December 8, 2020: We are Here for You: A Smilow Patient and Family Forum
December 09, 2020Information
Hosted by Charles Fuchs, MD, MPH
Presentations by Drs. Christina Gomez, James Yu, Kevin Billingsley, and Kelsey Martin and Javier Alvarado, Paula Pike, and Kim Slusser
ID5981
To CiteDCA Citation Guide
- 03:40Hello.
- 03:43Good evening. Nice to see everybody.
- 03:48Let's see so. It's just about 6:30.
- 03:52Well, I think there are folks.
- 03:54Logging out will just give
- 03:55another minute before we start,
- 03:57but thank you all for making the
- 03:59time this evening to present.
- 04:01Share your thoughts. Baby here.
- 04:08I think we're waiting on Kevin.
- 04:13And Kim I think. Is that right, Renee?
- 04:21Yes, yeah. Well for the attendees,
- 04:24thank you. Bear with us,
- 04:26we're just we're just getting
- 04:27our group together and we're
- 04:29really looking forward to.
- 04:31Sharing our thoughts with you,
- 04:32getting your feedback and
- 04:34answering your questions.
- 04:34So give us another minute if.
- 05:25We know what it's it's 632.
- 05:29Why don't we get started?
- 05:31I know a couple of colleagues
- 05:34will be joining us as we speak.
- 05:36It looks like we have Kim joining us so well.
- 05:40Welcome to our patients and
- 05:42families in attendance and Ann.
- 05:44This is 1 now of several of our
- 05:47patient and family forums that we've
- 05:50been holding for Smilow Cancer
- 05:52Hospital and Yale Cancer Center.
- 05:54And really, it's an effort that we started.
- 05:57I believe in early April.
- 06:00To keep all of you informed about
- 06:03what's going on in the Cancer Center,
- 06:06how we're addressing this pandemic,
- 06:08how we're staying steadfast
- 06:10to the mission of discovery,
- 06:12compassionate,
- 06:13expert care and making sure that
- 06:16our patients and their families
- 06:18get nothing but the best possible
- 06:20cancer care imaginable.
- 06:22And I'm my name is Doctor Charles
- 06:25Fuchs and I'm the physician in
- 06:28chief of Smilow Cancer Hospital.
- 06:30And the director of the Yale
- 06:33Cancer Center and.
- 06:35Really appreciate your making
- 06:36the time to join us for our forum
- 06:39this evening and I'll I'll I'll
- 06:41I'll introduce people by name if
- 06:43you want to wave while everyone
- 06:45I call you so don't join this
- 06:47joining us today is Kim's lesser.
- 06:50Kim is the vice president
- 06:51for patient services.
- 06:52It's Milo and also our Chief nursing officer.
- 06:55We will will be joined by Kevin
- 06:58Billingsley who I think is is on route.
- 07:00Who's our Chief medical officer?
- 07:04Javier Alvarado,
- 07:05who is the system director for
- 07:07social work of Real New Haven Health.
- 07:10Nancy dear it Darienzo who's a nurse
- 07:13working in our Melanoma surgical unit.
- 07:17Doctor Christy Gomez,
- 07:18who's a member of our faculty,
- 07:20Assistant Professor of medicine,
- 07:22working at Torrington and an expert,
- 07:25among other things in
- 07:26gastrointestinal oncology.
- 07:27Doctor Kelsey Martin,
- 07:28who is also an assistant
- 07:30professor of medicine.
- 07:32Working in our Orange Care Center and
- 07:35with expertise in haematological ignis,
- 07:37delinquencies, and hematology.
- 07:38Paula Pike,
- 07:39who is clinical program manager
- 07:41for Smart for our Network,
- 07:43and finally, Doctor James you,
- 07:46who is a professor of therapeutic radiology.
- 07:49With expertise in a variety of things,
- 07:52including novel technologies
- 07:54and genitourinary and central
- 07:56nervous system cancers.
- 07:58And you know our agenda is we're going to.
- 08:01I was going to run through some items.
- 08:04I will say we got oh great.
- 08:07An finally doctor Kevin Billingsley,
- 08:09our Chief Medical Officer, just joined us.
- 08:11Do we have the full complement of experts?
- 08:14And I'm really,
- 08:15I'm so pleased that I'm joined with
- 08:18such a group of talent who span
- 08:21disciplines as part of our effort.
- 08:23It's Milo,
- 08:24so the agenda will be will have
- 08:26a few short presentations.
- 08:28We've got a number of questions
- 08:30already in advance,
- 08:31but we really encourage people
- 08:33to submit questions on the Q&A
- 08:35and and chat lines,
- 08:36and will get to as many as possible.
- 08:39So let me start with a little
- 08:41background and Renee if you want
- 08:43to bring up the first slide.
- 08:55Thank you honey.
- 08:56So if you want to just next slide,
- 08:59please. So is our agenda.
- 09:01Will be Kim and and Kevin will doctor
- 09:04Billingslea and will share with us some
- 09:07updates on our clinical operations and
- 09:10obviously be available for your questions.
- 09:12Javier will talk to us a little bit
- 09:15from the perspective of social work,
- 09:18about how we can care for each other and
- 09:21cope with what can be challenging times.
- 09:24And then our entire panel will
- 09:26be available for questions.
- 09:28So next slide, please Renee so.
- 09:31Just background that you want, you know,
- 09:33but I never want to take for granted,
- 09:36you know, we're really very fortunate
- 09:38to work at a place like the Yale Cancer
- 09:42Center and Smilow Cancer Hospital,
- 09:44which has really a century long,
- 09:46if not longer,
- 09:47history of leading research
- 09:49in cancer therapeutics.
- 09:50In fact, chemotherapy was essentially
- 09:52started in many respects in the early
- 09:561940s by investigators at Yale next slide.
- 09:59Um, one very important.
- 10:00Feature is the war on Cancer Act of the
- 10:04early 1970s designated across United States.
- 10:06These entities,
- 10:07which are at National Cancer Institute,
- 10:10designated comprehensive Cancer
- 10:11centers where basically you are the
- 10:14Center for your region and as part of
- 10:17that original designation in the 70s,
- 10:19Yale was the designated Center for
- 10:22for this region of of New England,
- 10:25and this the entire state of Connecticut
- 10:28and IT designation, which we continue to.
- 10:31Be privileged with today.
- 10:33Next slide.
- 10:36Landmark event was the opening of Smilow
- 10:40Cancer Hospital where I'm sitting at
- 10:42the moment a 15 story building dedicated
- 10:46to expert clinical care and research.
- 10:48Next, next step side in 2016,
- 10:51we opened the state of the Art
- 10:54Experimental Therapeutics unit next
- 10:56door to Smilow so that we have the
- 10:58ability for delivering to patients,
- 11:01really cutting edge new therapies
- 11:03that we think are moving the field.
- 11:05Today we have more than 450
- 11:08physicians and scientists.
- 11:09We now have care centers where our
- 11:12faculty and outstanding staff work
- 11:14across Connecticut and Rhode Island,
- 11:16where each of them is dedicated to
- 11:19being a destination expert center.
- 11:21Next slide.
- 11:23And by the way,
- 11:24we have to renew that designation.
- 11:26We have to compete for it.
- 11:29Every five years we've been successful.
- 11:31And frankly, in this last review in 2018,
- 11:33we were praised by the National
- 11:36Cancer Institute for being one of
- 11:38their truly outstanding centers.
- 11:40Next slide.
- 11:42And you know this is our network,
- 11:45as I say,
- 11:46beyond our center in New Haven,
- 11:48where I'm sitting moment at the moment
- 11:50we have centers really across the
- 11:52region and many of the folks on the
- 11:55call today represent those centers.
- 11:57And it really is our commitment
- 11:59to providing world class expert
- 12:00care to every community so that
- 12:03no patient ideally should have to
- 12:05travel more than 30 minutes to
- 12:06get access to world class care.
- 12:08Important access to novel therapies in
- 12:10clinical trials among other things.
- 12:12Next slide.
- 12:15You know the other key element of
- 12:17this is when you're when a patient
- 12:19and family are dealing with cancer,
- 12:22they want to see the expert,
- 12:24and that's one of the great things
- 12:26about our center we have expertise
- 12:28across this range of cancer types
- 12:30and we are continuing to expand our
- 12:33pool of talent beyond what we have.
- 12:35And I think many of our faculty
- 12:38here in our our staff nurses here
- 12:40today can speak to that expertise.
- 12:42Next slide.
- 12:45You know the other aspect is because
- 12:47we are National Cancer Institute
- 12:49Designated Center where we have labs
- 12:51that are focused on discovery of new targets,
- 12:54new therapies.
- 12:55We are committed to moving those discoveries
- 12:57in the lab to the clinic and next slide.
- 13:01We really had a very productive
- 13:03year this year, 2020,
- 13:05which is a cutting edge studies that
- 13:07define new treatments for colon cancer,
- 13:10head neck cancer, bladder cancer,
- 13:12genito, urinary cancer, prostate cancer,
- 13:14lung cancer among others, and next slide.
- 13:17What is really incredible is
- 13:19that an unprecedented feat.
- 13:21Which is this year?
- 13:22Studies by the Yale Cancer Center and
- 13:24Smilow Cancer Hospital will have led to
- 13:27four new drug approvals with the Food
- 13:29and Drug Administration in any any Goodyear.
- 13:31If you're lucky if you have one or
- 13:34zero for a Cancer Center to have
- 13:36four in a year is just reflective
- 13:38of the sheer talent we have here.
- 13:41Next slide.
- 13:42So we can overlook the fact that we're
- 13:45obviously dealing with the pandemic,
- 13:47and I'm so proud of the leaders
- 13:50on this call
- 13:51with me, who have taken charge of making sure
- 13:54that our patients got the care they needed,
- 13:57that it was safe that our staff are safe,
- 14:00that we always could expand the
- 14:02capacity to provide care to patients,
- 14:05and most importantly our researchers not
- 14:07only continued their work in Cancer Research
- 14:09and developing new cancer treatments.
- 14:11They actually led the charge on.
- 14:14As for Covid, which have been sort
- 14:16of landmark publications this year,
- 14:18that I think the field is is
- 14:21greatly benefiting from next slide.
- 14:24So it's been a tough haul and I'm not
- 14:26going to deny the fact for all of us living
- 14:28in these circumstances been challenged,
- 14:31including doing this event by zoom,
- 14:33but hope and vaccines are now on the way that
- 14:36the news is full of the stories of these,
- 14:38and I wanted to spend 'cause a lot of
- 14:41the questions related to the vaccine.
- 14:43I did want to share some some brief
- 14:45background on this, so next slide.
- 14:47So there are a number of vaccines
- 14:49that are under development.
- 14:50The two that are farthest along which
- 14:52are likely to be approved by the food
- 14:55and drink and Drug Administration.
- 14:57This week or next,
- 14:58or the ones by Pfizer and Moderna
- 15:01which are so called RNA vaccines.
- 15:03I had to RNA vaccines work so next slide.
- 15:08What RNA is a a piece of genetic
- 15:11code that encodes a protein,
- 15:13and So what these vaccines do is
- 15:15they take this little piece of code
- 15:18which codes a piece of the chobit
- 15:2019 virus called the spike protein
- 15:23and puts it in a lipid or not,
- 15:26or a fat particle and then that code is in
- 15:29packaged into the vaccine which next slide.
- 15:33Isn't next slide running is injected
- 15:37into your arm such that next slide?
