Morbidity: Addressing the Impacts of Systemic Racism on Children with Asthma in the United States. An Official American Thoracic Society Workshop Report. Annals Of The American Thoracic Society 2024, 21: 1349-1364. PMID: 39352175, PMCID: PMC11451894, DOI: 10.1513/annalsats.202407-767st.Peer-Reviewed Original ResearchConceptsImpact of systemic racismAsthma morbidityChildhood asthmaSocial determinants of healthAsthma health outcomesPediatric asthma morbidityDeterminants of healthSystemic racismCommunity engagementDrivers of disparitiesEmergency department visitsResearch teamChildhood asthma outcomesImpact of interventionsMultidisciplinary research teamEffects of systemic racismInnovative study designsImpact of racismAsthma disparitiesSocial determinantsHealthcare accessAsthma outcomesHealth outcomesDepartment visitsEvaluate interventionsCHATogether Skit Development and Healing of Asian American Generation Z’s Unspoken Agonies: A Qualitative Study
Wong P, Deng S, Benhayoun A, Leong A, Lee A, Beck K, Yuen E. CHATogether Skit Development and Healing of Asian American Generation Z’s Unspoken Agonies: A Qualitative Study. Journal Of Creativity In Mental Health 2024, 20: 235-251. DOI: 10.1080/15401383.2024.2359395.Peer-Reviewed Original ResearchMental healthGen ZersAsian American mental healthNarrative writingInteractive theaterMental health burdenFamily-centered interventionsAmerican mental healthImprovisationWritingEmotional healthThematic analysisCommunity programsQualitative studyGeneration ZAnonymized transcriptsPsychological challengesHealth burdenCommunity engagementHealthPilot studyFamily relationshipsTheaterSkitsStudy scaleFuture Directions for Community-Engaged Research in Clinical Psychological Science with Youth
Giusto A, Triplett N, Foster J, Gee D. Future Directions for Community-Engaged Research in Clinical Psychological Science with Youth. Journal Of Clinical Child & Adolescent Psychology 2024, 53: 503-522. PMID: 38830059, PMCID: PMC11258858, DOI: 10.1080/15374416.2024.2359650.Peer-Reviewed Original ResearchClinical psychological scienceClinical scienceMental health problemsBurden of mental health problemsYouth mental healthPsychological scienceMental healthCommunity-engaged researchExperimental controlYouthFuture directionsClinical scientistsModes of inquiryFamily perspectiveCommunity engagementSustainability outcomesCommunity-engagedHealth problemsPublic healthBuilding Community Engagement Capacity in a Transdisciplinary Population Health Research Consortium.
James A, Nodora J, Maki J, Harlow B, Low L, Coyne-Beasley T, Cunningham S, El-Fahmawi A, Klusaritz H, Lipman T, Simon M, Hebert-Beirne J. Building Community Engagement Capacity in a Transdisciplinary Population Health Research Consortium. Journal Of Community Engagement And Scholarship 2024, 16: 10. PMID: 39055611, PMCID: PMC11271685, DOI: 10.54656/jces.v16i2.496.Peer-Reviewed Original ResearchCommunity engagementCommunity-engaged research approachCommunity-engaged researchNational Institutes of HealthEngagement capacityInstitutes of HealthResearch translationLong-term engagementResearch ConsortiumImpact of findingsResearch prioritiesMarginalized populationsNational InstituteResearch qualityConsortium membersBuilding momentumEngagementCommunityConsortiumResearch approachHealthStrategic planningIncreasing inclusionReal-life situationsReciprocal engagementAging, Race, and Health Disparities: Recommendations From the Research Centers Collaborative Network
Jain S, Bey G, Forrester S, Rahman-Filipiak A, Gonzalez N, Petrovsky D, Kritchevsky S, Brinkley T. Aging, Race, and Health Disparities: Recommendations From the Research Centers Collaborative Network. The Journals Of Gerontology Series B 2024, 79: gbae028. PMID: 38442186, PMCID: PMC11101762, DOI: 10.1093/geronb/gbae028.Peer-Reviewed Original ResearchConceptsHealth disparitiesHealth disparities researchAdverse health outcomesHealth equityDisparities researchHealth outcomesMitigate disparitiesRacial disparitiesEvidence baseCommunity engagementHealthy agingResearch Centers Collaborative NetworkIncreased participationResearch prioritiesDisparitiesHealthRacial comparisonsAgeRecommendationsRacePolicy implicationsCollaborative networksParticipantsPartnershipTrainingSystematic surveillance tools to reduce rodent pests in disadvantaged urban areas can empower communities and improve public health
Awoniyi A, Barreto A, Argibay H, Santana J, Palma F, Riviere-Cinnamond A, Dobigny G, Bertherat E, Ferguson L, Belmain S, Costa F. Systematic surveillance tools to reduce rodent pests in disadvantaged urban areas can empower communities and improve public health. Scientific Reports 2024, 14: 4503. PMID: 38402250, PMCID: PMC10894258, DOI: 10.1038/s41598-024-55203-5.Peer-Reviewed Original ResearchConceptsCommunity engagement programDisadvantaged urban settingsCommunity membersMultidisciplinary team of professionalsUrban settingsNational surveillance protocolsEngagement programsImprove public healthSemi-structured interviewsTeam of professionalsDisadvantaged urban areasSurveillance protocolsMultidisciplinary teamPublic health diseaseControl interventionsDisadvantaged communitiesCommunity engagementEvaluation formGeneralized linear modelPublic healthHealth diseasesStandardised protocolUrban communitiesTraining participantsPilot surveyThe psychosocial burden of cutaneous leishmaniasis in rural Sri Lanka: A multi-method qualitative study.
Nuwangi H, Dikomitis L, Weerakoon K, Agampodi S, Agampodi T. The psychosocial burden of cutaneous leishmaniasis in rural Sri Lanka: A multi-method qualitative study. PLOS Neglected Tropical Diseases 2024, 18: e0011909. PMID: 38236911, PMCID: PMC10826957, DOI: 10.1371/journal.pntd.0011909.Peer-Reviewed Original ResearchConceptsPsychosocial burdenRural Sri LankaPeople-centred careMulti-method qualitative studyPerceived disease severityHigh psychosocial burdenTreatment-related burdenImprove patient outcomesHealthcare seekingStigmatised diseaseIllness experienceIllness-experienceHealthcare modelRelated burdenBody image concernsBurden of CLThematic analysisQualitative studyHospital clinicMultimethod qualitative approachResource-poor regionsDisease burdenNegative societal reactionsPatient outcomesCommunity engagement
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