2019
“I'm essentially his pancreas”: Parent perceptions of diabetes burden and opportunities to reduce burden in the care of children <8 years old with type 1 diabetes
Commissariat PV, Harrington KR, Whitehouse AL, Miller KM, Hilliard ME, Van Name M, DeSalvo DJ, Tamborlane WV, Anderson BJ, DiMeglio LA, Laffel LM. “I'm essentially his pancreas”: Parent perceptions of diabetes burden and opportunities to reduce burden in the care of children <8 years old with type 1 diabetes. Pediatric Diabetes 2019, 21: 377-383. PMID: 31808586, PMCID: PMC7830825, DOI: 10.1111/pedi.12956.Peer-Reviewed Original ResearchConceptsType 1 diabetesGlycemic controlDiabetes burdenSecondary caregiversEmotional burdenChildren's glycemic controlYoung childrenCare of childrenAge 5.2Parents' perceptionsCaregivers' knowledgeClinical centersSemi-structured qualitative interviewsDiabetesDiabetes educationParental burdenHealthcare providersAge groupsInsulin pumpParents' burdenT1DChildren's qualityChild's diabetesParents' knowledgeParents' confidence
2013
Developing parent expertise: A framework to guide parental care following diagnosis of Type 1 diabetes in a young child
Niedel S, Traynor M, Tamborlane W, Acerini C, McKee M. Developing parent expertise: A framework to guide parental care following diagnosis of Type 1 diabetes in a young child. Journal Of Health Services Research & Policy 2013, 18: 70-76. PMID: 23620579, DOI: 10.1177/1355819613475602.Peer-Reviewed Original ResearchType 1 diabetesHealth professionalsOutpatient pediatric diabetes clinicPediatric diabetes clinicExpert health care providersHealth care providersYears of ageBlood glucose valuesYoung childrenHealth professional training programsDiabetes clinicClinical guidelinesChronic diseasesCare providersNeeds of parentsDiabetesGlucose valuesChild's diseaseChild's diabetesDiseaseDiagnosisParents' expertiseChildrenParental expertiseClinicians