- 15:41That little coding particle is
- 15:43goes into into a cell in your arm,
- 15:46where it then produces that spike protein
- 15:48that protein that the virus normally makes,
- 15:51but you don't have the virus in,
- 15:54you just have that little protein and
- 15:57what that protein does next slide.
- 15:59Is it elicits an immune response,
- 16:02so antibodies and immune cells
- 16:03now recognize the protein,
- 16:05even though you never got infected
- 16:08with the virus such that next slide?
- 16:11When you actually are exposed to the virus,
- 16:14your immune system already recognizes it
- 16:17and destroys it so that you don't get sick.
- 16:21And I want to be clear that this
- 16:23little piece of RNA gets destroyed
- 16:25almost immediately in your cells,
- 16:27so there's no lingering effect of
- 16:29the genetic code in your body.
- 16:31It's perfectly safe.
- 16:32And what do we know about these
- 16:34two vaccines with studies of over
- 16:3770,000 individuals?
- 16:37Is there safe and they appear to
- 16:40be 95% effective?
- 16:41And this,
- 16:41I think is a game changer into
- 16:44what our lives will be the next
- 16:46of vaccine that you'll hear about
- 16:48is 1 by AstraZeneca knoxford,
- 16:50which essentially is.
- 16:51In this case.
- 16:53A modified virus that also
- 16:55contains this capsid protein
- 16:57and when given with the vaccine,
- 16:59the virus, the capsid protein
- 17:01from the modified virus,
- 17:03which is a inert virus,
- 17:05elicits an immune response and
- 17:06that too seems to be affective,
- 17:09although not quite as far along as the
- 17:12current vaccines from Pfizer and Majorna.
- 17:14What we suspect is that we will
- 17:17start to get shipments of this
- 17:20vaccine within the next week or two.
- 17:23The first phase of the vaccine will be
- 17:26administered to health care workers.
- 17:28Those people working on the frontline and
- 17:30what we anticipate happening after that
- 17:33is that it will be available to patients.
- 17:36How that will happen and when that
- 17:38happened and there's a lot of questions
- 17:41that came in about that is unclear.
- 17:43We think that as these systems or
- 17:46work through that cancer patients
- 17:47because of who they are,
- 17:49because the vulnerabilities will be
- 17:51a priority and we're optimistic.
- 17:53That in by the spring that cancer
- 17:56patients will start to get access to it.
- 17:58Alright evidence is that it's safe.
- 18:00The latest data as recently as today,
- 18:03is that matter.
- 18:04How old you are,
- 18:05no matter what the circumstances
- 18:07you are that two injections of
- 18:09the Pfizer or Moderna vaccine seem
- 18:10to be very safe and effective,
- 18:12and we have every reason to be that
- 18:15it would be effective for patients
- 18:17who have been treated for cancer.
- 18:19And we we certainly are going to
- 18:22encourage our staff to get this.
- 18:24And we're going to encourage
- 18:25our patients to do it,
- 18:27and we think it's going to obviously
- 18:29change all of our lives for the better.
- 18:32In 2021 will get to questions on this,
- 18:35but let me now turn it over to Kim
- 18:37and Kevin to share their updates
- 18:39on our cancer services.
- 18:46See can I have the next slide please?
- 18:50So. Charlie, thank you Ann.
- 18:54I really appreciate.
- 18:55The this you're sharing the vaccine
- 18:59information because I think that this
- 19:01is the the Ray of optimism that is so
- 19:05important for all of us during this time,
- 19:08which continues to be quite challenging. No,
- 19:11I think is is everyone can see in this slide.
- 19:17We dealt with the initial surge of this
- 19:20pandemic back in the spring when we had
- 19:24a significant number of hospitalizations.
- 19:26This data from the state of Connecticut,
- 19:29where we had about 1700 patients,
- 19:321800 patients in the
- 19:34hospital during late April.
- 19:36We had about 450 here in the
- 19:39hospital in New Haven,
- 19:41and much more across the system.
- 19:44We had kind of a brief RESP
- 19:46ITE over the summer months,
- 19:49but the tough reality is that we are back
- 19:52in the in the middle of a of a second wave.
- 19:57Another surge of the pandemic and.
- 20:00The difference now here at Smilow is
- 20:03that unlike the spring where we really
- 20:06suspended our clinical operations,
- 20:08we are continuing to provide ongoing
- 20:11access and treatment for cancer patients,
- 20:13both here in New Haven at the
- 20:16Smilow hospital,
- 20:17as well as all of our care
- 20:20delivery sites across our network.
- 20:23So all of our teams are manageing to
- 20:25care for covid patients in selected
- 20:28limited areas of the hospital as
- 20:30well as provide ongoing cancer care.
- 20:33And to do that in the safest possible way.
- 20:37Next slide, please.
- 20:40So I think these this volume data is
- 20:45really tells the tale of of what our teams
- 20:49have done over the past several months.
- 20:54The Orange Line is the year 2020.
- 20:56The blue line is the the previous year
- 20:59and you can tell during the midst of the
- 21:03original of the early phase of the pandemic
- 21:07we had a significant drop in visit,
- 21:10visit volume where patients were staying
- 21:13away from care for a period of time.
- 21:16But we have recovered to full capacity
- 21:19at all again at all of our care sites,
- 21:22and we are now continuing to operate
- 21:25at full capacity even through the
- 21:27midst of this second wave of pandemic.
- 21:30And I'm really pleased to say that that
- 21:33that full capacity operation is across
- 21:36all of our modalities of treatment,
- 21:39including our diagnostic services.
- 21:41Our evaluation services are in Fusion
- 21:45surgery and radiation therapy,
- 21:47and it is really a testament to the
- 21:50resilience in the flexibility of our
- 21:53teams who have adapted to providing
- 21:57clinical care in alternative spaces
- 21:59in a way that we're able to keep.
- 22:03Our patience is absolutely safe
- 22:05during this challenging time.
- 22:10Kim, I think I'll turn it over to you.
- 22:12I think for the next slide.
- 22:14Alright, thank you Kevin and I really
- 22:17appreciate the opportunity to talk to
- 22:20everyone this evening about the many
- 22:22actions our teams are taking to ensure
- 22:25we are able to continue that safe high
- 22:27quality care that Kevin mentioned
- 22:29and maintain the safest environment.
- 22:31So I wanted to make sure that all of
- 22:34our patients and community understood
- 22:36that we are still continuing with
- 22:39all of our covid operations,
- 22:41meaning that we are still
- 22:43performing pre screening.
- 22:45Phone calls prior to your
- 22:47visit and at and then.
- 22:48In addition,
- 22:49when you arrive at the front door
- 22:52so that we make sure that if you
- 22:55are having any symptoms that could.
- 22:58Warrant a covid test that we make
- 23:00sure that we make those appropriate
- 23:02arrangements and that the same happens
- 23:04when you arrive for your appointment.
- 23:07We also make sure that we have
- 23:09all the appropriate precautions,
- 23:10including our visitor restrictions.
- 23:12We I think for our patients and our teams,
- 23:15this is probably been one of the
- 23:17most one of the hardest things we've
- 23:19had to do is limit our visitors
- 23:21both on our inpatient units and
- 23:24in our ambulatory settings,
- 23:25so we do have exceptions when patients
- 23:28really need to have a loved one with them.
- 23:32For various reasons we we are allowing that,
- 23:35but we really do need a limit.
- 23:37Visitors as much as absolutely possible
- 23:40to ensure the safety of everyone.
- 23:42And we know that is very difficult.
- 23:45We are trying to use technology to
- 23:48stay connected and to make sure
- 23:50that our patients families and loved
- 23:52ones have the ability to participate
- 23:55in their care as much as possible.
- 23:58And so if those options are not
- 24:00being offered to you, I would.
- 24:03Encourage you to talk to your clinical
- 24:05teams about how we can use technology
- 24:07to bring your family members into your care,
- 24:10but we should also be offering
- 24:12that to to all of you.
- 24:15We do also for our cancer patients that
- 24:17are unfortunately experiencing covid.
- 24:19We do have a program where we are
- 24:22calling all of our kovid positive
- 24:24patients daily to do what we would
- 24:27call Wellness assessments on them and
- 24:30making sure that they are feeling OK,
- 24:32that they can stay at home and
- 24:35recover at home as much as possible,
- 24:38But then intervening if needed and
- 24:40making sure they get the access
- 24:43to the care they need.
- 24:45In a timely manner,
- 24:46so we are still performing that.
- 24:49In addition,
- 24:49we have we still have remained to
- 24:52have clinical workflows for cancer
- 24:54patients with covid if they need
- 24:57care or if they need to be tested
- 24:59and having symptoms.
- 25:00So we still have our rapid evaluation
- 25:03clinic here at the New Haven campus,
- 25:06and we also have regional designated
- 25:08sites where we can care for cancer
- 25:10patients who may be experiencing
- 25:12symptoms related to covid and
- 25:14get appropriate testing.
- 25:16And then also for our cancer
- 25:18patients who are covid positive.
- 25:21Who needs supportive care or may
- 25:23still be receiving cancer treatment?
- 25:26And we have actually in our
- 25:28rapid evaluation clinic since
- 25:30it opened in early April,
- 25:33we have had 971 appointments through
- 25:36that clinic and we're very proud of
- 25:40of of offering that to our patients.
- 25:43During this time, but as Kevin mentioned,
- 25:46in addition to doing all of
- 25:49those things to keep our patients
- 25:51and our staff safe, we are we.
- 25:54We really are continuing our cancer
- 25:56care and we have put together for
- 25:59transformation teams that really focus
- 26:02on everything we've learned through
- 26:04the pandemic on how we're going to
- 26:07leverage innovation to continue
- 26:08to provide excellent cancer care.
- 26:11So we have an inpatient team
- 26:13and ambulatory team.
- 26:15Port of Care team and a clinical
- 26:17research team and not only are these
- 26:20teams working on how we're delivering
- 26:23our Care now during the pandemic,
- 26:25but like I said,
- 26:27really innovating on how we're
- 26:29going to care in the future.
- 26:31Also, during this time,
- 26:32as Kevin mentioned,
- 26:33we are seeing our second wave of
- 26:36covid in the state of Connecticut
- 26:39and we are encouraging.
- 26:41That when we can use Tele health we
- 26:44are using Tele health for our patients.
- 26:47So in cancer care delivery.
- 26:48I know everyone on this forum knows
- 26:51that you need to physically be seen
- 26:53from at certain times in your journey
- 26:56and your treatments need to continue.
- 26:58But there are opportunities where we can
- 27:01provide Tele health services to you at home.
- 27:03We are even starting to do some
- 27:06nursing education televisit so that
- 27:08this used to be education that we
- 27:10had to provide to our patients.
- 27:13In the clinic that we are now piloting
- 27:15and trying through Tele Health
- 27:17as well as your provider visits,
- 27:19then go on to the next slide.
- 27:22I want to make sure that everyone on
- 27:25this forum knows that while we are
- 27:28limiting certain on-site activities,
- 27:30that we have continued to provide
- 27:33integrative medicine and supportive
- 27:34care virtually.
- 27:35You can go into the Yale Cancer Center
- 27:38website an you can find our weekly
- 27:41calendar and you can sign up for all
- 27:44of these virtual offerings we have.
- 27:47We still have meditation and yoga an our
- 27:50support groups led by our social work team.
