2024
Antitrans Policy Environment and Depression and Anxiety Symptoms in Transgender and Nonbinary Adults
Restar A, Layland E, Hughes L, Dusic E, Lucas R, Bambilla A, Martin A, Shook A, Karrington B, Schwarz D, Shimkin G, Grandberry V, Xanadu X, Streed C, Operario D, Gamarel K, Kershaw T. Antitrans Policy Environment and Depression and Anxiety Symptoms in Transgender and Nonbinary Adults. JAMA Network Open 2024, 7: e2431306. PMID: 39172447, PMCID: PMC11342136, DOI: 10.1001/jamanetworkopen.2024.31306.Peer-Reviewed Original ResearchConceptsHealth care accessMental health outcomesCurrent depressive symptomsAnxiety symptomsCare accessHealth outcomesDepressive symptomsTrans adultsPatient Health Questionnaire-4Worsening mental health outcomesHealth care experiencesOdds of depressionTrans individualsAssociated with depressionNegative mental health consequencesCross-sectional studyPolicy environmentSeries of multivariate regression modelsCross-sectional dataCare experiencesTrans healthMultivariate regression modelMain OutcomesNonbinary adultsPrimary outcomeProject BOOST®: A Comprehensive Program to Improve Discharge Coordination for Geriatric Patients
Li J, Williams M, Young R. Project BOOST®: A Comprehensive Program to Improve Discharge Coordination for Geriatric Patients. 2024, 113-121. DOI: 10.1007/978-3-031-56204-4_10.Peer-Reviewed Original ResearchFee-for-serviceOlder adultsChronically ill older adultsLow health literacyFragmentation of careIll older adultsMedicare fee-for-serviceComplex medical needsAbsent social supportAssociated with hospitalizationCare transitionsHealth literacyDischarge coordinatorCaregiver stressCare experiencesSocial supportHealth statusPatient ratingsHospital dischargeRehospitalization ratesCareSystem issuesComprehensive programGeriatric patientsCaregiversMaternal stress and breastfeeding outcomes in the NICU couplet care experience: a prospective cohort study
Doughty K, Nichols C, Henry C, Shabanova V, Taylor S. Maternal stress and breastfeeding outcomes in the NICU couplet care experience: a prospective cohort study. Journal Of Perinatology 2024, 44: 1624-1629. PMID: 38755256, DOI: 10.1038/s41372-024-02000-7.Peer-Reviewed Original ResearchNeonatal intensive care unitProspective cohort studyBreastfeeding outcomesCouplet careCohort studyInfant length of stayNICU-related stressMaternal stressIntensive care unitLength of stayGestational ageInfant lengthStudy designWeMother-infant dyadsInfant feeding outcomesCare unitFeeding outcomesPostpartum careCare dyadsBreastfeedingCare experiencesTraditional careParent-infant relationshipMarital statusInfantsSurvivorship Care for People Affected by Advanced or Metastatic Cancer: MASCC-ASCO Standards and Practice Recommendations
Hart N, Nekhlyudov L, Smith T, Yee J, Fitch M, Crawford G, Koczwara B, Ashbury F, Lustberg M, Mollica M, Smith A, Jefford M, Chino F, Zon R, Agar M, Chan R. Survivorship Care for People Affected by Advanced or Metastatic Cancer: MASCC-ASCO Standards and Practice Recommendations. JCO Oncology Practice 2024, 20: 1160-1172. PMID: 38684036, DOI: 10.1200/op.23.00716.Peer-Reviewed Original ResearchQuality survivorship careSurvivorship carePractice recommendationsUnmet supportive care needsPalliative care frameworkSupportive care needsSystematic reviewModified Delphi consensus processPerson-centered careEnd of lifeData-driven careMultinational Association for Supportive CareDelphi consensus processSupportive careCancer survivorshipCare goalsIntegrated careCare experiencesCare needsCare frameworkHealth outcomesCommunicating careResourcing carePerson-centeredConsensus processSurvivorship care for people affected by advanced or metastatic cancer: MASCC-ASCO standards and practice recommendations
