2024
Caregivers of children with asthma alarmed by climate change: a cross‐sectional study
Godse S, Shabanova V, Ragavan M, Mitchell M, Chen L, Flom J, Sheares B. Caregivers of children with asthma alarmed by climate change: a cross‐sectional study. Pediatric Pulmonology 2024, 59: 3677-3685. PMID: 39323113, DOI: 10.1002/ppul.27288.Peer-Reviewed Original ResearchCaregivers of childrenCross-sectional studyClimate change-related health risksHealth impacts of climate changeInforming public health policyPublic health policiesReports adverse impactsRespiratory health impactsCaregiver perspectivesCaregiver perceptionsChild's asthmaHealth policyChild healthChild's doctorHealth harmsHealth risksCaregiversWorsening asthma controlAsthma controlAir pollutionAdverse health effectsPulmonology clinicSurvey instrumentUS settingHealth effectsSleep Health among Children Adopted from Foster Care: The Moderating Effect of Parent–Child Sleep Interactions
Cifre A, Budnick C, Bick J, McGlinchey E, Ripple C, Wolfson A, Alfano C. Sleep Health among Children Adopted from Foster Care: The Moderating Effect of Parent–Child Sleep Interactions. Behavioral Sleep Medicine 2024, 22: 472-487. PMID: 38263632, DOI: 10.1080/15402002.2024.2303467.Peer-Reviewed Original ResearchConceptsFoster careSleep healthChildren's sleepCaregivers of childrenImprove sleep healthHealth of childrenSpecific sleep problemsAssociated with lower levelsChildren's sleep disturbancesOverall sleep qualityMental healthScore matched sampleCareSleep interactionsElevated riskSleep problemsSleep qualityPropensity score matched sampleNight terrorsSleep disturbanceHealthSleep disruptionParental involvementNighttime awakeningsModerating effect
2023
Psychosocial Outcomes with the Omnipod® 5 Automated Insulin Delivery System in Children and Adolescents with Type 1 Diabetes and Their Caregivers
Hood K, Polonsky W, MacLeish S, Levy C, Forlenza G, Criego A, Buckingham B, Bode B, Hansen D, Sherr J, Brown S, DeSalvo D, Mehta S, Laffel L, Bhargava A, Huyett L, Vienneau T, Ly T. Psychosocial Outcomes with the Omnipod® 5 Automated Insulin Delivery System in Children and Adolescents with Type 1 Diabetes and Their Caregivers. Pediatric Diabetes 2023, 2023: 8867625. PMID: 40303234, PMCID: PMC12017088, DOI: 10.1155/2023/8867625.Peer-Reviewed Original ResearchType 1 diabetesGlycemic outcomesInsulin delivery systemsPsychosocial outcomesSleep qualityDiabetes-related distressCaregivers of childrenRegression analysisBaseline characteristicsDelivery systemProspective studyClinical trialsLinear regression analysisPsychosocial measuresParticipant characteristicsDiabetesCaregiversOutcomesOmnipodChildrenAdolescentsTrialsMonthsAdditional benefitSignificant improvement‘Caregivers' awareness matters’: Call for a child‐centred approach to early detection of autism spectrum disorder through well‐child visits in Japan
Horiuchi S, Nomura O, Curry L, Kushima M, Arnold L, Yamagata Z. ‘Caregivers' awareness matters’: Call for a child‐centred approach to early detection of autism spectrum disorder through well‐child visits in Japan. Child Care Health And Development 2023, 49: 985-994. PMID: 36807909, DOI: 10.1111/cch.13107.Peer-Reviewed Original ResearchConceptsWell-child visitsHealthcare providersChild-centred care approachScreening measuresPublic health nursesCaregivers of childrenUniversal healthcare systemSemi-structured in-depth interviewsApproaches to early detectionEarly detectionCaregivers' senseHealth nursesIn-depth interviewsCare approachCaregiver expectationsDisability screeningCaregivers' awarenessRates of developmental disordersHealthcare systemIdentification of childrenCaregiversQualitative studyEffective early detectionTarget municipalitiesSense of concern
2022
Infant and Young Child Feeding Perceptions and Practices Among Caregivers Living in Three Districts in the Central Region of Ghana