- 27:54So I just want to make sure that our
- 27:56cancer patients and their families
- 27:58and loved ones know that we still are
- 28:01trying to ensure that you have access
- 28:04to all the supportive care that you
- 28:06would have had prior to the pandemic.
- 28:09And with that I will turn it
- 28:11back over to Charlie.
- 28:13Or Kevin and Kim, thank you.
- 28:15Our next speaker is Harvey
- 28:17Alvarado who is the leader of
- 28:19social work for a health system.
- 28:21And you know, I think it was
- 28:24so pleased that hobby could
- 28:25make the time to to join us,
- 28:28because obviously we're all.
- 28:29I think all of us are dealing with some
- 28:32very challenging times and getting
- 28:34perspectives from somebody like hobbies.
- 28:36I think vitally important, so happy.
- 28:38Thank you for joining us.
- 28:41I thank you Doctor Fuchs and I'm so happy
- 28:44to be here with all of you tonight.
- 28:47But it's fair to say that we are living
- 28:50with a lot of fear and uncertainty,
- 28:53and many of us are sheltering in
- 28:56place to slow the spread of COVID-19.
- 28:59This can make it tough for any one person
- 29:02and family, and now we have a plan.
- 29:06As the holiday season which could add
- 29:09to the stress we are all experiencing.
- 29:12Doctor Fuchs mentioned a few reasons for
- 29:15optimism, vaccine and cancer treatments.
- 29:17And I'm going to talk a little bit about
- 29:21resilience and ways to be optimistic,
- 29:23optimistic to help us get through
- 29:26some of these challenges.
- 29:28So when we are first diagnosed
- 29:30with an illness,
- 29:31we may experience many emotional reactions.
- 29:34A wide range of feelings that we
- 29:36may not be used to dealing with.
- 29:40Feeling overwhelmed.
- 29:40Denial feelings of anger, fear,
- 29:43worry, sadness, depression.
- 29:44And sometimes we even feel like we have to.
- 29:48Be strong to protect our friends and
- 29:50families and all of this is normal.
- 29:53It's important to know, however,
- 29:55that there is a lot that we can control.
- 29:58Resilience is a skill.
- 30:00We can all learn resilience is the mental,
- 30:05physical, emotional,
- 30:06and behavioral ability to face and cope
- 30:10with adversity to be to be able to adapt,
- 30:15to change, to recover, and an learning,
- 30:18grow from from our setbacks.
- 30:22One of the most important
- 30:25resilience skills is our attitude,
- 30:27a positive attitude.
- 30:29It's important to our overall
- 30:31emotional health and it really
- 30:34attitude is really the way we think
- 30:37or feel about someone or something.
- 30:39You will find that in many behavioral
- 30:43health or therapy approaches there
- 30:45is a focus on our thoughts and
- 30:48how our thoughts lead to emotions
- 30:51and how those emotions.
- 30:53Often leads to our behaviors.
- 30:57Now it's it's easy to adopt A positive
- 31:00attitude when life circumstances are
- 31:02generally good and problems are few.
- 31:05But when circumstances drastically
- 31:06change in a negative way,
- 31:09it's not always easy to
- 31:11keep a positive outlook.
- 31:12I understand that especially when
- 31:14those changes in involve ill health.
- 31:17So what are some of the things
- 31:19that we can do so we all have
- 31:23these conversations in our head?
- 31:25I might be thinking.
- 31:26How am I going to do during
- 31:28this evening's presentation?
- 31:30I'm not going to do well,
- 31:32it's important to listen to those
- 31:34conversations that we have an
- 31:35when you have a negative thought,
- 31:37turn and try to turn it around and
- 31:39make it into a positive thought.
- 31:41We're really talking about is
- 31:43being practicing self compassion.
- 31:44Telling yourself you were doing well,
- 31:46you are doing the best you can.
- 31:48No one is perfect.
- 31:49Telling yourself that you are smart,
- 31:51but you're beautiful that
- 31:53you're funny that you're kind.
- 31:55Also,
- 31:55it's important I found it very important
- 31:58to interact with positive people.
- 32:00Now we all have negative friends
- 32:03or perhaps family members,
- 32:04and I'm not saying that we
- 32:07should disown them,
- 32:08but do your best to surround
- 32:10yourself with positivity and
- 32:12can mention some of the support
- 32:14groups that might be available.
- 32:16So some of these health related support
- 32:19groups would be an opportunity for us to
- 32:23share personal experiences and feelings, Ann.
- 32:26And coping strategies.
- 32:29Getting pleasure on the
- 32:30simple things in life.
- 32:32Whether it's a walk or time
- 32:34with family or friends.
- 32:36Now mostly virtual.
- 32:38Slowing down to enjoy these precious moments.
- 32:41Optimism seems to be the theme this evening,
- 32:45so hunting for the good stuff that
- 32:48gets us through each day is also important.
- 32:51It's a skill that helps us create positive
- 32:54emotion by noticing what's good in our lives.
- 32:58This is important because we
- 33:00often tend to focus on what isn't
- 33:03good in in behavioral science,
- 33:05this is called negative negativity bias.
- 33:09So praise yourself when you
- 33:11have done something well.
- 33:13Seeding praise makes people feel
- 33:15good practices every day and again
- 33:19really about self compassion.
- 33:24They are. Mindfulness if if you have ever
- 33:27if you've never heard of mindfulness before,
- 33:31it's the practice of being present
- 33:33in the moment. In my experience,
- 33:35present moment awareness helps
- 33:37reduce symptoms of anxiety.
- 33:39Depression when you focus on the
- 33:41present moment, your painting,
- 33:43you're paying attention to those
- 33:44things that are currently happening.
- 33:47We can take control of our day or each
- 33:50of our day in our outlook rather than
- 33:54focusing on the future in this way.
- 33:57Those who live in the moment
- 33:59tend to be happier, calmer,
- 34:00more relaxed and appreciative.
- 34:02Sometimes their mind will steal
- 34:04away these precious moments,
- 34:05so don't rush through it.
- 34:07Don't wish it away.
- 34:08Each day we could start
- 34:10positively when you wake up,
- 34:12decide what your day will look like.
- 34:14What can I do today to take care of myself?
- 34:18How will I practice self compassion?
- 34:20What can I do to feel more
- 34:22connected and fulfilled today?
- 34:24Now I I've taken meditation
- 34:26courses before and I remember my
- 34:28very first meditation course.
- 34:29I was told by the instructor that
- 34:31I was not breathing correctly which
- 34:34I found hard to believe because
- 34:36up to that point I was still alive
- 34:39and I thought I was breathing well.
- 34:41The purpose of mindful breathing is
- 34:44to anchor yourself in the present
- 34:46moment so that you can let go of worrying.
- 34:50Just taking those moments to focus
- 34:53on your breath becomes it involves
- 34:55becoming aware of your breath and
- 34:58focusing on it.
- 34:59Just the act again of focusing
- 35:01usually slows your breathing down,
- 35:03makes you feel more relaxed,
- 35:05so as you focus on how air moves in
- 35:09and out of your lungs, mouth, nose.
- 35:12It becomes a form of calming meditation.
- 35:16Uh, and while doing breathing,
- 35:18you can also do mine should be breathing,
- 35:21which is the technique of that helps
- 35:24you focus on your breath and mantra
- 35:26is just a phrase or a word that you
- 35:30repeat yourself to create focus.
- 35:32And as you repeat it,
- 35:34you become able to relax and meditate.
- 35:36Imantra such as I deserve happiness.
- 35:38I deserve peace,
- 35:40repeating that over and over again
- 35:42as you breathe again helps you focus.
- 35:46Connection is another important
- 35:48factor that affects us all,
- 35:50particularly when we are going
- 35:53through tough times.
- 35:55Actions are in our relationships with family,
- 35:58friends, other loved ones,
- 36:00even community connections.
- 36:02Seek them out,
- 36:04spend time around positive
- 36:06and supportive people.
- 36:08Um and so so, you know,
- 36:10these are some of the tips
- 36:13that help build resilience.
- 36:14And while we can't always be upbeat,
- 36:17and that's perfectly fine, it's it's.
- 36:20It's again about self compassion
- 36:22when you don't have good days,
- 36:24it's fine to accept that and
- 36:28have those moments.
- 36:30Another item I wanted to talk about
- 36:33was the Holidays and this all begins
- 36:36by acknowledging that the holiday
- 36:38season will be different this year,
- 36:40but that's different.
- 36:42That difference can have positive
- 36:44qualities I think as well.
- 36:46While many of our gatherings
- 36:48with family and friends will look
- 36:50very different this year,
- 36:52we may be able to create new
- 36:56traditions this holiday season.
- 36:58For many of us that will include,
- 37:02you know this technology
- 37:04and virtual gatherings.
- 37:05Others include things like making an
- 37:08online gift or shopping or very small
- 37:11events with your nuclear family,
- 37:14or maybe even thoughts about making digital
- 37:17photo Chronicles of previous Holidays.
- 37:21It allows for us to be creative this year.
- 37:24It forces us away from what we
- 37:27usually do this time of year,
- 37:29which is the the running around to all the
- 37:33stores and looking for the perfect gift.
- 37:36In many ways this is going to be a much more.
- 37:42Personal much more real holiday
- 37:44then that in the past so you know
- 37:47all of these changes are are in
- 37:50the name of preserving our health
- 37:53and our health of our loved ones.
- 37:56Let's not underestimate the value of
- 37:59old fashioned cards and letters that
- 38:01we used to send each other in the past.
- 38:05Remembering why we celebrate during
- 38:07this season with things we ought
- 38:10to be placing importance on like
- 38:13health and warmth and.
- 38:15Intimacy are all important all of
- 38:17very important and again focusing
- 38:19on our self care is important.
- 38:22Doing things that we enjoy,
- 38:24whether it's taking a walk,
- 38:26virtual exercise class,
- 38:27cooking a meal,
- 38:28spending time with our family for those
- 38:31of our our patients and families that
- 38:34are burdened by illness this season
- 38:37we are encouraging you to accept the
- 38:40help and support that is extended
- 38:42both from your loved ones as well as from.
- 38:46Other sources can mentioned
- 38:48the integrative Medicine,
- 38:50an off the that you can
- 38:53find on the SMILE website.
- 38:57There are a number of videos
- 39:00is can mention that.
- 39:05The Library of videos that talk
- 39:07about a lot of things that
- 39:09I just talked about today.
- 39:11So thank you again and again.
- 39:13Practice a lot of self compassion and.
- 39:17The resilience that we've shown
- 39:18over the last many months.
- 39:20We can continue to show in the
- 39:22many months to come, so thank you.
- 39:27Well hobby, thank you there was
- 39:30there was a great discussion
- 39:31and I think incredibly helpful for all of us,
- 39:34most notably our patients. Let me now.
- 39:37I think we're going to turn that a question.
- 39:40And as I say, we've gotten many.
- 39:42Please continue to submit your
- 39:44questions on the Q&A or chat line,
- 39:47and then I'll start,
- 39:48you know and and and I'll start with a few.
- 39:51So let me actually open first
- 39:53and then turn to Nancy and Nancy.
- 39:56You know somebody?
- 39:58Who's you're obviously working with?
- 40:00Lot of patients in your capacity
- 40:02as a nurse in the Melanoma unit.
- 40:04I wondered if you could share with
- 40:07us your perspectives from you know,
- 40:08as you know from nursing really
- 40:10in the care of patients during
- 40:12these challenging times.