Hart N, Nekhlyudov L, Smith T, Yee J, Fitch M, Crawford G, Koczwara B, Ashbury F, Lustberg M, Mollica M, Smith A, Jefford M, Chino F, Zon R, Agar M, Chan R. Survivorship care for people affected by advanced or metastatic cancer: MASCC-ASCO standards and practice recommendations. Supportive Care In Cancer 2024, 32: 313. PMID: 38679639, PMCID: PMC11056340, DOI: 10.1007/s00520-024-08465-8.Peer-Reviewed Original ResearchConceptsQuality survivorship careSurvivorship carePractice recommendationsUnmet supportive care needsPalliative care frameworkSupportive care needsSystematic reviewModified Delphi consensus processEnd-of-lifeResultsA systematic reviewDelphi consensus processMethodsAn expert panelCancer survivorshipCare goalsCancer careCare experiencesCare needsCare frameworkHealth outcomesASCO membersConsensus processCareDelphi studyExpert panelMetastatic cancerHealth Care for Youth With Neurodevelopmental Disabilities: A Consensus Statement.
Weitzman C, Nadler C, Blum N, Augustyn M. Health Care for Youth With Neurodevelopmental Disabilities: A Consensus Statement. Pediatrics 2024, 153 PMID: 38596852, DOI: 10.1542/peds.2023-063809.Peer-Reviewed Original ResearchConceptsHealth careConsensus statementSafe care deliveryCaregivers of individualsHealth care experiencesHealth care barriersNominal group techniqueConsensus panel membersPediatric research networkHealth care billCare barriersSafe careCare deliveryCare experiencesHealth outcomesNeurodevelopmental disabilitiesEvidence-informedImprove equitySupport accessCommunity advocatesCare BillCareSteering CommitteeConsensus panelHealthExploring the lived experience of receiving mental health crisis care at emergency departments, crisis phone lines and crisis care alternatives
Roennfeldt H, Hill N, Byrne L, Hamilton B. Exploring the lived experience of receiving mental health crisis care at emergency departments, crisis phone lines and crisis care alternatives. Health Expectations 2024, 27: e14045. PMID: 38590099, PMCID: PMC11002315, DOI: 10.1111/hex.14045.Peer-Reviewed Original ResearchConceptsMental health crisis careMental health crisisCrisis careEmergency departmentCare experiencesExperiences of accessing careNegative care experiencesHealth crisisContext of emergency departmentHermeneutic phenomenological approachPhone linesExperiences of peopleIn-depth interviewsPhone supportAustralian adultsHuman connectionCare alternativesCrisis servicesParticipants' experiencesService usersCareShortage of literaturePhenomenological approachProvidersRisk assessment“It’s Like A Partnership”: Exploring the Primary Care Experiences and Patient-Defined Goals of People Who Use Drugs
Dunham K, Rivas C, Medina Blanco P, Kolod B, Salvati C, Clark K, Sue K, Hagaman A, Weiss J. “It’s Like A Partnership”: Exploring the Primary Care Experiences and Patient-Defined Goals of People Who Use Drugs. Journal Of General Internal Medicine 2024, 39: 1681-1689. PMID: 38578536, PMCID: PMC11255174, DOI: 10.1007/s11606-024-08743-5.Peer-Reviewed Original ResearchPrimary care goalsPrimary care experiencesPrimary careSemi-structured interviewsCare goalsCare experiencesPatient-defined goalsDesignA qualitative studyOrganizational-level supportPatient health outcomesPrimary care providersPatient-provider collaborationThematic analysis approachHarm reduction settingsBackgroundPrimary carePatient involvementCare outcomesCare teamCare providersHealthcare goalsHealth outcomesHealthcare decisionsDeductive codingQualitative studyHarm reductionFactors Associated with Family Functioning During Pregnancy by Adolescent and Young Adult Women
