2025
The Significance of Mothers’ Neural Responding to Infant Emotional Cues for Caregiving Behaviors: The Moderating Role of Infant Temperamental Distress
Patrick M, Xu N, Rutherford H, Groh A. The Significance of Mothers’ Neural Responding to Infant Emotional Cues for Caregiving Behaviors: The Moderating Role of Infant Temperamental Distress. Developmental Psychology 2025, 61: 1384-1396. PMID: 39786797, PMCID: PMC12202177, DOI: 10.1037/dev0001852.Peer-Reviewed Original ResearchSensitivity to distressInfant emotional expressionsCaregiving behaviorInfant distressEmotional expressionMaternal sensitivity to distressInfant's emotional cuesModerating roleMothers' intrusivenessMaternal sensitivityEmotional cuesMothers' reportsInfant expressionsN170Facial encodingDistressP300CaregiversTemperamentNondistressBehaviorCuesMothersAssociationInfants‘I just feel so unloved’: using grounded theory to explore adult children’s experiences of unresponsiveness from their parents living with dementia
Wood K, Suizzo M, Monin J, Crasta D, Lum H. ‘I just feel so unloved’: using grounded theory to explore adult children’s experiences of unresponsiveness from their parents living with dementia. Aging & Mental Health 2025, ahead-of-print: 1-9. PMID: 40444297, DOI: 10.1080/13607863.2025.2508757.Peer-Reviewed Original ResearchAdult child caregiversCaregiver supportChild caregiversSemi-structured video interviewsCaregiver mental healthCaregivers of parentsPositive coping strategiesAdult children's experiencesDementia prevalenceTwelve caregiversSelf-careSelf-imageMental healthCaregiversCoping strategiesDementiaGrounded theoryEmotional painCognitive impairmentDisorganized attachment patternSelf-worthChild developmentVideo interviewsIntense emotional painTheory studyExploring the Acceptability and Feasibility of a Self-directed Approach to Identifying Health Priorities in a Sample of Southern Older African American Adults with Multiple Chronic Conditions
Ejem D, Bakitas M, Durant R, Parker T, Oppong K, Esterson J, Odom J, Wells R, Boockvar K, Tinetti M. Exploring the Acceptability and Feasibility of a Self-directed Approach to Identifying Health Priorities in a Sample of Southern Older African American Adults with Multiple Chronic Conditions. Journal Of Racial And Ethnic Health Disparities 2025, 1-18. PMID: 40410637, DOI: 10.1007/s40615-025-02469-8.Peer-Reviewed Original ResearchMultiple chronic conditionsWeb-based programFamily caregiversAfrican AmericansSystem Usability ScaleChronic conditionsOlder African American adultsFamily caregivers' experiencesPrimary care clinicsPatient-clinician interactionsStudy measuresOlder African AmericansAfrican American adultsConstant comparative methodU.S. academic medical centersAcademic medical centerSelf-directed approachSouthern African AmericansFormative evaluation studyCare clinicsCare approachHealth priorityThematic analysisAmerican adultsCaregiversPrevalence of Suspected Medical Child Abuse in the School Setting: A Study of School Nurses.
Hansen G, Hamilton J. Prevalence of Suspected Medical Child Abuse in the School Setting: A Study of School Nurses. Child Maltreatment 2025, 10775595251345065. PMID: 40405586, DOI: 10.1177/10775595251345065.Peer-Reviewed Original ResearchInfluences of Gender-Based Stigma on HIV Prevention and Care Among Older Women: A Scoping Review.