- 40:13What you have encountered some of the
- 40:15things you would like to share with the,
- 40:18you know,
- 40:18the several 100 people who are
- 40:20on the line now.
- 40:22I think it's most important for me to
- 40:24tell everyone how much we care about
- 40:26each and everyone of our patients.
- 40:28We have gone to great lengths to.
- 40:30Make sure the environment is clean and
- 40:33is safe during the height of the kovid
- 40:36pandemic we were out of the Smile Cancer
- 40:39hospital and relocated to Guilford.
- 40:41We had a young man who parents
- 40:43did not want him to come into
- 40:46the building and Doctor Cloonan.
- 40:48I went out and took stitches out of his
- 40:51person in the back of his mother's car.
- 40:54We are here to do anything we need to.
- 40:58Our team wants to meet every patient.
- 41:01At the space they need us to,
- 41:03we're willing to to do anything to
- 41:07make everyone comfortable and safe.
- 41:09Um, I think that it's also something that
- 41:13we pride ourselves in here in the cancer
- 41:15hospital that we put patients first.
- 41:19Or dance you thank you.
- 41:21And that's a great story and it
- 41:23really speaks to your commitment
- 41:25and those of your colleagues.
- 41:27Paula, as somebody who leads
- 41:30administratively the operations
- 41:31for a number of our care centers
- 41:33that is outside of New Haven.
- 41:35One question that's come in is
- 41:37are we applying the same rules of
- 41:40safety in those centers that we are
- 41:43in the main campus in New Haven,
- 41:45and you know how is that going and you know,
- 41:49tell us about that approach.
- 41:53Thank
- 41:53you, Charlie. Absolutely,
- 41:54we are employing the same standard for
- 41:57covid precautions and all our smile
- 42:00locate Smiler locations as well as
- 42:02throughout the entire hospital system.
- 42:04We work very hard.
- 42:06We prescreen all our patients 24 to 48
- 42:09hours in advance of their appointment.
- 42:12We also have the unfortunate job
- 42:15of telling our patients about our
- 42:18visitor restrictions because our
- 42:20staff totally miss our visitors.
- 42:23It's not just the patients who sits in
- 42:26our infusion share or in the exam room
- 42:28that we have developed relationships with,
- 42:30but it certainly is that caregiver that has
- 42:33providing the care outside of our walls to
- 42:36that patient that we miss just as much.
- 42:38We also are using the
- 42:41standard protective equipment,
- 42:42so we are masking gowning hand hygiene.
- 42:44We talk about this every single
- 42:46day in our huddles.
- 42:48Every single one of our locations,
- 42:50whether we are at main campus at
- 42:5220 York Street at North Pavilion,
- 42:55or in one of the network sites,
- 42:57has a daily morning huddle that we are
- 43:00discussing any of the new things that
- 43:03we are doing to protect our patients.
- 43:06Our patients arrive at any of our
- 43:08locations are against screened at
- 43:10the door and we apologize that we are
- 43:12asking the same questions about your
- 43:14cough and sneezing and runny noses.
- 43:16But we do want to go through every
- 43:18single one of those symptoms because
- 43:20we want to make sure that we are
- 43:23identifying anyone that might have
- 43:24a covid symptom and rest assured
- 43:26your treatment will not be suspended
- 43:28if you do have a covid system,
- 43:30a symptom that is what I rapid
- 43:32evaluation clinic is all about and
- 43:34just this week we had a patient
- 43:36to present it to the clinic.
- 43:38We had one of the covid symptoms and
- 43:41didn't think that it had anything
- 43:42to do with Kovid,
- 43:44but were able to get a ride over
- 43:45to the rapid evaluation clinical
- 43:47Lisa Barbara to help us make sure
- 43:49that that happened very quickly.
- 43:51And in fact she did not have covid at
- 43:54all and continued on with their treatment.
- 43:56We just want to make sure
- 43:58the safe environment.
- 43:59We've also stepped up our environmental
- 44:01services so we have a team walking
- 44:03around with the cleaning supplies
- 44:04that we need our cleaning extra
- 44:06every single door nob,
- 44:07an elevator button that you might
- 44:09press so we are doing everything
- 44:11we can to keep everyone safe.
- 44:14And Paul, thank you and I actually
- 44:16when when you've given me the privilege
- 44:19of a tour, I I have to tell you,
- 44:22I I walk through with you and I don't
- 44:25think there's a safer place to be.
- 44:27And on the planet so and I know the
- 44:31patients feel the same when they're there.
- 44:33So thank you. Thank you, Charlie.
- 44:35So Doctor Kelsey Martin,
- 44:37who works in Orange Kelsey, you know.
- 44:39Obviously two questions.
- 44:40One given your expertise,
- 44:41and hematology and hematologic legacies,
- 44:43we actually have a number of patients.
- 44:46Who have the gamut of of Lincoln
- 44:49season hematology, lymphoma,
- 44:50chronic myelogenous leukemia,
- 44:51myeloma, all of whom were asking
- 44:53when the vaccine becomes available
- 44:55for covid should they do it?
- 44:57Is it safe?
- 44:59Will they respond?
- 45:00You know and then wanted to ask you that
- 45:03and then also any thoughts you have from
- 45:06your experience from your vantage point,
- 45:09your practice.
- 45:11Alright,
- 45:11thanks, Charlie.
- 45:12Thank you to everyone that's
- 45:13really interesting to hear
- 45:15everyone's thoughts tonight.
- 45:16I think that's a really,
- 45:18really important question and I
- 45:20think we all have the same question.
- 45:22And Doctor Anthony found she actually
- 45:25just spoke a couple of days ago
- 45:27at our ash meeting at our American
- 45:29Society of Hematology meeting.
- 45:31And you know, he he was promoting the use of,
- 45:34you know, the chobit 19 vaccines
- 45:37for our patients with blood cancers.
- 45:39That being said, I'm not familiar with.
- 45:41And I don't think that you know they
- 45:44included any patients who had, you know,
- 45:47compromised immune systems in those studies.
- 45:49So I think it's probably an area that's
- 45:52evolving for our knowledge base and
- 45:54one of the concerns that we sometimes
- 45:56had for patients with blood cancers
- 45:58is have any of the treatments they've
- 46:01received is not going to impact their
- 46:03ability to respond to the vaccine,
- 46:06and I think that's an important question
- 46:08that were that were still there.
- 46:10We're still learning information about.
- 46:13But I.
- 46:13I hope that we it's not a live vaccine.
- 46:16The ones we have available so far,
- 46:18so I hope that they will be
- 46:20available to all our patients safely.
- 46:23Great thank you and then sort of
- 46:25from your perspective from you
- 46:26know you're working in Orange.
- 46:27Any thoughts that things that you've
- 46:29come across that you wanted to share?
- 46:32Oh yeah, so this has been a fascinating
- 46:35right, and I think that one of the
- 46:37things that I just wanted to say
- 46:40thank you to all of our patients for
- 46:42their flexibility because every day
- 46:45I sometimes feels like a new email
- 46:47comes across or a new rule or new
- 46:51visitor restriction and we have to tell
- 46:54patients things at the last minute and.
- 46:57Ann are patient and have handled
- 46:59it with such stride an as as the
- 47:02speakers before may have mentioned.
- 47:03We're here for you whether we're
- 47:06making a phone call from you know,
- 47:08or a video visit, or you know,
- 47:11coming up with some creative alternative of,
- 47:13you know, including patients and family
- 47:15members you know we have not stopped,
- 47:18and but I really do appreciate
- 47:20everyone's flexibility because
- 47:21there's lot of pivots and changes
- 47:23that have happened along the way.
- 47:28Kelsey, thank you Doctor Christy Gomez,
- 47:30who works in Torrance and Christy
- 47:32a number of questions that I could
- 47:35offer and obviously we want to hear.
- 47:37I also get your perspective from Torrington,
- 47:40but let me just start couple of
- 47:42questions that patients are asking both
- 47:44for themselves and for their family
- 47:46about during this challenging time.
- 47:48Christy, what should we recommending
- 47:50about people going for standard
- 47:52screening like colonoscopy and
- 47:53mammography and things like that?
- 47:55What advice giving is that something we
- 47:58should be recommending or not recommending?
- 48:00What do you?
- 48:01What do you think we should suggest
- 48:02to patients and families about this?
- 48:06Charlie, thank you with this kind
- 48:08of is a beautiful segue into
- 48:10what I wanted to comment on.
- 48:13I want to highlight or
- 48:15recognize or honor for a second.
- 48:17The fatigue that comes with
- 48:19a new way of life.
- 48:21Now months into this,
- 48:22my oldest niece is in her senior
- 48:25year of high school and I am trying
- 48:28to challenge her to see that life
- 48:31goes on that senior year looks
- 48:34different than we are called.
- 48:3622 newness or creativity like hobby
- 48:39mentioned and so in the same light,
- 48:42life goes on an or health remains.
- 48:47Pivotal.
- 48:47Um and must be optimized in
- 48:51order number one to continue to.
- 48:54Be healthy in light of a potential risk
- 48:57of a virus and infection, but more that.
- 49:02Our body, our aging process.
- 49:05Our screening anniversary's
- 49:06need to be met and that safety
- 49:10has been our utmost commitment.
- 49:14I am working closely with the GI.
- 49:19Team locally and have they
- 49:22have guaranteed the safety of,
- 49:24for instance,
- 49:25endoscopies annual colonoscopies
- 49:26at our center in Torrington.
- 49:28We have a local imaging center right
- 49:31next door and our patients are so
- 49:34appreciative that their breasts,
- 49:36exams,
- 49:37their mammograms and ultrasounds are done.
- 49:39I'm seeing a patient.
- 49:41She goes next door and gets the study.
- 49:45Um, life goes on and we are asked to too.
- 49:52Our called to continue to show
- 49:54up to all that life is calling
- 49:57us to in utmost safety an eye.
- 50:00Everyone is pulling through with that.
- 50:03Our colleagues in GI in radiology.
- 50:05To me it's been the utmost important
- 50:08recommendation to my patients.
- 50:10In some instances when the world
- 50:12stood still in the spring,
- 50:14things were delayed,
- 50:15and unfortunately we've seen some
- 50:17manifestations of her later presentations,
- 50:19so I encourage everyone.
- 50:21I invite you.
- 50:22I hold your hand in saying it is
- 50:25safe to do so, and you are important.
- 50:29Your health is important.
- 50:30So that you meet the challenges of of
- 50:33your health and any challenge that
- 50:35you have in these times of sheltering and.
- 50:40Christy, thank you. That's very helpful.
- 50:42Doctor James you from therapeutic
- 50:44radiology radiation oncology.
- 50:45We actually have some questions about
- 50:47a number of questions that relate
- 50:49to various radiation approaches.
- 50:50In fact, one question specifically about
- 50:52the role of IMRT for prostate cancer,
- 50:55but in which I think would
- 50:57be great for you to dress.
- 50:59But you also maybe if you,
- 51:01if you wouldn't mind.
- 51:02James also is sharing some of your
- 51:05thoughts about some of the newer
- 51:07technologies that you and your team are
- 51:09beginning to avail patients as as were.
- 51:12Moving forward. Sure,
- 51:14so most of the innovations in
- 51:16radiation over the past couple years
- 51:19have mainly been in technique and
- 51:21trying to reduce the side effects
- 51:24associated with radiation treatment.
- 51:25The area that I mainly treat,
- 51:28prostate cancer we've been.
