2025
Association Between Health Care Discrimination and Medical Mistrust Among Black Assigned Female at Birth Adults with Minoritized Sexual and Gender Identities in the United States
Noh M, Mehta N, Kim C, Bond K, Threats M, Jackson J, Nnawulezi N, Agénor M. Association Between Health Care Discrimination and Medical Mistrust Among Black Assigned Female at Birth Adults with Minoritized Sexual and Gender Identities in the United States. LGBT Health 2025 PMID: 39911034, DOI: 10.1089/lgbt.2024.0263.Peer-Reviewed Original ResearchHealth care discriminationMedical Mistrust IndexWeight-based discriminationMedical mistrustLevels of medical mistrustHealth care experiencesHealth care factorsHealth care outcomesHealth care inequitiesHealth care settingsCross-sectional online surveyAdverse health outcomesMultivariate linear regressionCare outcomesEquitable careCare inequitiesCare factorsCare settingsHealth outcomesAll-causeSGM communityAnalytic sampleRace/ethnicity-United StatesHealth
2024
Antitrans Policy Environment and Depression and Anxiety Symptoms in Transgender and Nonbinary Adults
Restar A, Layland E, Hughes L, Dusic E, Lucas R, Bambilla A, Martin A, Shook A, Karrington B, Schwarz D, Shimkin G, Grandberry V, Xanadu X, Streed C, Operario D, Gamarel K, Kershaw T. Antitrans Policy Environment and Depression and Anxiety Symptoms in Transgender and Nonbinary Adults. JAMA Network Open 2024, 7: e2431306. PMID: 39172447, PMCID: PMC11342136, DOI: 10.1001/jamanetworkopen.2024.31306.Peer-Reviewed Original ResearchConceptsHealth care accessMental health outcomesCurrent depressive symptomsAnxiety symptomsCare accessHealth outcomesDepressive symptomsTrans adultsPatient Health Questionnaire-4Worsening mental health outcomesHealth care experiencesOdds of depressionTrans individualsAssociated with depressionNegative mental health consequencesCross-sectional studyPolicy environmentSeries of multivariate regression modelsCross-sectional dataCare experiencesTrans healthMultivariate regression modelMain OutcomesNonbinary adultsPrimary outcomeHealth Care for Youth With Neurodevelopmental Disabilities: A Consensus Statement.
Weitzman C, Nadler C, Blum N, Augustyn M. Health Care for Youth With Neurodevelopmental Disabilities: A Consensus Statement. Pediatrics 2024, 153 PMID: 38596852, DOI: 10.1542/peds.2023-063809.Peer-Reviewed Original ResearchConceptsHealth careConsensus statementSafe care deliveryCaregivers of individualsHealth care experiencesHealth care barriersNominal group techniqueConsensus panel membersPediatric research networkHealth care billCare barriersSafe careCare deliveryCare experiencesHealth outcomesNeurodevelopmental disabilitiesEvidence-informedImprove equitySupport accessCommunity advocatesCare BillCareSteering CommitteeConsensus panelHealth
2023
Illness Perception and the Impact of a Definitive Diagnosis on Women With Ischemia and No Obstructive Coronary Artery Disease: A Qualitative Study.
Tseng L, Göç N, Schwann A, Cherlin E, Kunnirickal S, Odanovic N, Curry L, Shah S, Spatz E. Illness Perception and the Impact of a Definitive Diagnosis on Women With Ischemia and No Obstructive Coronary Artery Disease: A Qualitative Study. Circulation Cardiovascular Quality And Outcomes 2023, 16: 521-529. PMID: 37476997, DOI: 10.1161/circoutcomes.122.009834.Peer-Reviewed Original ResearchConceptsObstructive coronary artery diseaseCoronary function testingCoronary artery diseaseInvasive coronary angiographyArtery diseaseCoronary angiographyFunction testingDefinitive diagnosisYale-New Haven HospitalNon-Hispanic blacksMore patient-centered careNew Haven HospitalPatient-centered careStructured telephone interviewQuality of lifeHealth care experiencesNon-Hispanic whitesGroup of womenCoronary functionIllness perceptionsMean ageINOCAUncertain causeMultidisciplinary teamPatient care
2021
Exploring the bidirectional relationship between chronic disease and depression among female Syrian refugees and Jordanians: a qualitative analysis.