Addo-Lartey A, Aryeetey R, Sandow A, Pérez-Escamilla R, Segbedji C, Hromi-Fiedler A. Infant and Young Child Feeding Perceptions and Practices Among Caregivers Living in Three Districts in the Central Region of Ghana. Current Developments In Nutrition 2022, 6: 6009499. DOI: 10.1093/cdn/nzac060.002.Peer-Reviewed Original ResearchExclusive breastfeedingFeeding recommendationsCaregiver practicesFoods/snacksNon-responsive feeding practicesComplementary feeding recommendationsCaregivers of childrenNight feedsResponsive feedingCaregivers' knowledgePersistent cryingSixth monthMeal frequencyFeeding practicesMethods FiftyIYCF counselingComplementary foodsHunger cuesStomach acheNew foodsInfantsCaregiversResults CaregiversEarly foodFamily foodIncorporating the patient voice and patient engagement in GOAL‐Hēm: Advancing patient‐centric hemophilia care
Roberts J, Recht M, Gonzales S, Stanley J, Denne M, Caicedo J, Rockwood K. Incorporating the patient voice and patient engagement in GOAL‐Hēm: Advancing patient‐centric hemophilia care. Research And Practice In Thrombosis And Haemostasis 2022, 6: e12655. PMID: 35155975, PMCID: PMC8822263, DOI: 10.1002/rth2.12655.Peer-Reviewed Original ResearchFocus groupsPatient voicePatient-centered outcome measuresMeasure clinically meaningful changeCaregivers of childrenPatient-reported outcome instrumentsPatient engagement toolGoal-setting processClinically meaningful changePatient engagementPatient-centredContent validityHaemophilia-specificPatient interviewsOutcome instrumentsThematic analysisInterview transcriptsParticipants' experiencesEmergent themesCaregiversOutcome measuresMeaningful changeImplementation strategiesMenu itemsHaemophilia care
2020
Sources and Valence of Information Impacting Parents' Decisions to Use Diabetes Technologies in Young Children <8 Years Old with Type 1 Diabetes
Commissariat P, Whitehouse A, Hilliard M, Miller KM, Harrington KR, Levy W, DeSalvo DJ, Van Name M, Anderson B, Tamborlane W, DiMeglio LA, Laffel L. Sources and Valence of Information Impacting Parents' Decisions to Use Diabetes Technologies in Young Children <8 Years Old with Type 1 Diabetes. Diabetes Technology & Therapeutics 2020, 22: 697-700. PMID: 32077755, PMCID: PMC7718841, DOI: 10.1089/dia.2019.0497.Peer-Reviewed Original ResearchConceptsType 1 diabetesDiabetes technologyCare providersYoung childrenDiabetes care providersHealth care providersCaregivers of childrenDiabetes technology useSubset of parentsDiabetesCare optionsType 1Most parentsUnderwent content analysisChildrenParents' decisionsProvidersSemi-structured interviewsParentsYears
2019
Treatment-seeking behavior and practices among caregivers of children aged ≤5 y with presumed malaria in rural Uganda
Lee YJ, Adusumilli G, Kazungu R, Anywar G, Kyakulaga F, Katuura E, Parikh S, Willcox M. Treatment-seeking behavior and practices among caregivers of children aged ≤5 y with presumed malaria in rural Uganda. Transactions Of The Royal Society Of Tropical Medicine And Hygiene 2019, 113: 525-533. PMID: 31140566, DOI: 10.1093/trstmh/trz039.Peer-Reviewed Original ResearchArtemether-lumefantrineFormal health facilitiesDrug shopsHealth facilitiesHerbal medicineTreatment-seeking patternsCaregivers of childrenFormal health centersHerbal medicine usageQuality of careSelf-reported outcomesTreatment-seeking behaviorMajority of childrenModern medical careInappropriate antibioticsHealth centersIllness historyMedicine usageCorrect diagnosisEndemic areasCorrect doseMedical careDiagnostic testsPatientsMalaria
2018
Prevalence and correlates of depression among caregivers of children living with HIV in Ghana: findings from the Sankofa pediatric disclosure study
Ofori-Atta A, Reynolds NR, Antwi S, Renner L, Nichols JS, Lartey M, Amissah K, Tettey JK, Alhassan A, Ofori IP, Catlin AC, Gan G, Kyriakides TC, Paintsil E, Team O. Prevalence and correlates of depression among caregivers of children living with HIV in Ghana: findings from the Sankofa pediatric disclosure study. AIDS Care 2018, 31: 283-292. PMID: 30360643, PMCID: PMC6382516, DOI: 10.1080/09540121.2018.1537463.Peer-Reviewed Original ResearchConceptsCaregivers of childrenCaregiver depressionCaregivers of HIVLow HIV knowledgeChild health outcomesCorrelates of depressionLow social supportPediatric HIVIllness perceptionsIntervention trialsMean ageHIV knowledgeRisk factorsSevere depressionHigh prevalenceHIV stigmaAdjusted modelHIVCaregiver statusHealth outcomesStudy participantsCaregiversPrevalenceDepressionSub-Saharan countries
2017