- 51:31Pioneering the use of something
- 51:33called space or hydrogel,
- 51:34which is to space the prostate
- 51:36away from the rectum to reduce
- 51:38side effects to the rectum.
- 51:40We put markers into the prostate to
- 51:42track the motion and really shrink
- 51:45the margins around the prostate.
- 51:47When we deliver radiation treatment.
- 51:48But one of the things that's been beneficial.
- 51:52Based on what we've done at Yale
- 51:55is to shorten radiation treatments
- 51:57and that is actually because of
- 52:00the kovid pandemic really shone a
- 52:02light on how we focused on trying
- 52:05to make the patients is trying to
- 52:07make the treatments as convenient
- 52:09for patients as possible,
- 52:11and reducing the number of times that
- 52:14they come in for radiation treatment
- 52:16has been one of the things that is
- 52:19recommended for how to deal with
- 52:22both treating patients properly.
- 52:23And minimizing their their virus risk.
- 52:26I can speak more about radiation
- 52:28technologies for hours,
- 52:30but I think I'll leave it there.
- 52:32Thank you, James.
- 52:36Kevin Billingsley, um?
- 52:37You know, as you may have heard,
- 52:40the state of Massachusetts,
- 52:42the governor just announced that
- 52:44they're they're putting a stop.
- 52:46If not a slowdown to elective surgeries.
- 52:50Any thoughts about what will happen
- 52:52in this latest surge with regard
- 52:55to surgeries that are at smilow?
- 52:58Charlie, I really
- 52:59appreciate that question because I
- 53:02having lived through the spring.
- 53:04When we had to delay so much surgery, it was.
- 53:09I think such a source of.
- 53:13I think it was a source of great stress
- 53:16and anxiety for many patients and families.
- 53:19And as a surgeon myself,
- 53:23I really have great reticence.
- 53:27Two to postpone a patient's operation in
- 53:30the setting of a of a cancer procedure.
- 53:34I think the good news is that with the
- 53:39tiered approach and the size of our
- 53:43hospital facilities across our network,
- 53:46it gives us incredible flexibility
- 53:49to move patients across inpatient
- 53:53units and and separate surgical
- 53:56patients from from covid patients or
- 54:00even patients under investigation.
- 54:02And at this point we are continuing
- 54:05to do our full operative schedule
- 54:08and we have no no plans to curtail
- 54:12surgical procedures.
- 54:14Now that being said,
- 54:16you know we are monitoring infection rates,
- 54:19hospitalization rates,
- 54:20Edie utilization rates on a really
- 54:23on daily basis, and you know the the.
- 54:27This pandemic can certainly throw
- 54:30us a curveball, but it.
- 54:32Our really our aim is to continue
- 54:36unrestricted access to surgical services.
- 54:40True, thank you Kevin Harvey. I really.
- 54:43I think it's a really good question that
- 54:46one of our patients is sharing that I.
- 54:49I'm really pleased that
- 54:50they're willing to share this.
- 54:52A patient talks about her spouse who doesn't
- 54:54like to talk about the patients cancer,
- 54:57and I think sounds like by the
- 55:00story wants to sort of be a brave
- 55:03soul and reassure the spouse.
- 55:04But doesn't you know,
- 55:06it doesn't really want to talk about it and.
- 55:10I think it's it as she says,
- 55:12he's not in denial,
- 55:14but uncomfortable talking about it.
- 55:15And you know what?
- 55:17Would you advise a couple like that?
- 55:20Yeah,
- 55:21thank you for that that question.
- 55:25I think it's important to remember
- 55:27that many people have little experience
- 55:30with life threatening illnesses.
- 55:32They may not know what to
- 55:35say to you or how to act.
- 55:39For some people, it may be frightening
- 55:42to learn that their partner has cancer,
- 55:46others may have lost loved ones.
- 55:49Cancer and the diagnosis may
- 55:51may bring up painful memories.
- 55:54Um, For these reasons,
- 55:56some of some of your friends and
- 56:00family members may not be able to
- 56:03offer you support that you expect,
- 56:06and although that may be painful to
- 56:09remember again at these reactions
- 56:12may reflect.
- 56:13Past experiences and losses
- 56:15and not their feelings for you.
- 56:18Some some friends and family
- 56:21members make this in themselves.
- 56:24There's a.
- 56:26Surprise you with with with emotional
- 56:29and physical support throughout your.
- 56:31Your illness is important to
- 56:33have these conversations to let
- 56:36your husband or your wife know
- 56:39on going communications.
- 56:40Sometimes we try to protect our loved
- 56:43ones by withholding information,
- 56:45thinking that that's going to help them.
- 56:51Also with your children. Over 4.
- 56:56You did with the children should be
- 56:58able to cope with your cancer diagnosis.
- 57:01It's important to share information.
- 57:04So it it it you know at the end of the day,
- 57:09the more that we communicate
- 57:10and share an even express,
- 57:12I would express to my husband or
- 57:14my wife that they may be having
- 57:17difficulty expressing themselves
- 57:18that you understand that it's OK,
- 57:21and when they're ready to talk that
- 57:23you're you're there to listen.
- 57:27Thank you, that's very helpful.
- 57:29Nancy, a couple of questions that
- 57:31I think would be relevant to your
- 57:33son is your area of expertise.
- 57:35One is for patients who are,
- 57:37you know, who are potentially going
- 57:39undergoing surgery for, you know,
- 57:41Melanoma or any other cancer.
- 57:42Is there any greater risk in
- 57:44terms of what's going on with the
- 57:46pandemic and should other things
- 57:48they need to be doing differently?
- 57:50Should they delay their surgery and then
- 57:52also related to your work in Melanoma?
- 57:55A common tale is, you know,
- 57:57somebody notices something on their skin.
- 57:59But you know,
- 58:00do you want to go to the doctor
- 58:02and get it checked out?
- 58:04And but at the same time you're concerned
- 58:07about it? So what do you do?
- 58:09So two questions for you sure
- 58:11definitely have it checked out.
- 58:13Dermatology is a big portion
- 58:15of of how we operate.
- 58:16If someone goes to their
- 58:18dermatologist and a biopsy is done,
- 58:20they are referred to the Melanoma team.
- 58:22It's important to keep track of the moles
- 58:25and discolorations that you may have,
- 58:27especially as one matures.
- 58:30Most of the sun damage that
- 58:32was done in our youth develops,
- 58:35as you know, as we become adults.
- 58:38So I encourage people to please
- 58:40go to the dermatologist.
- 58:42Don't delay that as far
- 58:44as our surgical setting,
- 58:46because we saw such a dip in March and
- 58:50people did delay treatment and care
- 58:53the we've noticed that some of the.
- 58:57Areas are larger, deeper and bigger,
- 58:59so I would hope that people would
- 59:01realize that we are offering a
- 59:04service in a safe environment.
- 59:06And please do not delay care
- 59:08because the area can change or
- 59:10grow and present other issues that
- 59:12we could head off at an earlier
- 59:15stage if caught earlier.
- 59:18Thank you, Nancy Kim.
- 59:20Let me ask you you.
- 59:21Obviously I think we've talked a
- 59:23little bit about the Visitation
- 59:25policies and on the inpatient side.
- 59:27So what kind of things can we do for patients
- 59:30and their families who are hospitalized?
- 59:32Given the fact that we we need to take
- 59:35these policy's keep these policies
- 59:36in place to keep everyone safe.
- 59:39So what kind of things we can we
- 59:41do to help families through that?
- 59:44Entirely
- 59:45thank you for that question, and again,
- 59:47we're really trying to make sure that we
- 59:50are engaging and providing that support
- 59:53for patients and their loved ones.
- 59:56So we really are trying
- 59:58to leverage technology.
- 59:59So if our family We have the
- 01:00:02ability to FaceTime and we can
- 01:00:04also set up much similar to this.
- 01:00:07A zoom you know where even when
- 01:00:09our providers when our physicians
- 01:00:11are rounding and and the family
- 01:00:13Member wants to have their loved
- 01:00:16one involved in that discussion,
- 01:00:18we can zoom them in.
- 01:00:19We end the patient doesn't have to have
- 01:00:22their own smartphone or their own tablet.
- 01:00:25We have the ability to provide that
- 01:00:28at certain points in the day for.
- 01:00:31For patients who do not have those devices,
- 01:00:34so we really try very hard to make
- 01:00:37sure that that we have that ability.
- 01:00:40We can do the good old fashioned
- 01:00:42phone call if people don't have the
- 01:00:45ability to do the video interaction,
- 01:00:47so we also have that availability and again,
- 01:00:51is Javier had mentioned, you know we do have.
- 01:00:55Are social workers available and
- 01:00:57our social workers are not just
- 01:00:59available to our patients but there
- 01:01:01they are available to our patients
- 01:01:03and their families and loved ones.
- 01:01:06So I want to make sure that
- 01:01:08you know that that.
- 01:01:10That patients and families know
- 01:01:12that we're here to support them,
- 01:01:14so we just try really hard to
- 01:01:16engage in any way possible.
- 01:01:18A lot of times.
- 01:01:19What's helpful if a patient
- 01:01:21is going to be admitted.
- 01:01:22I know sometimes our teams are asking,
- 01:01:25you know what? What would you like?
- 01:01:27I think setting up that plan ahead of time.
- 01:01:30Is there someone in particular you
- 01:01:32wants to give updates to every day?
- 01:01:34Is there someone that you want to make
- 01:01:37sure that I'm here when you call them too?
- 01:01:40To provide any answers to any of
- 01:01:43their questions that they have
- 01:01:44while you're talking to them on
- 01:01:46the phone or face timing them.
- 01:01:48So I think there's lots of ways
- 01:01:51that we are trying to engage.
- 01:01:53It is hard of it. Paula talked about this.
- 01:01:56Nancy talked about this.
- 01:01:57Our physicians on the line here,
- 01:01:59talked about it. It is.
- 01:02:01It is something that is just very
- 01:02:03difficult for all of us because
- 01:02:05it's something that we find so
- 01:02:07meaningful in our work and we
- 01:02:09want our families involved.
- 01:02:11In the Keran we get a lot of joy out
- 01:02:13of interacting with our patients,
- 01:02:15families and loved ones.
- 01:02:16So this is this is very difficult
- 01:02:18for us as well and we just want
- 01:02:20to connect anyway we can,
- 01:02:22so I would also say for any of the
- 01:02:24patients or family members on the line here,
- 01:02:27if there are any other suggestions
- 01:02:29for us on how we can interact with
- 01:02:31you and how we can engage with you,
- 01:02:33we would love to hear those as well.
- 01:02:36So please don't be shy about giving
- 01:02:38us your thoughts and ideas.
- 01:02:40Jim, thank you Apala.
- 01:02:42I think a very fair question.
- 01:02:44How are we screening our
- 01:02:46employees who are coming to work
- 01:02:49to make sure that everything is
- 01:02:51safe in our in our facilities?
- 01:02:55Absolutely, so all our employees
- 01:02:57are required to self check
- 01:02:59their temperatures twice daily.
- 01:03:01One prior to arriving to
- 01:03:03work and one after work.
- 01:03:06We also provided thermometers
- 01:03:08to those employees who were not
- 01:03:11able to afford a thermometer.
- 01:03:14We also had employed during the height
- 01:03:16of the pandemic a temperature check.
- 01:03:18Stations throughout all the
- 01:03:20network care center sites.
- 01:03:22Anytime an employee during their
- 01:03:24shift feels the least bit sick.