Zhong J, Lanier Y, Lyndon A, Kershaw T. Factors Associated with Family Functioning During Pregnancy by Adolescent and Young Adult Women. Women's Health Reports 2024, 5: 324-333. PMID: 38596480, PMCID: PMC11002326, DOI: 10.1089/whr.2023.0083.Peer-Reviewed Original ResearchFamily functioningContinuity of maternity careEstimate adjusted odds ratiosModels of careYoung mothersFactors associated with familyHealth care providersFamily function groupAdjusted odds ratiosPerceived social supportHigher family functioningMultivariate logistic regression modelIndividual-level factorsLogistic regression modelsAttend religious servicesFamily-level factorsYoung adult mothersCare experiencesCare providersScore of family functionMaternity careChild healthSocial supportSecondary analysisOdds ratioGender-based stigma and the prevention and treatment of HIV/AIDS among older women: A scoping review protocol
Vu T, Manalel J, Nyhan K, Wang K, Monin J. Gender-based stigma and the prevention and treatment of HIV/AIDS among older women: A scoping review protocol. PLOS ONE 2024, 19: e0298024. PMID: 38330082, PMCID: PMC10852273, DOI: 10.1371/journal.pone.0298024.Peer-Reviewed Original ResearchConceptsGender-based stigmaFull-text articlesOlder womenHIV preventionHIV care engagementStandardized data collection formPreferred Reporting ItemsImprove quality of lifeData collection formManagement of HIVPopulation of womenQuality of lifePeer-reviewed publicationsCare engagementCare experiencesWeb of ScienceTreatment of HIV/AIDSHealthcare providersNarrative summaryPRISMA-ScRSupplementary screeningSynthesize evidenceReporting ItemsCitation chainingCollection formReinforcing the humanity in healthcare: The Glasgow Consensus Statement on effective communication in clinical encounters
Makoul G, Noble L, Gulbrandsen P, van Dulmen S, Group F. Reinforcing the humanity in healthcare: The Glasgow Consensus Statement on effective communication in clinical encounters. Patient Education And Counseling 2024, 122: 108158. PMID: 38330705, DOI: 10.1016/j.pec.2024.108158.Peer-Reviewed Original ResearchConceptsHumanization of healthcareHealth professionalsClinical encountersDelivery of person-centered careEffective communicationConsensus statementPractice of health professionalsPerson-centered careContemporary health servicesStructure of healthcareInternational Conference on CommunicationCollaborative careCare experiencesImprove careHealth servicesContemporary healthcareTertiary servicesMultidisciplinary teamworkInterdisciplinary group of researchersHealthcareCareProfessionalsHealthInterdisciplinary groupEveryday practiceDigital Mental Health Improves Access to Care, Facilitates Early Intervention, and Provides Evidence-Based Treatments at a Distance
Hilty D, Zhang A, Giovanetti A, Stubbe D, Nelson E. Digital Mental Health Improves Access to Care, Facilitates Early Intervention, and Provides Evidence-Based Treatments at a Distance. 2024, 141-153. DOI: 10.1007/978-3-031-59936-1_6.Peer-Reviewed Original ResearchEffective mode of service deliveryImprove accessClinical care experiencesEvidence-based interventionsMode of service deliveryPoint of serviceEvidence-based treatmentsCare experiencesMobile healthHealthcare systemMedical disadvantageClinical careEvidence-basedHealth videosService deliveryMental disordersAsynchronous technologiesDiverse populationsEarly interventionHealthcareHealthInterventionYoung childrenUsers' healthPopulation
2023
Exploring Models of Exposure to Primary Care Careers in Training: a Narrative Review