Sharp M, Kara J, Almidani S, Ahram M, Mahmoud R, Khoshnood K. Exploring the bidirectional relationship between chronic disease and depression among female Syrian refugees and Jordanians: a qualitative analysis. Eastern Mediterranean Health Journal 2021, 27: 1153-1161. PMID: 35137383, DOI: 10.26719/emhj.21.017.Peer-Reviewed Original ResearchConceptsChronic diseasesJordanian womenChronic illnessBidirectional relationshipMental healthIntersection of depressionNegative health care experiencesChronic disease interventionsHealth care experiencesSyrian womenContributors of morbidityComorbid depressionChronic conditionsFemale Syrian refugeesHealth care structuresMedical careNeuropsychiatric conditionsCare experiencesClinical settingDiseaseDisease interventionCare structuresWomenHealth careSensitive interventions
2020
1644. “And the stick to fight TB is IPT”: Perspectives on TPT Implementation Among Senior Nurses in Rural South Africa
Grammatico M, Ahmed A, Grau L, Moll A, Shenoi S. 1644. “And the stick to fight TB is IPT”: Perspectives on TPT Implementation Among Senior Nurses in Rural South Africa. Open Forum Infectious Diseases 2020, 7: s811-s811. PMCID: PMC7777536, DOI: 10.1093/ofid/ofaa439.1824.Peer-Reviewed Original ResearchIsoniazid preventive therapyWorld Health OrganizationPreventative therapyMedian age 39 yearsSenior nursesTB preventative therapyPatient-level factorsPrimary health clinicsPrimary care clinicsAge 39 yearsHigh-volume clinicsHealth care experiencesResource-limited settingsBackground TuberculosisAntiretroviral therapyHigh tuberculosisChronic medicationsPill burdenPreventive therapyTB burdenHigh HIVCare clinicsConclusion NursesHIV prevalenceStandardized training program
2018
Communication in the Chinese doctor–patient–family relationship: a qualitative study of expectations and experiences in a breast surgery setting
Xiao S, Wang L, Liu X, Khoshnood K, Edelman E. Communication in the Chinese doctor–patient–family relationship: a qualitative study of expectations and experiences in a breast surgery setting. The Lancet Global Health 2018, 6: s53. DOI: 10.1016/s2214-109x(18)30182-7.Peer-Reviewed Original ResearchBreast surgeonsTertiary level teaching hospitalFamily membersPatient-centered experienceHealth care experiencesSurgical patientsBreast surgeryPatient populationTeaching hospitalPatientsQualitative studyConvenience sampleSurgeryPublic healthSurgeonsDoctorsFamily relationshipsThematic analysisProvidersMedical relationshipsSemi-structured interviewsYale SchoolEmergent themesInpatientsUnmet expectations
2015
Hospital Use in the Last Year of Life for Children With Life-Threatening Complex Chronic Conditions
Ananth P, Melvin P, Feudtner C, Wolfe J, Berry JG. Hospital Use in the Last Year of Life for Children With Life-Threatening Complex Chronic Conditions. Pediatrics 2015, 136: 938-946. PMID: 26438707, PMCID: PMC4621793, DOI: 10.1542/peds.2015-0260.Peer-Reviewed Original ResearchConceptsComplex chronic conditionsHospital useChronic conditionsPediatric Health Information System databaseHealth Information System databaseClinical Modification codesUS children's hospitalsHospital resource useCostly health careHealth care experiencesHematologic/Terminal admissionEnd of lifeUnderwent surgeryHospital daysHospital admissionImmunologic conditionsChildren's HospitalHospital costsInformation System databaseRetrospective analysisInternational ClassificationCare experiencesAdmissionHealth care
2013
Does health care role and experience influence perception of safety culture related to preventing infections?