- 01:03:27Doesn't matter how insignificant
- 01:03:28it was a sneeze or cough or I'm
- 01:03:32just starting to get a headache.
- 01:03:35There immediately reported to the
- 01:03:37onsite leader and they are sent
- 01:03:39home and then they called our
- 01:03:42covid hotline for instructions.
- 01:03:44We have very detailed instructions
- 01:03:46as management team that is,
- 01:03:48but from our infection prevention
- 01:03:51experts at Yale.
- 01:03:52Related to exposure guidelines
- 01:03:53and we follow those to the T.
- 01:03:57Thank you Doctor Gomez question how?
- 01:04:01How does one access genetic testing,
- 01:04:04genetic counseling, and should all
- 01:04:07patients undergo genetic testing?
- 01:04:12So one of my my loves in in
- 01:04:14oncology is that we're really a
- 01:04:17team and something like tonight is
- 01:04:19the way we approach cancer care.
- 01:04:22And here at Yale, we have a strong
- 01:04:25genetics counseling team for me.
- 01:04:27There a click away and part of my
- 01:04:30assessment of patients is to obtain
- 01:04:32a very detailed family history
- 01:04:34that can give clues as to whether
- 01:04:37there is a familial syndrome.
- 01:04:39That this cancer may have elicited from
- 01:04:42or protein or risk to next generation.
- 01:04:45Once children or grandchildren or
- 01:04:47siblings as well. So that's number one.
- 01:04:50We've got a strong genetics team.
- 01:04:52To me it's a click away.
- 01:04:55It's part of my initial and
- 01:04:58subsequent evaluations of patient.
- 01:05:00Secondly,
- 01:05:01the next question is who gets tested or
- 01:05:04when does that conversation come up?
- 01:05:07I have a particular.
- 01:05:10Affinity,
- 01:05:10as you mentioned or or love
- 01:05:13and interest in GI cancers.
- 01:05:15And as you are all likely familiar
- 01:05:17'cause it was all over the newspaper.
- 01:05:20New York Times headlines over two years ago.
- 01:05:24Colon cancers are manifesting themselves
- 01:05:26in younger and younger patients.
- 01:05:28Patients who have not yet had
- 01:05:30their first colonoscopy as
- 01:05:31initially prescribed at age 50.
- 01:05:34So when we see younger breast
- 01:05:36cancers when we see colon
- 01:05:38cancer in younger individuals.
- 01:05:40When we see families where there's multiple
- 01:05:43members with similar or linked tumor types,
- 01:05:46all of that signals to us these flags
- 01:05:49and we begin the discussion of a
- 01:05:52deeper family history and a referral.
- 01:05:55Sometimes just to genetics,
- 01:05:57even if it's not the classic syndromes.
- 01:06:00But there's just some key members
- 01:06:03that should be further looked at
- 01:06:05and tested in addition to have
- 01:06:08patients who've had multiple cancers.
- 01:06:10Throughout their life and again,
- 01:06:12they're not syndromes that fall
- 01:06:14in link or textbook cases of
- 01:06:17pancreas or breast and ovarian.
- 01:06:19But that's just the fact that there's
- 01:06:21multiple cancers in an individual.
- 01:06:23I think that to warrant a consultation
- 01:06:25with our genetics team, once again,
- 01:06:27a team approach to cancer care.
- 01:06:30Great, thank you. Um?
- 01:06:32Doctor Martin, a question of if
- 01:06:34someone has been diagnosed with cancer
- 01:06:36and actually been treated for it.
- 01:06:38Are they at higher risk of getting
- 01:06:41covid and whether they are?
- 01:06:43They're not?
- 01:06:43What sort of things should they be
- 01:06:46doing to ensure that their risk
- 01:06:48of getting is as low as possible?
- 01:06:52Sure, thank you was the
- 01:06:54question that they are
- 01:06:55on treatment is.
- 01:06:56The question is specifically a patient
- 01:06:58I guess is completed treatment,
- 01:07:00but are they at higher risk of getting it?
- 01:07:03And I guess you could also speak to
- 01:07:05people even on treatment and what
- 01:07:07kind of things can they do to minimize
- 01:07:10their risk of getting it? Sure, sure.
- 01:07:12Yeah, that's a great question so you
- 01:07:15know for our patients with cancer who
- 01:07:17are actively undergoing treatment,
- 01:07:18such as chemotherapy,
- 01:07:19you know we do want to take extra
- 01:07:23precaution for those patients.
- 01:07:25You know, I think there's a number of
- 01:07:27things so that we are also aware of.
- 01:07:30You know that that increase the
- 01:07:32risk of of the severity of covid.
- 01:07:35I should also say things like
- 01:07:38more common health conditions,
- 01:07:39blood pressure and diabetes and obesity.
- 01:07:42So some you know,
- 01:07:43we often are looking at the total package,
- 01:07:47so to speak.
- 01:07:48You know we would continue to
- 01:07:50emphasize wearing masks and hand
- 01:07:53washing and practicing social
- 01:07:56distancing until you know we have.
- 01:07:58You know,
- 01:07:59and I think I think we just also
- 01:08:01want to address and see how
- 01:08:03some of the questions Doctor Fix
- 01:08:05in the in the chat about.
- 01:08:07You know the safety of the vaccine in
- 01:08:09patients with different types of cancers.
- 01:08:11And you know,
- 01:08:12I think just to clarify something
- 01:08:14I might have said before is,
- 01:08:16you know these are not the
- 01:08:17so far the vaccines that you
- 01:08:19mentioned previously or not.
- 01:08:21You know what we call live vaccines
- 01:08:22and so if we compare that to other
- 01:08:25non live vaccines that we use
- 01:08:27for you know previously I mean.
- 01:08:29We do.
- 01:08:29We do use those in patients with cancer,
- 01:08:32and so I'm optimistic that
- 01:08:33that's going to be our plan.
- 01:08:37Great, thank you.
- 01:08:41Thank you James. Two questions one.
- 01:08:43A very specific question, which is if
- 01:08:46you had radiation after a resection
- 01:08:48of your prostate for prostate cancer.
- 01:08:50Can you get radiation out areas and
- 01:08:53then another question that's come in is,
- 01:08:55you know there's been in the news notion
- 01:08:59of proton beam center and proton centers.
- 01:09:02You know what is that?
- 01:09:03Who should get it?
- 01:09:04Is it a good thing?
- 01:09:07So thanks for that question.
- 01:09:09So the first part you can you
- 01:09:11should not get re radiated to
- 01:09:13where the prostate used to be.
- 01:09:16If you got what's called salvage or adj
- 01:09:19event radiation to the prostate bed
- 01:09:21because we push the dose up to pretty
- 01:09:24much the maximum tolerated dose for an
- 01:09:26area that's been surgically reconnected.
- 01:09:28But you can get other spots radiated if
- 01:09:31cancer pops up in another spot, there's a.
- 01:09:35Entity called Oligo metastatic,
- 01:09:37which is increasingly talked about
- 01:09:39but basically means only a few
- 01:09:42sites of metastatic disease that's
- 01:09:44I would say relative.
- 01:09:45So knew that you should really have
- 01:09:48a conversation with your oncologist
- 01:09:50in your radiation oncologist about
- 01:09:52whether you qualify for radiation
- 01:09:54of those oligo metastatic sites.
- 01:09:56If you are having pain in a site.
- 01:10:01Oh, and then certainly we can
- 01:10:03radiate in the traditional manner.
- 01:10:04But sometimes the treatment of oligo
- 01:10:06metastases is a little more aggressive and
- 01:10:09using a little bit more radiation dose.
- 01:10:11But it's a conversation you should
- 01:10:13personalize with your provider now.
- 01:10:15The second question that you ask,
- 01:10:17Doctor Fuchs about proton beam.
- 01:10:19Proton beam is actually a technology
- 01:10:23that's been around since the 60s
- 01:10:26and mass general was using a huge
- 01:10:29cyclotron to treat in a kind of a.
- 01:10:32Unflexible way,
- 01:10:33I guess because of the technology
- 01:10:35at the time.
- 01:10:36Since then,
- 01:10:37the technology has been miniaturized,
- 01:10:39shaped, and an now there's second, 3rd,
- 01:10:42and 4th generation proton machines.
- 01:10:44Here in the state of Connecticut.
- 01:10:46I think we're actively.
- 01:10:47I mean,
- 01:10:48it's public record we're actively seeking
- 01:10:51to partner and build one of those machines.
- 01:10:54Simply because we think it's
- 01:10:56the right thing to do.
- 01:10:58I think the benefit of that technology
- 01:11:01is largely in kids with who you
- 01:11:04don't want to radiate any tiny
- 01:11:06amount of tissue unnecessarily,
- 01:11:09and there may be other benefits
- 01:11:12for adults as well.
- 01:11:14Folks with head neck cancers who require
- 01:11:17reradiation oesophageal cancers.
- 01:11:19Certain types of lung cancers.
- 01:11:21And maybe breast and prostate cancer,
- 01:11:24but those are a little bit more tricky
- 01:11:27because we do such a good job already.
- 01:11:30And so I think Yale is going to
- 01:11:33approach it in the right way,
- 01:11:36making it available to our patients
- 01:11:38while at the same time building up
- 01:11:41evidence to support its proper use
- 01:11:43so that we can be good stewards of
- 01:11:46everybody's health care dollars.
- 01:11:49Thank you.
- 01:11:51Nancy a patient asks who I guess had
- 01:11:55his who had a non localized Melanoma,
- 01:11:58removed surgically, who's getting exams,
- 01:12:01lymph node, checks blood work xrays
- 01:12:03but wants to know what is the latest
- 01:12:07research concerning getting an early
- 01:12:10diagnosis of recurrence of Melanoma.
- 01:12:13Well, we recommend that if you've had
- 01:12:16a Melanoma that you're followed by a
- 01:12:18dermatologist every three or six months,
- 01:12:20so that would be the first step
- 01:12:23in catching anything that changed
- 01:12:25on the surface of the skin.
- 01:12:27People have actually told us
- 01:12:29that they see a spot change and
- 01:12:31they call the dermatologist.
- 01:12:32So self examination is most important.
- 01:12:35Being away are now.
- 01:12:36If it's on your back and you have
- 01:12:39to have your partner or significant
- 01:12:41other participate in this of
- 01:12:43that's important so that there's.
- 01:12:45Over lines of communication
- 01:12:46within the family that keeps
- 01:12:48an eye on everyone's body.
- 01:12:50Surface area.
- 01:12:52But I think that to go back to what I'm
- 01:12:56driving at in a very long train here.
- 01:13:00The sooner we can get this,
- 01:13:02the sooner we can get it in and.
- 01:13:04Biopsied or resected the better off
- 01:13:06we all are Melanoma as you know is
- 01:13:08this is a sneaky little devil and it
- 01:13:11can pop up again in other places,
- 01:13:13so the more we can see it and keep
- 01:13:15track of it the better off we are.
- 01:13:19Thank you. Harvey,
- 01:13:20a question about access to support groups.
- 01:13:23You know what's this?
- 01:13:24You know you alluded to it,
- 01:13:26but it came in actually a couple of
- 01:13:28folks asked about the availability.
- 01:13:30How do they access it?
- 01:13:32How does it work in the current scenario?
- 01:13:35The pandemic?
- 01:13:36And could you elaborate a little bit on that?
- 01:13:40Here so so thank you for the question.