Vu T, Manalel J, Shourya S, Takenaka B, Monin J. Influences of Gender-Based Stigma on HIV Prevention and Care Among Older Women: A Scoping Review. Journal Of The Association Of Nurses In AIDS Care 2025 PMID: 40315459, DOI: 10.1097/jnc.0000000000000551.Peer-Reviewed Original ResearchGender-based stigmaHIV preventionOlder womenPublic health practiceIntimate partner violenceWell-being outcomesCaregiving roleHealth practicesScoping reviewHIV statusHIV-relatedPartner violenceSystematic searchHIV researchSex practicesRelationship powerHIVStigmaSocietal levelWomenPreventionCaregiversOlderCareResearch findingsFamily cohesion and conflict in the context of adult children and parents living with early-stage cognitive impairment
Wang Z, Wang K, Monin J. Family cohesion and conflict in the context of adult children and parents living with early-stage cognitive impairment. Aging & Mental Health 2025, ahead-of-print: 1-7. PMID: 40271652, DOI: 10.1080/13607863.2025.2495282.Peer-Reviewed Original ResearchAdult child caregiversEarly-stage cognitive impairmentFamily relationshipsFamily conflictFamily cohesionPhysical healthMental healthAssociated with child mental healthCaregivers of older adultsStructural family theorySupportive family relationshipsImpaired self-reportedAssociated with caregiversChild mental healthRisk of burnoutCognitive impairmentAdult childrenSecondary data analysisAssociated with childrenFamily theoryCaregiving demandsFamily dynamicsTailored interventionsOlder adultsCaregiversA three-track, psychodynamic treatment approach for children who have experienced complex trauma
Vliegen N, Midgley N, Tang E, Luyten P, Fonagy P. A three-track, psychodynamic treatment approach for children who have experienced complex trauma. Journal Of Child Psychotherapy 2025, ahead-of-print: 1-20. DOI: 10.1080/0075417x.2025.2482646.Peer-Reviewed Original ResearchComplex traumaPsychodynamic treatment approachesMental health professionalsCase of MichaelComplex traumatic experiencesCapacity of parentsGroup of childrenChild psychotherapistsPsychotherapeutic workTraumatic experiencesSource of threatBehavioral developmentMental capacityPsychoanalytic conceptsChild developmentYoung childrenTreatment approachesMental capabilitiesChildrenParentsHealth professionalsPsychotherapistsCaregiversPervasive eventTraumaQualitative evaluation of meaningful change in Dravet syndrome as measured by the Vineland-3: Caregiver and clinician perspectives
Condon C, Parkerson K, Dandurand A, Wang F, Howse C, Mayhew M, Whyman S, Ventola P, Anne Meskis M, Sullivan J, Knupp K, Gater A, Mahon-Smith A. Qualitative evaluation of meaningful change in Dravet syndrome as measured by the Vineland-3: Caregiver and clinician perspectives. Epilepsy & Behavior 2025, 167: 110381. PMID: 40188607, DOI: 10.1016/j.yebeh.2025.110381.Peer-Reviewed Original ResearchConceptsVineland-3Presence of autism spectrum disorderVineland Adaptive Behavior ScalesAdaptive Behavior ScalesAutism spectrum disorderDravet syndromeCaregivers of children/adolescentsDisruptive behaviorSpectrum disorderBehavior ScaleClinical expertsClinically meaningful changeAdaptive behaviorReceptive communicationImpaired communicationThird EditionAnchor-based methodsSemi-structured interviewsTreatment-related benefitsCaregiver feedbackClinician perspectivesMeaningful changePatient independenceCaregiversQualitative studyPatients' and Caregivers' Perspectives on the Role of Ambulatory Specialty Palliative Care for People With Heart Failure