Nandiwada D, Farkas A, Nikiforova T, Leung P, Donovan A, Killian K, Thomas M, Singh M, Gallagher B, Callender D. Exploring Models of Exposure to Primary Care Careers in Training: a Narrative Review. Journal Of General Internal Medicine 2023, 39: 277-282. PMID: 37989819, PMCID: PMC10853099, DOI: 10.1007/s11606-023-08532-6.Peer-Reviewed Reviews, Practice Guidelines, Standards, and Consensus StatementsConceptsGraduate Medical EducationUndergraduate medical educationPrimary care tracksPrimary care careersCare trackCare careersPrimary care work forceExposure to primary careNarrative reviewArea Health Education CenterMedical educationPrimary care existPrimary care workforcePrimary care experiencesHealth Education CenterLongitudinal integrated clerkshipPrimary care clerkshipPrimary careCare experiencesCare workforceCare existIntegrated clerkshipClinical exposureClerkshipEducationOptimizing Care for Autistic Patients in Health Care Settings: A Scoping Review and Call to Action
Harris H, Weissman L, Friedlaender E, Neumeyer A, Friedman A, Spence S, Rotman C, Krauss S, Broder-Fingert S, Weitzman C. Optimizing Care for Autistic Patients in Health Care Settings: A Scoping Review and Call to Action. Academic Pediatrics 2023, 24: 394-407. PMID: 37951351, DOI: 10.1016/j.acap.2023.11.006.Peer-Reviewed Original ResearchComprehensive care planAllied Health LiteratureFull-text reviewSystematic data extractionReview of interventionsEvaluation of interventionsCumulated IndexOutpatient settingCare settingsCare plansIntervention acceptabilityPediatric healthHealth LiteratureVisit preparationHand searchingCovidence softwareParent satisfactionCare experiencesExcerpta MedicaAbstract screeningAutistic individualsAutistic patientsHealthcare settingsIntervention impactStudy designChanges in Patient Experiences of Hospital Care During the COVID-19 Pandemic
Elliott M, Beckett M, Cohea C, Lehrman W, Cleary P, Giordano L, Russ C, Goldstein E, Fleisher L. Changes in Patient Experiences of Hospital Care During the COVID-19 Pandemic. JAMA Health Forum 2023, 4: e232766. PMID: 37624612, PMCID: PMC10457712, DOI: 10.1001/jamahealthforum.2023.2766.Peer-Reviewed Original ResearchConceptsCohort studyPatient experienceCare experiencesTop quartile hospitalsAffected measuresAge 65 yearsSurgical service linesStaffing levelsCOVID-19 pandemicPatient experience scoresPatient care experiencesEffect sizePrimary outcomeHCAHPS measuresPrepandemic dataHospital careMAIN OUTCOMESummary scoresHCAHPS scoresUS hospitalsLarge effect sizesPrimary analysisHospitalDischarge informationSecondary analysisDialysis Patient Experiences During the COVID-19 Pandemic: A Survey Study
Noce E, Brereton L, Zorzanello M, Aklilu A, Anders E, Bernal M, Sundararajan A, Dahl N, Kodali R, Patel D. Dialysis Patient Experiences During the COVID-19 Pandemic: A Survey Study. Kidney Medicine 2023, 5: 100673. PMID: 37305377, PMCID: PMC10186967, DOI: 10.1016/j.xkme.2023.100673.Peer-Reviewed Original ResearchCoronavirus disease 2019 (COVID-19) pandemicMental health conditionsDisease 2019 pandemicCare teamPatient experienceCare experiencesMost patientsCenter hemodialysisKidney failureDialysis treatmentDialysis careCOVID-19 pandemicHealth conditionsDialysis care teamNon-white patientsSubpopulation of patientsCare of patientsPercent of participantsPatient care experiencesNephrology practicePatient's perspectiveDerive themesPatientsAbstractTextPractice settings
2022
Seeking Healing for a Mental Illness: Understanding the Care Experiences of Service Users at a Prayer Camp in Ghana