- 01:13:45The support groups.
- 01:13:48Really important for a lot of us
- 01:13:50when we're going through a crisis
- 01:13:52and it allows us the opportunity to.
- 01:13:55Share similar experiences and and
- 01:13:57talk about the ways that we cope.
- 01:14:00We have been offering my win
- 01:14:02smile as social workers have been
- 01:14:04offering virtual support groups.
- 01:14:06Those are available and probably the
- 01:14:09best way to access it is when is just to
- 01:14:12to be able to call the hospital and
- 01:14:16ask for the social work Department and we
- 01:14:19can connect in some of those support groups.
- 01:14:22I'm leaving just one second I'm going to.
- 01:14:25Pull up the phone number that will get
- 01:14:28the folks to the Social Department.
- 01:14:31So number is 203.
- 01:14:33688 2195 the number again is 203-688-2195.
- 01:14:37That's the social work Department and would
- 01:14:40be happy to connect it to a support group.
- 01:14:43Whether it's in the hospital,
- 01:14:45outside of the community.
- 01:14:48Great, thank you. To see Doctor Martin,
- 01:14:53you actually mentioned the fact
- 01:14:55that as we I guess, the meeting of
- 01:14:58the American Society of Hematology,
- 01:15:00where a lot of the latest
- 01:15:03advancements in the treatment of of.
- 01:15:05Blood cancers is being discussed as we speak.
- 01:15:08Anything you want to share in
- 01:15:10terms of some exciting things that
- 01:15:12you're seeing from that meeting?
- 01:15:15Sure, so so firstly we had so
- 01:15:17many of our own physicians at
- 01:15:19presenting really up-to-date,
- 01:15:21amazing research at the meeting.
- 01:15:24And we've got such a strong team here,
- 01:15:27so I was very proud to see that.
- 01:15:29I think some of the things that
- 01:15:32are happening are, you know,
- 01:15:33expanding use of of immunotherapy
- 01:15:35drugs into our blood cancers
- 01:15:36is a very exciting area.
- 01:15:40You know, I think there was a
- 01:15:43really interesting sessions talking
- 01:15:44about the role of what we call our
- 01:15:47microbiome and the role of you
- 01:15:48know that our our own bacteria.
- 01:15:50And are you know how that
- 01:15:52impacts our health overall and.
- 01:15:54Um our blood cancers and and you know,
- 01:15:58knew new combinations of dizzying numbers
- 01:16:00of combinations of drugs available.
- 01:16:02So I think the future is really bright,
- 01:16:05and I think I'm very proud to
- 01:16:08see that our own, you know,
- 01:16:11professors and doctors were a
- 01:16:13big part of the conference.
- 01:16:16Thank you.
- 01:16:19Doctor billingslea for
- 01:16:22patients who aren't having any
- 01:16:24symptoms that relate to Covid,
- 01:16:26but believe that they may have come in
- 01:16:30contact with somebody who is positive.
- 01:16:33What should they do?
- 01:16:39If I'm understanding the
- 01:16:41question correctly, you're asking about
- 01:16:43patients who have a known exposure who are
- 01:16:47undergoing treatment or undergoing treatment,
- 01:16:50but so at patient's follow patient
- 01:16:53who's who's who recognizes they've
- 01:16:55been near somebody who's positive,
- 01:16:58but they're not necessarily
- 01:16:59having symptoms themselves.
- 01:17:05For that group of patients.
- 01:17:09One of the things it is is.
- 01:17:13Particularly critical is the level
- 01:17:15of exposure and if it is where
- 01:17:19it is particularly difficult,
- 01:17:21is is for folks who have an
- 01:17:23exposure to a family member or a
- 01:17:27close relative where they have
- 01:17:29close and sustained exposure,
- 01:17:32and in those situations we are
- 01:17:34dealing with a greater likelihood
- 01:17:37of transmission and it's
- 01:17:39absolutely critical that in those
- 01:17:41situations people self quarantine.
- 01:17:44For a sustained period of time and
- 01:17:47we're still saying a full 14 days now.
- 01:17:51What I want people to be mindful of though,
- 01:17:54is that even if there is a risk,
- 01:17:58we still want you to be cared for,
- 01:18:01and that's where you need to be
- 01:18:04in contact with the your oncology
- 01:18:06providers offices and if necessary,
- 01:18:09we will see you in the SREC.
- 01:18:12The Smilow Rapid Evaluation Clinic
- 01:18:14where we can evaluate you or care for
- 01:18:18you in a very safe environment and not.
- 01:18:21Risk exposure to other patients.
- 01:18:25Thank you, well, I this isn't a question,
- 01:18:27but Nancy if you didn't see it,
- 01:18:30someone actually wrote not a
- 01:18:32question but a shout out to the
- 01:18:34amazing Nancy who is a wonderful,
- 01:18:36compassionate person in life saver so.
- 01:18:40High praise and well thank you.
- 01:18:43So um hobby, a question.
- 01:18:45I mean some folks you know.
- 01:18:47Obviously there are folks
- 01:18:49who who live with others,
- 01:18:50but there are patients we have who
- 01:18:53actually are single live alone.
- 01:18:55And this is a tough time.
- 01:18:57You know whether you're having dealing
- 01:18:59with cancer or not to be living alone.
- 01:19:02And what advice do you have for those?
- 01:19:07Thank you, so yeah,
- 01:19:09it's it's a tough situation.
- 01:19:11I think it's important to know that
- 01:19:14none of us are are alone that the
- 01:19:17folks on this panel Smilow hospital,
- 01:19:19social workers, and there are so
- 01:19:22many other resources that are
- 01:19:24available to all of us and at times
- 01:19:27I understand that we may feel.
- 01:19:29Overall, we're not.
- 01:19:31There's an opportunity for us to reach
- 01:19:34out and to be able to connect to these.
- 01:19:37Which is and so I encourage folks that
- 01:19:40are feeling that way to make the call
- 01:19:43into each out another risk for nothing.
- 01:19:49Thank you, let me just say
- 01:19:50that and we're going to.
- 01:19:52We're going to try to get to
- 01:19:54as many questions as possible,
- 01:19:55but there are a number of questions
- 01:19:57that a number of our panel so
- 01:20:00they tried to answer with.
- 01:20:01A variety of folks who have
- 01:20:04been diagnosed with him,
- 01:20:05a logically concedes colon
- 01:20:07cancer of variety of cancers.
- 01:20:09Asking, is it safe to get the vaccine?
- 01:20:12Will the vaccine work?
- 01:20:15Let me just say that this
- 01:20:17is an evolving field.
- 01:20:18First, the VAC vaccine is safe.
- 01:20:21As Doctor Martin alluded to,
- 01:20:23it's not an active virus,
- 01:20:25it's it's actually in some
- 01:20:28respects an RNA or or something
- 01:20:30like that that simply expresses
- 01:20:32the capsid protein is a protein,
- 01:20:35so you can't.
- 01:20:36You can't get Covid from the Covid vaccine,
- 01:20:40and there's reason to believe that
- 01:20:43the majority of people who get the
- 01:20:46vaccine will will benefit from it.
- 01:20:49To Doctor Martin's point earlier,
- 01:20:51the sort of sub studies the details on
- 01:20:53individuals with certain malignancies.
- 01:20:55Wonder when a bomber transplant,
- 01:20:57you know?
- 01:20:58I think that the level effectiveness
- 01:21:00still probably needs to be sorted out,
- 01:21:03but there's every reason to believe
- 01:21:05that people would benefit from it.
- 01:21:07You know when and how much remains
- 01:21:10to be determined,
- 01:21:11but my guess is when it
- 01:21:13becomes available in 2021,
- 01:21:15we're going to recommend that people
- 01:21:18get it because there's no risk to you.
- 01:21:21In terms of getting covid,
- 01:21:23one question that came up is,
- 01:21:25well, if you had covid.
- 01:21:28Should you get the vaccine
- 01:21:30and the answer is yes,
- 01:21:31because apparently the data that
- 01:21:33came out today from the Pfizer
- 01:21:35vaccine was there actually a
- 01:21:37number of people who had covid that
- 01:21:39still got in trial and they didn't
- 01:21:41appreciate they've been exposed to
- 01:21:43covid and there was no increased
- 01:21:45harm to getting the vaccine.
- 01:21:47Even if you had Coke so and we
- 01:21:49don't know how long immunity lasts,
- 01:21:52so there's no reason you can't
- 01:21:54get the vaccine.
- 01:21:56Another question came up, which is.
- 01:21:58I think this is an optimistic point of view.
- 01:22:01Is that if you get the vaccine,
- 01:22:03does that mean you don't have to
- 01:22:05wear a mask and that's a really
- 01:22:07interesting question and believe it or not,
- 01:22:09it's actually the title of a New
- 01:22:12York Times article today that I saw.
- 01:22:14So maybe that person saw the
- 01:22:16article and the New York Times.
- 01:22:18Not that they're necessarily the
- 01:22:19arbiters on this recommend that yes,
- 01:22:21you do have to wear a mask
- 01:22:23if you get the vaccine.
- 01:22:25Why?
- 01:22:25Because what we know is that
- 01:22:27it is protective.
- 01:22:28For you,
- 01:22:29but we don't know whether that
- 01:22:31stops you from even if you're
- 01:22:35asymptomatic from transmitting.
- 01:22:36So for now,
- 01:22:37when you and we're all hopefully going
- 01:22:39to get this vaccine when you get it
- 01:22:42until further instructions come,
- 01:22:44we're still going to have to wear a
- 01:22:46mask until everyone says it's safe.
- 01:22:49So and I know, you know,
- 01:22:51I can let me just tell you there's a lot
- 01:22:53of great questions about the vaccine
- 01:22:56when it's going to be available,
- 01:22:58and I think what we know is it's safe.
- 01:23:02Yeah, 95% effective and people
- 01:23:03ask what does that mean?
- 01:23:05It means that compared to the
- 01:23:07people who got the placebo,
- 01:23:09there was a 95% reduction in their risk of
- 01:23:11getting covid and Moreover the data says
- 01:23:13that even for the rare individual got it,
- 01:23:16their case was far less severe.
- 01:23:18This is really exciting and
- 01:23:20it's really encouraging.
- 01:23:21So I I think that you know it.
- 01:23:23It offers a lot of hope.
- 01:23:27You know, I think there's probably as much.
- 01:23:29I mean our colleague.
- 01:23:31Any of my colleagues can
- 01:23:32comment on the vaccine war,
- 01:23:34'cause I know so many questions have come in.
- 01:23:37We're going to learn more,
- 01:23:39but so far all the news,
- 01:23:41including today's is good.
- 01:23:42And you know, you can ask,
- 01:23:44you know, ask your doctor,
- 01:23:45your nurse, your providers.
- 01:23:47We will continue to have these forms and
- 01:23:49keep you informed about the vaccine.
- 01:23:51And just as soon as we can,
- 01:23:54we're going to make it available to you so.
- 01:23:57Stay tuned,
- 01:23:57you know the cavalry is on his way,
- 01:24:00but I just I just wanted to
- 01:24:03interrupt the flow just because so
- 01:24:05many good questions are coming up.
- 01:24:08And obviously, we're we're.
- 01:24:10We're committed to making sure
- 01:24:13that you get access to that.
- 01:24:18Nancy, you know, actually,
- 01:24:19maybe because you're on the line.
- 01:24:21Alot of questions about Melanoma too.