Lendvai D, Zhan Y, Kavalieratos D, Iannone L, Akgün K, Allen L, Bekelman D, Ersek M, Goldstein N, Luhrs C, Feder S. Patients' and Caregivers' Perspectives on the Role of Ambulatory Specialty Palliative Care for People With Heart Failure. Journal Of Pain And Symptom Management 2025, 70: 89-105. PMID: 40147501, PMCID: PMC12148689, DOI: 10.1016/j.jpainsymman.2025.02.019.Peer-Reviewed Original ResearchConceptsSpecialist palliative carePalliative careCompletion of advance directivesSpecialist palliative care teamsDiscussion of goals of careDepartment of Veterans Affairs (VAVeterans Affairs (VASpecialty palliative careGoals of careHigh-quality careSurrogate decision-makersBarriers to engagementQualitative descriptive studyFamily caregiversCare coordinationCardiology cliniciansIllness conversationsCaregiver perspectivesAdvance directivesDescriptive studyHealthcare systemCaregiversAmbulatory settingCareHeart failureBurden and care time for dementia caregivers in the LIVE@Home.Path trial
Berge L, Angeles R, Gedde M, Fæø S, Mannseth J, Vislapuu M, Puaschitz N, Hillestad E, Aarsland D, Achterberg W, Allore H, Ballard C, Li F, Selbæk G, Vahia I, Husebo B. Burden and care time for dementia caregivers in the LIVE@Home.Path trial. Alzheimer's & Dementia 2025, 21: e14622. PMID: 40042468, PMCID: PMC11881633, DOI: 10.1002/alz.14622.Peer-Reviewed Original ResearchConceptsRelative Stress ScaleInformal care timeCaregiver burdenLiving interventionsCare timeIntervention periodStepped wedge randomized controlled trialVolunteer supportHome-dwelling peopleStepped-wedge trialPersonal activitiesDementia caregiversRandomized controlled trialsIntention-to-treatStress ScaleMunicipal coordinatorCaregiversPersonal supportRandomized dyadsDementiaControlled trialsPrimary outcomeControl periodInterventionPositive changesProtective role of parenthood on age-related brain function in mid- to late-life
Orchard E, Chopra S, Ooi L, Chen P, An L, Jamadar S, Yeo B, Rutherford H, Holmes A. Protective role of parenthood on age-related brain function in mid- to late-life. Proceedings Of The National Academy Of Sciences Of The United States Of America 2025, 122: e2411245122. PMID: 39999172, PMCID: PMC11892684, DOI: 10.1073/pnas.2411245122.Peer-Reviewed Original ResearchConceptsBrain functionFunctional connectivityPatterns of brain functionAssociated with higher connectivityConsistent with animal modelsBrain structuresCaregiving environmentAssociated with patternsAge-related alterationsBrain healthAging trajectoriesLate-lifeSpatial topographyAdult brainImpact of caregivingBrainPreliminary findingsHuman parentingImpact of ageCaregiving experienceChildrenCaregiversHigher connectivityEffect of parenthoodOne-bodyA Biopsychosociocultural Approach to Climate Mental Health Disparities
Shaligram D, Acquaye A, Wortzel J, DeJong S. A Biopsychosociocultural Approach to Climate Mental Health Disparities. Journal Of The American Academy Of Child & Adolescent Psychiatry 2025 PMID: 39978633, DOI: 10.1016/j.jaac.2024.12.011.Peer-Reviewed Original ResearchBurden of CCMental health disparitiesHealth inequalitiesHealth disparitiesPublic health crisisMental healthClimate changeHealth structuresGlobal public health crisisVulnerable populationsHealthIncome groupsHealth crisisGreenhouse gas emittersExploitation of natural resourcesGreenhouse gas emissionsStructural discriminationDisparitiesDisproportionate impactHistorical exploitationChildrenEffects of CCGas emissionsCaregiversThreat multiplierPredictors of Pain Concordance Among Caregiver–Child Dyads Undergoing Elective Surgery