Braun BI, Harris AD, Richards CL, Belton BM, Dembry LM, Morton DJ, Xiao Y. Does health care role and experience influence perception of safety culture related to preventing infections? American Journal Of Infection Control 2013, 41: 638-641. PMID: 23809690, DOI: 10.1016/j.ajic.2012.09.006.Peer-Reviewed Original ResearchPatient experiences with inpatient care in rural China
Sipsma H, Liu Y, Wang H, Zhu Y, Xue L, Alpern R, Dale M, Bradley E. Patient experiences with inpatient care in rural China. International Journal For Quality In Health Care 2013, 25: 452-458. PMID: 23811313, DOI: 10.1093/intqhc/mzt046.Peer-Reviewed Original ResearchConceptsCounty-level hospitalsPatient ratingsPatient experienceInpatient careHospital typeSociodemographic characteristicsHospital inpatient careCross-sectional studyHealth care experiencesOverall patient ratingsPatient evaluationHospital careMultivariable modelOutcome measuresCare experiencesHospitalLogistic regressionHealth systemCareNotable proportionRural ChinaRoutine monitoringHousehold membersParticipantsAssociationA National Study of Racial Differences in Pain Screening Rates in the VA Health Care System
Burgess DJ, Gravely AA, Nelson DB, van Ryn M, Bair MJ, Kerns RD, Higgins DM, Partin MR. A National Study of Racial Differences in Pain Screening Rates in the VA Health Care System. The Clinical Journal Of Pain 2013, 29: 118-123. PMID: 23183265, DOI: 10.1097/ajp.0b013e31826a86ae.Peer-Reviewed Original ResearchConceptsPrimary care patientsHealth care utilizationBlack patientsHealth care experiencesIndex visitCare patientsScreening ratesCare utilizationOdds ratioCare experiencesPrior health care utilizationVA health care systemPatient's index visitVeterans Affairs patientsDocumentation of painLogistic regression analysisElectronic medical recordsCross-sectional analysisHierarchical logistic regression analysisHealth care systemPain medicationPain scoresWhite patientsOutpatient visitsVA patients
2012
Structured contraceptive counseling provided by the Contraceptive CHOICE Project
Madden T, Mullersman J, Omvig K, Secura G, Peipert J. Structured contraceptive counseling provided by the Contraceptive CHOICE Project. Contraception 2012, 88: 243-249. PMID: 22959396, PMCID: PMC3660507, DOI: 10.1016/j.contraception.2012.07.015.Peer-Reviewed Original ResearchConceptsContraceptive counselingContraceptive CHOICE ProjectReversible contraceptionPartner clinicsContraceptive methodsFormal health care trainingStructured contraceptive counselingCHOICE ProjectHealth care experiencesPrior health care experienceHealth care trainingIntrauterine deviceSubdermal implants
2011
Lost in Translation: Reproductive Health Care Experiences of Somali Bantu Women in Hartford, Connecticut
Gurnah K, Khoshnood K, Bradley E, Yuan C. Lost in Translation: Reproductive Health Care Experiences of Somali Bantu Women in Hartford, Connecticut. Journal Of Midwifery & Women's Health 2011, 56: 340-346. PMID: 21733104, DOI: 10.1111/j.1542-2011.2011.00028.x.Peer-Reviewed Original ResearchConceptsSomali Bantu womenReproductive health care experiencesReproductive health care servicesPatient-provider discordanceReproductive health problemsUnmet health needsHealth care outcomesHealth care experiencesHealth care servicesReproductive health programsFamily planning servicesReproductive health experiencesHealth care systemWomen's morbidityCare outcomesCare servicesHealth problemsHealth needsHealth programsCare experiencesSex discordanceCultural discordanceCare systemPlanning servicesVulnerable populationsHow Do the Experiences of Medicare Beneficiary Subgroups Differ between Managed Care and Original Medicare?