Service Characteristics and Family Involvement in an Early Childhood System of Care
Champine R, Whitson M, Kaufman J. Service Characteristics and Family Involvement in an Early Childhood System of Care. Journal Of Child And Family Studies 2017, 27: 324-338. DOI: 10.1007/s10826-017-0875-5.Peer-Reviewed Original ResearchProblematic developmental trajectoriesCommunity-based family interventionFamily involvementPositive participant experiencesCaregivers of childrenCaregiver participationParenting skillsDevelopmental trajectoriesFamily interventionsChild behaviorChild outcomesBehavioral challengesHelpful aspectsPath modelPath analysisCaregiver stressAge 6Positive changesYoung childrenFamily supportFuture researchDevelopmental impactEarly childhoodParticipants' experiencesMultiple-path modelManagement of US men, women, and children with hemophilia and methods and demographics of the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B‐HERO‐S) study
Buckner T, Witkop M, Guelcher C, Frey M, Hunter S, Peltier S, Recht M, Walsh C, Kessler C, Owens W, Clark D, Frick N, Rice M, Iyer N, Holot N, Cooper D, Sidonio R. Management of US men, women, and children with hemophilia and methods and demographics of the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B‐HERO‐S) study. European Journal Of Haematology 2017, 98: 5-17. PMID: 28319338, DOI: 10.1111/ejh.12854.Peer-Reviewed Original ResearchConceptsBridging Hemophilia B ExperiencesB-HERO-SOpportunities Into SolutionsSelf-reported arthritisCaregivers of childrenPotential unmet needsNeeds of adultsCaregivers of girlsHemophilia BMothers of childrenPercentage of adultsPatient outreachParticipant demographicsHaemophilia experiencePsychosocial impactHemophilia treatment centersUS menQualitative studyUnmet needsRoutine treatmentCaregiversEducational initiativesHaemophilia communityExperienced issuesOn-demand treatment
2016
Factors Affecting the Validity of Coverage Survey Reports of Receipt of Vitamin A Supplements During Child Health Days in Southwestern Burkina Faso
Ouédraogo C, Becquey E, Wilson S, Prince L, Ouédraogo A, Rouamba N, Ouédraogo J, Vosti S, Brown K, Hess S. Factors Affecting the Validity of Coverage Survey Reports of Receipt of Vitamin A Supplements During Child Health Days in Southwestern Burkina Faso. Food And Nutrition Bulletin 2016, 37: 529-543. PMID: 27604622, DOI: 10.1177/0379572116666167.Peer-Reviewed Original ResearchConceptsOral polio vaccineOdds ratioChildren 6High-dose vitaminVitamin A supplementsCross-sectional studyLongitudinal studyMonths old childrenCaregivers of childrenChild Health DaysMonths of ageCross-sectional surveyFalse positive reportingSupplementation coverageVAS coverageFalse positive reportsA supplementsOral vaccinePolio vaccineCoverage surveyHealth daysOlder childrenVASMonthsWeeks
2015
Hydroxyurea therapy for children with sickle cell disease: describing how caregivers make this decision
Creary S, Zickmund S, Ross D, Krishnamurti L, Bogen D. Hydroxyurea therapy for children with sickle cell disease: describing how caregivers make this decision. BMC Research Notes 2015, 8: 372. PMID: 26303306, PMCID: PMC4548690, DOI: 10.1186/s13104-015-1344-0.Peer-Reviewed Original ResearchMeasuring Health-Related Quality of Life With the Parental Opinions of Pediatric Constipation Questionnaire
Silverman AH, Berlin KS, Di Lorenzo C, Nurko S, Kamody RC, Ponnambalam A, Mugie S, Gorges C, Sanghavi R, Sood MR. Measuring Health-Related Quality of Life With the Parental Opinions of Pediatric Constipation Questionnaire. Journal Of Pediatric Psychology 2015, 40: 814-824. PMID: 25840448, DOI: 10.1093/jpepsy/jsv028.Peer-Reviewed Original ResearchConceptsCondition-specific health-related qualityPedsQL Generic Core ScalesPsychosocial functioningFunctional Disability InventoryHealth-related qualityFamily Impact ModuleParental opinionGeneric Core ScalesPediatric Symptom ChecklistCaregivers of childrenQuality of lifeConstipation questionnairePediatric constipationDisability InventoryLife instrumentsTreatment needsPediatric InventorySymptom ChecklistMedical teamImpact ModuleConstipationDemographic questionnaireYouth psychosocial functioningPsychometric propertiesCore Scales
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