Lim P, Fortier M, Kaplan S, Masague S, Kain Z. Predictors of Pain Concordance Among Caregiver–Child Dyads Undergoing Elective Surgery. Pediatric Anesthesia 2025, 35: 359-366. PMID: 39960137, DOI: 10.1111/pan.15082.Peer-Reviewed Original ResearchCaregiver-child dyadsChildren's painChild Health Ratings InventoriesSelf-report of painChildren's self-reports of painPain ratingsPain severity ratingsChild self-reportProportion of dyadsPostoperative recovery outcomesPain beliefsEffective postoperative pain managementLatinx caregiversPain assessmentCaregiversRecovery outcomesPain managementPostoperative painDistress measuresCaregiver-childPostoperative pain managementRating InventoryRate of postoperative painLatinx childrenPostoperative pain scoresSimulation-Based Education for Caregivers of Infants with Shunt-Dependent Cardiac Physiology: Decreasing Caregiver Anxiety
Dahlen B, Shafland H, Berbee J, Heil J, Vora S. Simulation-Based Education for Caregivers of Infants with Shunt-Dependent Cardiac Physiology: Decreasing Caregiver Anxiety. Journal Of Pediatric Health Care 2025 PMID: 39945709, DOI: 10.1016/j.pedhc.2025.01.003.Peer-Reviewed Original ResearchSimulation-based mastery learningCaregiver anxietySBML interventionState-Trait Anxiety IndexQuality improvement projectSimulation-based educationCaregivers of infantsTrait Anxiety IndexImprove patient outcomesCaregiver confidenceCaregiver educationImprovement projectCaregiversHome monitoring programForm YMonitoring skillsHospital dischargePatient outcomesState anxietyImprove confidenceDecreased confidenceAnxiety indexAnxietyReduce mortalityIncreased confidenceEmpathy and Psychological Outcomes in Informal Caregivers of Community-Dwelling Older Adults: A Systematic Review and Meta-Analysis
Huo M, Vu T, Yoneda T, Wei J, Abbott B, Monin J. Empathy and Psychological Outcomes in Informal Caregivers of Community-Dwelling Older Adults: A Systematic Review and Meta-Analysis. The Journals Of Gerontology Series B 2025, 80: gbaf018. PMID: 39879125, PMCID: PMC12125626, DOI: 10.1093/geronb/gbaf018.Peer-Reviewed Original ResearchCaregiver psychological healthInformal caregiversNegative psychological outcomesPsychological outcomesCare recipientsCaregivers of community-dwelling older adultsPsychological healthCommunity-dwelling older adultsNon-significant associationPeer-reviewed studiesUnpaid careOlder adultsCaregiversSystematic reviewCareCognitive empathySignificant associationMeta-analyzedMeta-analysisLiterature searchRandom effects approachHealthInterventionOutcomesInvestigation of empathyCare Recipients’ Cognitive Trajectories and Caregivers’ Depressive Symptoms: The Mediating Role of Caregiving Burden
Lou Y, Gong J, Zang E. Care Recipients’ Cognitive Trajectories and Caregivers’ Depressive Symptoms: The Mediating Role of Caregiving Burden. The Gerontologist 2025, 65: gnaf024. PMID: 39873410, PMCID: PMC11934274, DOI: 10.1093/geront/gnaf024.Peer-Reviewed Original ResearchConceptsCaregiver depressive symptomsCare recipientsCaregiver burdenDepressive symptomsCognitive trajectoriesCaregiving burdenNational Health and Aging Trends StudyNational Study of CaregivingFinancial caregiving burdensCaregiver mental healthStudy of CaregivingStress process modelLongitudinal cognitive courseGroup-based trajectoryCaregiving difficultiesCaregiving experienceTrajectory group membershipEmotional burdenTrends StudyMental healthCaregiversCareTrajectory groupsNational studyCognitive functionNew onset refractory status epilepticus: Long‐term outcomes beyond seizures