Elliott MN, Haviland AM, Orr N, Hambarsoomian K, Cleary PD. How Do the Experiences of Medicare Beneficiary Subgroups Differ between Managed Care and Original Medicare? Health Services Research 2011, 46: 1039-1058. PMID: 21306370, PMCID: PMC3165177, DOI: 10.1111/j.1475-6773.2011.01245.x.Peer-Reviewed Original ResearchConceptsFair self-rated healthHealth care providersSubgroup characteristicsSelf-rated healthHealth care experiencesLow-income subsidyMedicare Consumer AssessmentUniform careCare scoresAge 85Care providersMedicare beneficiariesService MedicareCare experiencesCAHPS measuresConsumer AssessmentHigh school degreeCareSystem surveyParticular subgroupManaged CareAssessed differencesTraditional feeLow incomeSignificant positive interaction
2008
Case‐Mix Adjustment of Consumer Reports about Managed Behavioral Health Care and Health Plans
Eselius LL, Cleary PD, Zaslavsky AM, Huskamp HA, Busch SH. Case‐Mix Adjustment of Consumer Reports about Managed Behavioral Health Care and Health Plans. Health Services Research 2008, 43: 2014-2032. PMID: 18783456, PMCID: PMC2613989, DOI: 10.1111/j.1475-6773.2008.00894.x.Peer-Reviewed Original ResearchConceptsCase-mix adjustmentBehavioral health careHealth statusHealth plansPatient reportsSelf-reported general health statusSelf-reported mental health statusAlcohol/drug treatmentGeneral health statusHealth careHealth Outcomes SurveyBehavioral health plansMental health statusCase-mix adjustment modelExperience of careHealth care experiencesRace/ethnicityPatient characteristicsDrug treatmentOutcome SurveyCare experiencesPoor healthPlan rankingsReport scoresGood health
2000
Providing Consumers with Information About the Quality of Health Plans: The Consumer Assessment of Health Plans Demonstration in Washington State
Guadagnoli E, Epstein A, Zaslavsky A, Shaul J, Veroff D, Fowler F, Cleary P. Providing Consumers with Information About the Quality of Health Plans: The Consumer Assessment of Health Plans Demonstration in Washington State. The Joint Commission Journal On Quality And Patient Safety 2000, 26: 410-420. PMID: 10897458, DOI: 10.1016/s1070-3241(00)26034-3.Peer-Reviewed Original Research
1999
The Impact of Having Parents Report About Both Their Own and Their Children's Experiences With Health Insurance Plans
Shaul J, Fowler F, Zaslavsky A, Homer C, Gallagher P, Cleary P. The Impact of Having Parents Report About Both Their Own and Their Children's Experiences With Health Insurance Plans. Medical Care 1999, 37: ms59-ms68. PMID: 10098560, DOI: 10.1097/00005650-199903001-00007.Peer-Reviewed Original ResearchMeSH KeywordsAdultChildChild Health ServicesConsumer BehaviorCost-Benefit AnalysisData CollectionFemaleFollow-Up StudiesHealth Benefit Plans, EmployeeHealth Care SurveysHumansMaleParentsPilot ProjectsQuality of Health CareReproducibility of ResultsSurveys and QuestionnairesTime FactorsUnited StatesUnited States Agency for Healthcare Research and QualityWashingtonConceptsHealth care experiencesLow response rateOwn careResponse rateChild health careChildren surveyHealth insurance plansStudy groupCare experiencesPattern of responseHealth plansTelephone interviewsCareHealth careLatter groupInsurance plansAdultsSurvey questionsWeak associationParent reportPositive responseSurvey administrationChildrenAssociationChild care
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