2024
Development of the American College of Rheumatology Patient‐Reported Outcome Quality Measures for Systemic Lupus Erythematosus
Katz P, Barber C, Duarte‐García A, Garg S, Machua W, Rodgers W, Santiago‐Casas Y, Suter L, Bartels C, Yazdany J. Development of the American College of Rheumatology Patient‐Reported Outcome Quality Measures for Systemic Lupus Erythematosus. Arthritis Care & Research 2024, 76: 777-787. PMID: 38225171, PMCID: PMC11132939, DOI: 10.1002/acr.25301.Peer-Reviewed Original ResearchMeSH KeywordsConsensusDelphi TechniqueHumansLupus Erythematosus, SystemicPatient Reported Outcome MeasuresPsychometricsReproducibility of ResultsRheumatologyUnited StatesConceptsPatient-reported outcomesPatient advisory panelPhysical functionPatient partnersExpert workgroupMulti-Dimensional Health Assessment QuestionnaireAssessment of physical functionOutcomes Measurement Information SystemQuality measuresPhysical functioning scalePatient Health QuestionnairePatient-reported outcome domainsAdvisory PanelMeasurement Information SystemPatient self-managementAssessment of fatigueHealth Assessment QuestionnaireOutcome quality measuresAssessment of depressionFeasibility of implementationHealth QuestionnaireDepression ScaleSelf-managementContent validityPsychometric review
2021
Adaptation of American College of Rheumatology Rheumatoid Arthritis Disease Activity and Functional Status Measures for Telehealth Visits
England BR, Barber CEH, Bergman M, Ranganath VK, Suter LG, Michaud K. Adaptation of American College of Rheumatology Rheumatoid Arthritis Disease Activity and Functional Status Measures for Telehealth Visits. Arthritis Care & Research 2021, 73: 1809-1814. PMID: 32813284, PMCID: PMC7461171, DOI: 10.1002/acr.24429.Peer-Reviewed Original ResearchMeSH KeywordsArthritis, RheumatoidFunctional StatusHumansPatient Reported Outcome MeasuresRheumatologySeverity of Illness IndexTelemedicineConceptsFunctional status measuresRA disease activityRheumatoid arthritis disease activityArthritis disease activityDisease activityStatus measuresTelehealth settingsJoint countTelehealth visitsAmerican CollegeFormal joint countsPatient-reported itemsTender joint countAcute phase reactantsHigh-quality clinical careClinical careExpert panelScoring modificationsStaff administrationVisitsLaboratory testingAssessment measuresACRSettingCount