Espino P, Eschbach K, Blank L, Cervenka M, Muscal E, Farias‐Moeller R, Gilmore E, Gopaul M, Haider H, Hanin A, Hirsch L, Kellogg M, Kluger G, Lee S, Melendez‐Zaidi A, Navarro V, Oliger A, Pasini E, Reuner G, Sharpe C, Sheikh Z, Steigleder L, Steriade C, Stredny C, Strzelczyk A, Taraschenko O, van Baalen A, Vinette S, Wickström R, Wong N, Yoo J, Gofton T. New onset refractory status epilepticus: Long‐term outcomes beyond seizures. Epilepsia 2025, 66: 988-1005. PMID: 39825688, PMCID: PMC11997932, DOI: 10.1111/epi.18267.Peer-Reviewed Original ResearchQuality of lifeLong-term outcomesCaregiver burdenConsensus-building processDevelopment of targeted management strategiesWorking GroupOutcome domainsLong-term mortalityOutcome measuresConsensus processExpert panelRecovery trajectoriesSurvivorsOutcomesPubMed searchResearch studiesKnowledge gapsCaregiversStandard dataPsychiatricA Family Peer Advocate Model to Address Disparities in Access to Care for Minority Autistic Children with Co-Occurring Attention-Deficit/Hyperactivity Disorder
Trelles P, Mahjani B, Wilkinson E, Buonagura N, Donnelly L, Foss Feig J, Halpern D, McKay M, Siper P, Buxbaum J, Kolevzon A. A Family Peer Advocate Model to Address Disparities in Access to Care for Minority Autistic Children with Co-Occurring Attention-Deficit/Hyperactivity Disorder. Journal Of Developmental And Physical Disabilities 2025, 37: 217-238. DOI: 10.1007/s10882-024-10001-9.Peer-Reviewed Original ResearchFamily quality of lifeQuality of lifeCaregiver stressCaregivers of autistic childrenIntervention groupFamily qualityCare of autistic childrenLevels of caregiver stressCo-occurring attention deficit/hyperactivity disorderWait-list control designAccess to careSystems of careAttention deficit/hyperactivity disorderAssociated with significant burdenParent empowerment programPrimary outcome measureClinically significant improvementCaregiver strainPeer advocatesService utilizationChild behavioral outcomesCaregiversOutcome measuresCareSecondary outcomesSupplemental Nutrition Assistance Program Work Requirements and Safety-Net Program Participation
Ndumele C, Factor H, Lavallee M, Lollo A, Wallace J. Supplemental Nutrition Assistance Program Work Requirements and Safety-Net Program Participation. JAMA Internal Medicine 2025, 185: 92-100. PMID: 39495527, PMCID: PMC11536301, DOI: 10.1001/jamainternmed.2024.5932.Peer-Reviewed Original ResearchSupplemental Nutrition Assistance ProgramSNAP work requirementsAble-bodied adultsChronic conditionsCharacteristics of individualsLow-incomeCohort studyMedicaid coverageNutrition Assistance ProgramSocioeconomic characteristics of individualsProportion of enrolleesChronic illnessMain OutcomesProgram enrollmentMedicaid enrolleesYounger beneficiariesSocioeconomic characteristicsMedicaidStatistically significant changesTarget populationEnrolleesAssistance programsCaregiversSafety-net programsBeneficiaries
2024
Navigating life after New-onset refractory status epilepticus (NORSE) and Febrile infection-related epilepsy syndrome (FIRES): Insights from caregiver and patient interviews
Eschbach K, Reedy J, Gofton T, Gopaul M, Farias-Moeller R, Kellogg M, Knupp K, Hirsch L, Wong N, Dorsey Holliman B. Navigating life after New-onset refractory status epilepticus (NORSE) and Febrile infection-related epilepsy syndrome (FIRES): Insights from caregiver and patient interviews. Epilepsy & Behavior 2024, 163: 110236. PMID: 39740258, DOI: 10.1016/j.yebeh.2024.110236.Peer-Reviewed Original ResearchConceptsQuality of lifeCaregivers' quality of lifeDyadic semi-structured interviewsEmotional quality of lifeThematic content analysis approachComorbid health concernsHealth concernBehavioral health concernsContent analysis approachSignificant life changesMedication side effectsSemi-structured interviewsPatients' quality of lifeRisk of mortalityLife-altering impactPatient interviewsPatient independenceCaregiversNeurologically healthy individualsLife changesNew-onset refractory status epilepticusImpact patients' quality of lifeFebrile infection-related epilepsy syndromeFamily membersLong-term impact
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