Gyimah L, Ofori-Atta A, Asafo S, Curry L. Seeking Healing for a Mental Illness: Understanding the Care Experiences of Service Users at a Prayer Camp in Ghana. Journal Of Religion And Health 2022, 62: 1853-1871. PMID: 36066726, PMCID: PMC9986410, DOI: 10.1007/s10943-022-01643-0.Peer-Reviewed Original ResearchConceptsMental illnessMental health servicesMental health careFaith-based settingsPatient preferencesPsychiatric treatmentSide effectsHealth servicesPsychiatric facilitiesExperiences of personsService users' viewsCare experiencesCareHealth careHealingPrayer campsIllnessConstant comparative methodSpiritual healingQualitative designBiomedical treatmentTreatmentPart of healingService usersAbuseLatina Women’s Experiences With Health Facility Breastfeeding Care: Implications for Quality Improvement
Rhodes E, Vicente G, Morales S, Brown L, Duffany K, VanderWoude E, Pérez-Escamilla R. Latina Women’s Experiences With Health Facility Breastfeeding Care: Implications for Quality Improvement. Current Developments In Nutrition 2022, 6: 707. PMCID: PMC9194250, DOI: 10.1093/cdn/nzac061.091.Peer-Reviewed Original ResearchLactation consultantsCare experiencesPrenatal visitLatina womenMost womenPrimary care servicesQuality improvement interventionsPostpartum visitNewborn healthCare nursesLatina women's experiencesBirth careCare servicesImprovement interventionsWHO QualityCare qualityProvider levelCare frameworkWomenCareVisitsFormula feedPeer counselorsSystem-level changesNursesThe shifting care and outcomes for patients with endangered limbs – Critical limb ischemia (SCOPE-CLI) registry overview of study design and rationale
Scierka LE, Mena-Hurtado C, Shishehbor MH, Spertus JA, Nagpal S, Babrowski T, Bunte MC, Politano A, Humphries M, Chung J, Kirksey L, Alabi O, Soukas P, Parikh S, Faizer R, Fitridge R, Provance J, Romain G, McMillan N, Stone N, Scott K, Fuss C, Pacheco CM, Gosch K, Harper-Brooks A, Smolderen KG, Consortium O. The shifting care and outcomes for patients with endangered limbs – Critical limb ischemia (SCOPE-CLI) registry overview of study design and rationale. IJC Heart & Vasculature 2022, 39: 100971. PMID: 35198727, PMCID: PMC8850321, DOI: 10.1016/j.ijcha.2022.100971.Peer-Reviewed Original ResearchCritical limb ischemiaTreatment preferencesPeripheral artery diseaseProspective observational registryPatient-centered outcomesPatterns of carePoor wound healingHealth status outcomesProcess of careCLI careObservational registryLimb ischemiaPatient characteristicsArtery diseaseVascular centersVital statusMean agePatient preferencesPatient's perspectiveSevere formPatientsPsychosocial factorsStatus outcomesHealth statusCare experiences“Even though they insult us, the delivery they give us is the greatest thing”: a qualitative study contextualizing women’s experiences with facility-based maternal health care in Ethiopia
Hagaman A, Rodriguez HG, Barrington C, Singh K, Estifanos AS, Keraga DW, Alemayehu AK, Abate M, Bitewulign B, Barker P, Magge H. “Even though they insult us, the delivery they give us is the greatest thing”: a qualitative study contextualizing women’s experiences with facility-based maternal health care in Ethiopia. BMC Pregnancy And Childbirth 2022, 22: 31. PMID: 35031022, PMCID: PMC8759250, DOI: 10.1186/s12884-022-04381-z.Peer-Reviewed Original ResearchConceptsWomen's care experiencesMaternal healthcareCare experiencesDelivery experienceElicit women's experiencesMaternal care servicesMaternal health careWomen's overall satisfactionPoor-quality facilitiesOverall satisfactionWomen's experiencesSemi-structured interview guideAntenatal careCare registriesAdverse outcomesSix-month periodNewborn survivalConclusionOur findingsMaternal survivalCare servicesWomen's satisfactionPlace of birthDonabedian frameworkMHC experiencesHealthy outcomes
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