The Cystic Fibrosis Care Center and Clinic
One of only two in the state of Connecticut, the CF Center in the Children's Hospital at the Yale-New Haven Hospital offers a multidisciplinary team approach to provide the most comprehensive, “state of the art” care of CF patients. Our experienced CF-care group includes 4 (board-certified) pediatric pulmonologists, 3 pediatric pulmonary fellows, a nurse practitioner, 2 registered nurses, a social worker, 2 respiratory therapists, and a nutritionist. All of our team members meet together weekly in the Pediatric Specialty Clinic for regularly scheduled follow-up and care. Urgent visits are scheduled as needed. In addition, we have active collaborations with the pediatric gastroenterologists (GI), pediatric endocrinologists, and pediatric surgeons at the Children's Hospital.
Approximately 130 patients with cystic fibrosis are followed at our Center, ranging in age from newborns to over age 65 years. The neonatal screening program for CF has been responsible for early identification of 2-4 infants with CF per year. Our collaboration with the Section of Pulmonary and Critical Care Medicine in the Department of Internal Medicine, in addition to the Medicine-Pediatrics program, has allowed the expansion of our Program for Adults with Cystic Fibrosis. Patients are transitioned to the adult program starting anywhere between ages 18 and 21 years, depending on the readiness of the patient. The Transition clinic meets twice a month in the Pediatric Specialty clinic in conjunction with our regularly scheduled CF clinic. We believe this arrangement allows us to serve the needs of both our pediatric and adult patients yet provide exquisite continuity with the most experienced CF-care givers.
Educational workshops based on patients' needs and requests are offered periodically. Because many of our patients have very busy, hectic lives, we also publish a yearly CF Center Newsletter. The aim of the newsletter is to keep our patients and their families up to date on new therapies, nutrition issues, insurance issues, and our research program. Newsletters are mailed to homes and are available on this site.
The Cystic Fibrosis Center is directed by Marie E. Egan, MD.