- 01:24:23Probably see coming through some of
- 01:24:25which we relate to immunotherapy.
- 01:24:27And and I, you know,
- 01:24:29I suppose there's there's several of them.
- 01:24:31And so maybe as opposed to covering
- 01:24:33each one and specifically,
- 01:24:35maybe you can just give us a
- 01:24:37thumbnail on, you, know,
- 01:24:39the state of immunotherapy for for
- 01:24:41Melanoma and where you see that going. I
- 01:24:44see it as a very promising future for us.
- 01:24:48The anti PD one zanan and all of
- 01:24:51the newest treatments are amazing.
- 01:24:54Doctor Olino is using T back which
- 01:24:57is an injection into the tumors
- 01:25:00themselves which has been very
- 01:25:02promising little off label but she's
- 01:25:05had great results with it so there's
- 01:25:08a lot of new things on the horizon
- 01:25:12and I think when Doctor Arian.
- 01:25:15Started the Department.
- 01:25:16There wasn't as much to offer people today.
- 01:25:19There is a lot to offer.
- 01:25:22Someone who has a Melanoma.
- 01:25:26I I can't give you specifics or
- 01:25:28not the top of my head I get so
- 01:25:31excited that I get overwhelmed,
- 01:25:33but there's there's always knew an positive
- 01:25:35things happening within the Department.
- 01:25:38Yeah, no idea. I think it's it's so true.
- 01:25:41I mean, we've you all have done
- 01:25:43a really exciting work and it's
- 01:25:45obviously changed the landscape
- 01:25:46and given a lot of patients.
- 01:25:48Hope so. Thank you.
- 01:25:52James I I store question fly by I don't
- 01:25:54know if you saw it about sort of an
- 01:25:57ultrasound approach for prostate and
- 01:25:59you know maybe you saw the question.
- 01:26:02I'm sorry I'm digging through,
- 01:26:03but maybe you know
- 01:26:05I I answered it.
- 01:26:08I I'm not aware of HIFU being used,
- 01:26:11but I do know Doctor Preston Sprenkle and
- 01:26:14the folks in urology are looking into
- 01:26:17what's called focal partial gland therapy.
- 01:26:19I know he's used cryotherapy in the past
- 01:26:22and there's they're working on potentially
- 01:26:25other techniques we I think as a group,
- 01:26:28largely think of it as in the
- 01:26:30experimental range and not really a
- 01:26:33whole gland there a curatives treatment,
- 01:26:35but it's something under
- 01:26:37investigation and I would encourage.
- 01:26:39Reaching out to one of the urologists here,
- 01:26:42Doctor Preston Sprinkle comes to
- 01:26:44mind as somebody who could comment
- 01:26:46about vocal therapy.
- 01:26:47Partial gland treatment,
- 01:26:49including HIFU for prostate cancer.
- 01:26:51Thank you,
- 01:26:51Kim. There was a question about you,
- 01:26:54know whether we're all we're back,
- 01:26:56practicing and swallowing,
- 01:26:57and maybe you can answer that
- 01:27:00question directly, but also,
- 01:27:01you know, given the fact that when
- 01:27:04there was a surgeon April we had
- 01:27:07to move off some floors and your.
- 01:27:09Thoughts about where we're going now?
- 01:27:13Sure, Charlie, thank you. So we
- 01:27:16have most of our care back
- 01:27:19in their original locations,
- 01:27:21but there are still some clinics and
- 01:27:23some of our infusion services that are
- 01:27:26still in our satellite locations that
- 01:27:29were originally in the Smilow Cancer
- 01:27:32Hospital and that is really due to the
- 01:27:36number of patients that are the non
- 01:27:39cancer patient population at Yale,
- 01:27:41New Haven Hospital.
- 01:27:43So we are staying.
- 01:27:45We are continuing having
- 01:27:46some of those clinics,
- 01:27:48and some of those infusion services
- 01:27:50off of the main campus to accommodate
- 01:27:53the care that we need to provide
- 01:27:56not only to covid patients,
- 01:27:58but because of the increase in covid.
- 01:28:00With this second surge,
- 01:28:02it's other patients requiring
- 01:28:04hospital care that we're needing
- 01:28:06to make sure that we have room
- 01:28:08for on York Street campus, so.
- 01:28:11So that is something that we watch daily.
- 01:28:16We hope that we have a good plan in place.
- 01:28:19The hospital has really then the
- 01:28:22entire health system has really
- 01:28:24done a great job and trying to make
- 01:28:26sure that we are not disrupting
- 01:28:29services unless absolutely needed.
- 01:28:30So we do have a strong plan in place as
- 01:28:34the covid as the second wave continues.
- 01:28:37We have been doing a lot of
- 01:28:39predictive modeling and we're really
- 01:28:41hopeful that that we won't have to
- 01:28:44do a whole lot of more movement.
- 01:28:47Again,
- 01:28:47we're living through something that
- 01:28:49none of us have ever lived through
- 01:28:52before so we never can say never.
- 01:28:54But we are hopeful that we can continue
- 01:28:57the way we're delivering our care right now,
- 01:29:00and that at some point we will return
- 01:29:03those other services back to the York
- 01:29:06Street campus and continue with our
- 01:29:08robust network sites as well so you know,
- 01:29:11we have our eye on the future while we're
- 01:29:14continuing to manage through this, but.
- 01:29:16We have really an eye.
- 01:29:19I think somebody mentioned this before that
- 01:29:20we really do appreciate the flexibility.
- 01:29:23I think it was Doctor Gomez
- 01:29:25that mentioned this.
- 01:29:26The flexibility of our patients,
- 01:29:27they really have gone through a
- 01:29:29lot with us through this and there
- 01:29:32are times where we have to notify
- 01:29:34patients quickly that things are
- 01:29:35going to change a little.
- 01:29:37We are really trying to minimize that
- 01:29:39as much as possible and feel like
- 01:29:41we're going in a pretty good place right now,
- 01:29:44but we do always have to have a cautious I.
- 01:29:48Great thank you Paula. Sort of.
- 01:29:51On a related note, given the
- 01:29:54numbers creeping up again in covid,
- 01:29:56any changes you anticipate
- 01:29:58across the Care center network.
- 01:30:01Well, certainly we
- 01:30:02want to make sure that the right visit
- 01:30:05type is given to the right patient with
- 01:30:07the right physician at the right time.
- 01:30:10So we do look at our schedules ahead
- 01:30:12of time and there likely will be some
- 01:30:15patients that will be asked to do a Tele
- 01:30:18health visit either by phone or video.
- 01:30:21That is about to change to
- 01:30:22a new platform zoom.
- 01:30:24So we're hoping that some of the
- 01:30:26technology glitches that we experienced
- 01:30:28with the current platform will be
- 01:30:30illuminated with the zoom platform
- 01:30:32because we know it's disappointing
- 01:30:33when you can't see your physician
- 01:30:35and he or she cannot see you,
- 01:30:38but again, those will be selected on.
- 01:30:40Patients that it's the right type of
- 01:30:42visit for them right now and all the
- 01:30:45network sites and at the 20 York Street
- 01:30:47North Pavilion were all following very
- 01:30:50strict social distancing guidelines.
- 01:30:51So we're flexing our staff in and out of our
- 01:30:54locations that includes our support team.
- 01:30:56So when we have high volumes of
- 01:30:59social work needs or making sure
- 01:31:01that we're moving someone out in a
- 01:31:03staff around to move that social
- 01:31:05worker in so that we can provide
- 01:31:07our patients everything they need.
- 01:31:09Data site but I don't anticipate many.
- 01:31:11More changes to our patients other
- 01:31:13than we're just continue to ask for
- 01:31:16that patience on our pre screening
- 01:31:17and at the door screening and that
- 01:31:20we continue to monitor our visitors.
- 01:31:22'cause we do work in very enclosed spaces
- 01:31:24and we just want to keep everybody safe.
- 01:31:28Thank you Paula Kevin.
- 01:31:29I I I I may have created this confusion
- 01:31:31when I asked you the question
- 01:31:33about the Governor of Massachusetts
- 01:31:36slowing down elective surgeries,
- 01:31:38a question a couple of questions came
- 01:31:40up as his cancer surgery elective.
- 01:31:42I mean is is that the is that
- 01:31:45fall in that bailiwicks?
- 01:31:47Maybe you could clarify
- 01:31:48that for the audience.
- 01:31:54I it's not a straightforward
- 01:31:57question to answer.
- 01:31:59By strict criteria.
- 01:32:05Much of cancer surgery we would.
- 01:32:09Neroly define is elective,
- 01:32:12meaning that it is not an acute surgical
- 01:32:17emergency caused by something such as.
- 01:32:22Bleeding or intestinal obstruction.
- 01:32:26However, is any of us recognize?
- 01:32:32When you are a patient or family,
- 01:32:34there is nothing about.
- 01:32:37Cancer care or cancer surgery that.
- 01:32:41Feels or can be considered elective.
- 01:32:45So. Although.
- 01:32:49That terminology may be applied.
- 01:32:54I would not say that we.
- 01:32:57On our surgical teams here,
- 01:32:59consider any procedure for
- 01:33:01cancer truly elective.
- 01:33:02We would say that.
- 01:33:05That that is.
- 01:33:07At least urgent.
- 01:33:10Thank
- 01:33:10you, well, you know it's it's just about
- 01:33:138:00 o'clock and I think everyone will
- 01:33:15will probably call it a quick call.
- 01:33:18It quits at this time,
- 01:33:20but let me just first and foremost thank
- 01:33:23our extraordinary panel of experts for
- 01:33:25taking the time to answer questions and
- 01:33:28share your insights with with our audience.
- 01:33:30We really pleased we had a extraordinary
- 01:33:33turn out this evening and and Renee.
- 01:33:35Correct me if I'm wrong.
- 01:33:37'cause the questions came up.
- 01:33:39This is being recorded. Correct?
- 01:33:42Yes, will post it on line tomorrow.
- 01:33:44Yeah, so it will be available for folks
- 01:33:46who weren't able to watch tonight.
- 01:33:48If you want to let people know,
- 01:33:50but let me just thank everyone.
- 01:33:52Patients and families who took the
- 01:33:54time to join us. This has been.
- 01:33:57To say the least.
- 01:33:59Extraordinary times this year,
- 01:34:00it's hard enough
- 01:34:01having cancer. Or caring
- 01:34:03for somebody you care about this cancer.
- 01:34:06And doing that in the midst
- 01:34:08of what is one of the greatest
- 01:34:10public health crises and century.
- 01:34:12It's pretty tough. But you know,
- 01:34:14know for sure that we're all here for you.
- 01:34:18This forum will continue to keep you
- 01:34:20informed were always available as a
- 01:34:23resource and let me just say that.
- 01:34:26Your courage is patients and
- 01:34:28families dealing with this.
- 01:34:29You inspires, and it's what gives us joy
- 01:34:33in our work is to work with all of you.
- 01:34:36So on that note as we now,
- 01:34:39this will probably our last
- 01:34:41patient family form for the for
- 01:34:43the year before the Holidays.
- 01:34:45So to our panelists,
- 01:34:47to our patients and families wish you a safe,
- 01:34:50healthy holiday season.
- 01:34:52Really exciting things coming.
- 01:34:53I think 2021 with the vaccine and.
- 01:34:56At hopefully life back to normal,
- 01:34:58so a lot to look forward for
- 01:35:00the two and four, so thank you.
- 01:35:03Thank you everyone and have a good night.